Carried Away

warning: heavy post

 I am learning more about the human brain and grief than I had ever imagined.

My most recent adventures have taken me down roads of cognitive medical reading, personal wondering and expansively painful learning.

My father had decided he was going to have the surgery after our visit to the neurologist. The doctor pretty much said, aside from fear of the surgery (which is normal) why NOT have it. At that " suggestion" my father said, fuck it schedule the surgery. 

I was there asking for alternatives and finding out that his long term headaches were probably the start of this who event. After ping pong visits between the neurologist and the neurosurgeon it was shown on MRI scans that my father actually has a lot of atrophy of his brain and so the surgery was not the safest option or the preferred route from the surgeon. So back to where we started and watching his cognitive decline and body function loss up close.

(below text written in stream of consciousness)

I have just finished two of the most challenging weeks with them. My father had a yearly check up and the doctor seemed fine with all he was doing; which seemed like a cursory look at things but I was exhausted and my father had been coughing all day. Doctor listened to his chest and said it was clear. It ended up keeping my mother up all night and she was already running on almost no sleep. He then states when we return that he "isn't feeling well" I say if things are not better soon we are going to a walk in clinic. The weekend that followed was all coughing and my brother took him on Monday, because as an immune compromised person he wanted to make sure I was safer until we knew more and it was bronchitis possibly the start of pneumonia. By Wednesday my mother on a call with me coughed and I returned to town to take her to a clinic that confirmed she had pneumonia, and Friday I returned because she was worse and then we went to the ER because her symptoms pointed to C-diff and she hadn't eaten since Wednesday after the first appointment and my father had decided to stop eating and then the ER, who said she had a viral pneumonia and then we were there again Saturday to watch them eat, because now neither of them was and then Monday and Tuesday my brother and wife took food to them and I spent all day calling non-profits and doctors and learning about Medi-Cal and being overwhelmed with tasks and calls and then Wednesday took my mother to a psychiatrist to see if she could start her SSRI's again because she stopped ALL her meds cold turkey a couple months ago including her zoloft, which might add to why every interaction with her was her crying. Sitting in the office for her meeting was strange, but even stranger was her new dementia like memory looping of phrases and memories was heartbreaking. The doctor said with her level of depression it was common and should start clearing when her new medicines start working. Then Thursday meeting with the exterminator for their home who said we need to replace the dilapidated garage door because they can't help if there is a literal open door for rodents. (it was not a surprise or a shock) So my brother is taking charge of that. A physical therapist who only came for 10min that day and sent me into a mental rage and then finding that a very important document for my father had expired and that stops the process of the other big project. So yesterday was all day of online renewal forms and finally signing documents for in home help that we can pay for out of pocket and ideally that help, will start Tuesday. More meetings Monday and doctors appointments Tuesday and managing schedules and paperwork and answering phone calls and texts from family who want to know all the details....and then ask if I tried x, y, or Z. In the end my mother told me I was really good at the "handholding" I was doing for them and I should make it my job. I said " I'd really just like to be an artist"  and she said " you can be creative with it, the caregiving....That was the javelin into my heart...and I kept a poker face and waited to get into the car and drive away before crying. The diapers, the food fussing, the medications, the water reminders, the doctors offices, the questions and suggestions and assumptions....remind me of my infertility days. The casual suggestions about adoptions and sex positions and the  'if you just" or "have you tried" and the banger "have you considered"

I only made yoga once last week, I am currently sitting in my workspace trying to catch up on normal things, like laundry and bills, but I have gotten 4 calls from the parents already and I am still trying to imagine my work. 

Trying to see it in my minds eye...imagine making it, breathing deeply and feeling content in the process. Telling myself that life isn't passing me by and my work still matters and I still need to make it because although all this time has been stolen from me and my partnership....it really does matter and things will change soon and I can use all this energy to make my own art.

Rollercoaster of Love

 

I am still here, still above ground.
This post does ramble...
I am a swirl of thoughts feelings and moods in every hour of the day. 

I am still in a guinea pig level of this new medication...but I am cautiously hopeful that things might be working better. I haven't been in an ER since May and I count that as a win! I have locked down my diet even more, even though having an auto immune disease means that the food doesn't really play a part in the inflammation but can contribute to irritations. So I am experimenting even more on taking things from my diet, or massively limiting them.

It is exhausting and makes having tea with a friend VERY challenging. I am there sipping water while they eat or drink beverages I once enjoyed. They try and not make a big deal about it, but I see their looks, wondering if I eat at all...or if I am hungry or...who knows. 
I am trying to make it a practice of being present in a conversation and present with the person who has asked to share time and I choose to share time with as well.

 Honestly though, at times it is very hard to not show how I really feel about how scared I am. How I constantly fear that I might eat something that could send me into a ball of pain. How they might see how scared I am to eat anything I haven't made myself...how hyper cautious I am about everything, how this has massively changed my relationship with food, my body image, my self-esteem and wellbeing.

I am back to assisting with my parents in person. I was invited back to help. I have maintained all the stuff in the background, but was refused when I offered to help take them to appointments or help by dropping off meals. So I started with shuttling my father to his mental health appointment and was asked to sit in on the session. Another therapist saw how we interact with my father and saw how challenging it is. My father is a performer, and so he is 100% on when he is around people other than family; presenting a different version to the outside world than is true making up facts. The therapist sees it thankfully, which is reassuring.

I also took my father to his annual wellness check and it was ordered that he needed a treadmill test. I took him to that, and I think it was a shock to my father that he wasn't able to last more than 2 minutes on the walking pad before his legs gave out. He will be returning to the test, but via IV dyes and stimulants to test his heart. It has been heartbreaking and beautiful to see this side of my father. Beautiful in seeing how vulnerable he is, it is a rare thing to be able to witness this side of our parents, so I hold it as a precious thing.
Each of these visits leaves me spent: emotionally, and I want to comfort myself, I do what I can to refortify myself. When he was in aftercare after his fall, I would eat a bag of harvest snaps on the drive home, screaming in between when tension was so high. Now, I drive in complete silence, no snacks are okay at this time....

It is a rollercoaster

I am rule follower, but I am determined to find a path that will work for me. 
I had two social meetings this past weekend and both left me so tired. I joke that the person who says yes to these is a different person than who shows up. I know it is super important to be social, and connect with people who are not toxic, so I push myself to go. I enjoyed both events but I was pretty quiet afterwards. I have found myself looking at people and wondering what it is like to walk in their life, eat what they eat, socialize like they do. I have found myself so much more serious and introspective. I used to identify with Tigger and now I am a cross between Piglet and Eeyore. 

Has anyone else been feeling like this? A shift in how you are interacting with the world around you?

The Barren has returned from his trip to Canada and he mentioned that the city he had his business in was light and vibrant and happy. 
I said "was it like to not waking up in a pool of existential dread every day?" and although we laughed at it, it was true.

Soapbox moment to the universe: I love where I live, it really is pretty and the kind beautiful people I interact with...but at the same time I absolutely HATE this government and everyone who is playing along, justifying it, validating it, supporting it and downplaying it.

I have been hunkering down and trying to find a bit of loft in my mind. Sometimes I get so caught up in the downward spiral of thoughts....other times it is like I am rollerskating around big holes in the road. Currently my garden spots are bringing me joy. I have a community spot and a couple guerilla spots around my complex that I have planted and they are all thriving and bright with blooms and food. I am slowly exploring art making practices that are new and interesting. I am practing yoga multiple times a week and getting closer every class to making my goal of 1000 classes done by the end of the year. Today was class 968. There have been some wins and I am celebrating them. 

My life feels like a rollercoaster for sure, but I am still trying to see it through love lenses,
No matter how cheesy that is.

Shifting mindscape

 The new year has arrived and with it all the stress and terror about what these next few years will unfold and release. So many unknowns and fears and realities. 

It is like one thing after another, so surreal and so hard to really wrap my brain around...

I read somewhere during quarantine that the human brain wasn't designed/built to handle this many stressful events. I try and say that to myself when I am faced with a 4foot thick wall of stress and anxiousness and fear. 

"I am not going to be able to manage all this into a neat orderly situation that I can fix"

I have found my time out in public is feeling more feral. I don't reach out to talk to people unprompted anymore. I purposely don't make eye contact with people, especially men; and when engaged I stare strait into their eyes with a "don't fuck with me, I don't trust you" energy.

I am feeling so many feelings and not quite sure how to process them anymore.

I fear I am not preparing "right" for all these new unknowable's, and unimaginable scenarios. I have stocked up on a few women's healthcare supplies, just in case. Our little bit of savings are being managed by professionals, I have asked my doctor about my medicines and if the medical system changed...he assured me that the medicine I am taking or would change to is currently manufactured and readily available. (not totally convinced but I can't manage everything) I think my glasses are next on the list to upgrade before too late here. I am trying to secure me, as being a woman in the US now has some potential real changes. It is hard to imagine this...like beyond unreal.

And right on cue, Mother Nature shows us all that nothing is okay and has started some of the largest and most horrible fires that my state has seen in a while. Soooo sooo much loss.

My fire app is sending notices every hour it seems, new fires are everywhere.

I sit here and wonder, stare and dissociate.

*****

In an effort to flip my mind in a new way and not cement those neuropathways...

I made an impulsive decision last week to buy tickets to a small circus that was visiting our town. I drove by the tent for a couple weeks on my way to predawn yoga, the lights of the tent glowed in such a magical way. I had The Barren make a detour one night so I could try and take a couple pinhole photos. Then Friday last week while I sat in the car at 5:45 in the morning, I bought tickets to see the show. I splurged and got the VIP tickets so we could sit as close as possible. Thankfully DH knew I was trying to self soothe and went along with me with zero hesitation. As I stepped out of the car it was like I let go of all my sadness, and forced myself to just embrace my childhood glee. I cheered loudly at the preshow performances and just about burst into tears with joy as I walked past the ring leader standing on a box playing the song from Amelie on the accordion, at the entrance into the tent.

It was an old style Italian circus; there were dropped juggling pins, kids freaking out, a horse that stood its ground and a single clown who ended up sitting on my lap! Simply put, it was charming and well worth the time.

My face hurt from smiling and my muscles behind my ears clenched from so must laughing. The jokes were corny and predictable but I didn't care. I had taken off my airs when I left the car and thought, this is what a moment of joy feels like, embrace it.

It was magic and I was thankful I had that little voice tell me to do it.

My world has shifted for sure, it has radically changed me and the way I see the once amazing world that surrounded me. I am grateful that I wake up each day, and I continue to choose to fight the urge to go with the flow. I work everyday with maintaining my calm and processing unaccounted for things and situations. It is sometimes a real struggle.

I am thankful I have a home, a loving partner and a couple friends.

I am thankful that my body continues to show up for me and my family both chosen and blood related is relatively healthy.

I don't know how I could have raised a kind little person through these times...I fear I might not have been able to show up for them in the best way.

I guess I need to just start small again, and just keep showing up for myself

I hope that all of you can keep doing that too.

Molehill

 

I tried something new last week.
I did my meditation practice in the park, 

with my teacher and other students, 
at a social distance+, 

while wearing a mask the whole time.

It was a nice change, and something I am going to try and do again this week.

I watched the sun come up

I sat on my mat while bits of green pine cone rained down on me

from the tree and the squirrels eating above.

It was a lovely change.

After class a student that is always in virtual class came up to me and we chatted for a little while.

I was awkward from isolation

spoke in fits and starts

but it was nice to meet someone new!

This same day, we had a mandatory 4 hour power outage at home.

It was planned and I had gotten ice for our perishables.

(this is the foreshadowing part)

The power ended up only being out for a little over an hour...

but...The Barren had taken the day off.

We spent the day fighting the current heatwave.

We don't have AC, and so the fans were on and we were laying (literally) low.

Later that day, I realized

I forgot the ice in the coolers and it leaked all over the  living room floor.

As the week went on, our fridge seemed warmer than normal,

but I simply figured the heat wave made me want everything cold cold...

so I turned the temp down further.

By Thursday, The Barrens' stress level from work was through the roof-

I was giving him personal space and quiet.

except for when we called to wish 

Our niece happy 7th birthday wishes. 

 This same day, my state had registered over 500 individual active fires.

Many started by lightning, and with our decade long drought it was easy to ignite.

The smoke is starting to bellow all over the state and so we close all the windows and doors, 

so as to not get sick from the air.

Then...

My father called with an update from his recheck with his neurologist 

and was this time diagnosed with 

Hemicrainia Continua

and had stopped his prescribed steroids (for a "viral infection" in his brain)

 and was prescribed an anti-seizure med 
(ironically the same med my cat is on)

He gave me bits and pieces about the visit, peppering in his "toxic positivity" over it all.

When I asked a few questions about the visit, my mother was handed the phone and 

I could hear her voice shake as she mentioned her fear

from witnessing memory loss and balance issues she was seeing in my father.

I did my best to let her know I heard her, and that I thought it was a really good idea to mention these things to my fathers primary doctor. Fear of addressing them was not going to do any good.

I phoned my brother and told him we need to sit down and have a super sucky conversation about our parents and where our lines of involvement are.

I felt like the big sister again, and I could hear in his voice my little brother.

It was terrible.

Meanwhile the old man cat, is miserable from the heat and is lying around looking dead.

Like, have to check he is breathing, looking dead!

Then we had two small earthquakes 

and when I got up to get myself a glass of water.

I realized nothing was cold in the fridge but everything was still frozen in the freezer.

I started to spin., and the room was getting dark.

(I had gone shopping on Sunday before the outage and the new food was bad or going bad)

At this point, 

I was just able to vocalize to the stressed out Barren, before I shut down, that I was:

" really really stressed"

I don't think I spoke the rest of the day.

I sat and watched TV and went to bed to stare at the mountain of laundry 

that had formed in the corner of our bedroom.

Yesterday night, we went and bought a new fridge.

We should get it sometime in the next week, ideally.

Turns out everyone is sold out of fridges and with the heatwave and rolling blackouts

and fires and earthquakes and a virus that is still killing thousands...

things are a little backed up.

So how is your week going?

fighting against it all

We attended a Black Lives Matter rally two weekends ago.
We paraded around (in the car) the protesters with hand-painted signs of support.
(this was our social distancing version of protesting)
I am reading new books and learning how to be a better anti-racist.
but there are people that didn't support the cause...
one of our favorite Vietnamese take out places put a Black Lives Matter sign in their storefront window and some customers asked him to take it down that it made them uncomfortable.
He refused...and thankfully he mentioned it on his social media page
and received a load of support!
PEOPLE!! Seriously!
I am feeling the water creeping closer to my head in this fight...

I was reading what other countries are reading and understanding about the US.
and I was not surprised.
We are a train-wreck and then this happened...

This is why Americans are still dying and contracting the virus.

This is an example of people I live near.

I fight everyday to think the best of people, believe that most people are good.

I do hold that as my starting point.

This is why it is questioned every day and why I am terrified to go get groceries.

Thankfully the city council voted to mandate masks 

for all indoor businesses, and government offices, it was a close vote though!!

4-3 for masks

My town is on a watch list now, as we have had a spike in cases.

over 100 new cases over the weekend and an increase in hospitalized cases.

This is how the US is dealing with the virus.

we have a peeing section in our pool.

If you are outside the US, know that there are millions marching against this.
We have more registered voters than ever before.
Most of us DO NOT WANT this reality.
MANY of us believe in equality and justice.
We want a change to the establishment.
WE ARE FIGHTING.
if you are an american and live abroad

PLEASE VOTE!!

Resurface your skin

Thankfully, my unplugging is helping.

Another massive tragedy has hit my town and everyone is reeling and tender.

This came after I was scrolling the local paper for events for the extended weekend and found a mugshot of a man that was often our waiter at a local restaurant. 

In our interactions with him; he was kind, remembered us every-time we visited and had the kind of polite manners I remember we all were suppose to have as kids.

He was arrested for stabbing to death two people he knew. 

I think I am still in total shock about that too.

Then, like a morbid cherry on a fucked sundae, 

 I read about a friend (peer) that I use to work with loosing her husband unexpectedly in his sleep.

I have been doing yoga, 

working in the studio and making meals.

The Barren and I have been spending quiet time together 

and talking about all the scary reality that is hitting us all at the same time.

Parents aging and acting older

What do we want with our lives as we head into older years

Watching kids/nephews/nieces/ godchildren grow

facing responsibilities and taking care of our bodies

it all really sucks

I long for those carefree days of naive bliss

I read somewhere that to help maintain your mental cracks

when you are feeling depressed

overwhelmed and under-prepared

start with thinking about how you want to feel.

It seems quite patronizing but in my mind...I make it into an image.

I imagine a beautiful sun filtered field, butterflies flickering above the tall grass

a soothing breeze and the calm that comes from stepping into that image.

It has been helping me direct the overwhelming feelings into a space I can breathe again in.

I hope that the world has not overtaken you dear warriors

We have been walked over by hopes way too many times already.

Please try and fight to seize the joy that is still yours.

Cracked

This week was the closest I've been to actually having a mental break.

Everything seemed to tumble into me

I was overwhelmed by the news

I was overwhelmed with my life

I was overwhelmed by driving

I was overwhelmed by having to choose what to eat

I was overwhelmed my responsibilities

I was overwhelmed and emotional

I was overwhelmed by the sense of loneliness

I made myself go to yoga on Friday thinking

this is your social moment,

this is what will keep you from floating away.

I had been sitting at home staring at submission screens thinking: why?!

I had gone into work that week

I had made dinner for us that whole week

I had paid bills and did laundry

and then the whole world seemed so big and sad and burning and angry

and upside down and wrong, so so wrong.

I could feel it all and it made me tip

I forced myself out of bed, even though I wanted to spend the day sleeping and under the covers

I functioned but felt empty.

After yoga class

I went home and cried some 

(I don't cry much these days so I thought that was a good sign)

then my mother called and I told her now was not a good time.

(conversations with my parents have shifted as of late and require a lot of emotional strength and effort to simply listen and not try and say much of anything, which seems to go unnoticed)

I showered and got dressed and sat.

The old man cat laid on me like a tiny weighted blanket, checking on me 

as I laid there and stared into nothing.

I slept a little

and then The Barren came home from work

I ate something

and we crawled into bed.

I promised him I'd not look at news anymore

I had attempted to empty my FB account of personal images

leaving my business one with only work

Yesterday I took the news off my phone, 

so no more notices of the next bad and horrible that has happened.

I called senators and congress people and asked them to support important issues

protect our planet and our under-represented people.

I unsubscribed from political emails that I get texts from every hour 

The Barren made me promise to protect myself

I feel sooo much sometimes it is dangerous to my mental health.

so I have been focusing on quieting my mind for a little while

I have been asking myself what else I can do to make a difference as one person.

buy less 

less packing

I have been focusing on the things I am doing

and how it means something.

I am trying

You are a wreck

So I went to the endo doctor....

I had The Barren come with me, well, because it was a male doctor and as sexist as that sounds often times when I have visited a male doctor they talk down to me unless The Barren is present.

It sucks and is sad, but true.

So I brought back-up

Also, I had MASSIVE white coat and I wanted a second set of ears to hear what my brain dropped with its high screeching sound.

I was sweating and anxious and although my clots had stopped on Monday, I was still spotting.

The doctor came into the exam room like a cowboy on a bulldozer.

Sat down in front of me with my folder and said:

"You are peri-menopausal.

that is why you are bleeding like this."

"We've met before, but you were asleep" (creepy)

He assisted on my ovarian cystectomy and stage four endo confirmation.

" yep, you are total mess, everything is just all mucked up in there."

He was trying to make light of things I think...but it came across a little like a used car salesman

He told me that when I got tired of bleeding I should consider a D&C or Uterine Ablation or both.

But first, 

" We need to do an endometrial biopsy, to confirm that you don't have uterine cancer. I don't think you do, but it is important to confirm that.

I have my nurse practitioners do them because I don't like to hurt people and they hurt. Because I have never had any children, my cervical opening is small or totally closed and they might not be able to do the biopsy, so if that is the case then they would do it with a D&C""

I saw The Barren go pale when the doctor described the process 

and I think I left my body at that moment.

He suggested that I double up on my BC pill to up the hormone and if it works then we can switch to another pill and just take them back to back.

Oh, and you can only take the pill until you are 50 so you only have a little bit of time left on that.

then you are considered Menopausal and you shouldn't be on the pill anymore.

I told him I was most afraid of having to have a hysterectomy and he told me that he had ZERO desire to do one, that he doesn't even have it on the list of options....unless needed.like uterine cancer.

That was a relief among the land mines.

He also said that caffeine or alcohol are not triggers for endo and that I should be drinking champagne whenever I want and enjoying my cup of tea in the morning.

I left the office with a biopsy appointment, with a nurse practitioner that was versed in the procedure of difficult subjects, and the lady at the front desk said she would ask if a should take some kind of medicine ahead of the procedure to help make it easier for us both...but it wasn't an anti-anxiety drug.

I left the appointment feeling like I had been run over by a mack truck!

I was dizzy and shaking and confused and so very sad.

I spoke to a pharmacist yesterday that confirmed that doubling up on the BC pill was a good option and if the spotting stopped then get a new prescription with that dose and take three 28 day packs back to back. 28 day packs have a wider range of dosages of hormone than the 91day generics I take.

I started last night and aside from some nausea this morning, I feel pretty alright and the spotting seems to be stopping too! 

I did yoga yesterday and today...that helped A LOT.

I am scared of the biopsy, but keep trying to focus on it being a 10-15 minute 

procedure and that the pain will be temporary.

The Barren is taking me to and from the appointment that day.

I am so done with this bullshit

I am done with doctors

I am done with the sadness

I am done with painful procedures

I am done with feeling so overwhelmed

but something somewhere in me won't let me totally give up and give in

I still have some dim flame of hope that this will be it, the last of it for a long spell 

Random Encounters

I was feeling blue today, rough start to the day perhaps or just a flood of feelings...regardless I took a moment and said to myself 

" you gotta change this"

so I started doing things that my therapist use to call "Chopping wood and carrying water"

movement through sorrow...the key is to move, both literally and mentally.

We have a bunch of money paperwork in our bedroom, 

it is bad Feng Shui

so I decided to tackle that and get it out of our bedroom and stored somewhere more appropriate.

I made a list of things I needed and headed out to the 99cent store for office supplies.

I was cruising the aisles and turned the corner to encounter a man that was 

about 400 pounds and 6 foot 2

holding two pairs of hedge trimmers.

He said that " this is what you do to your husband" 

I responded that I loved him too much to hurt him.

I guess that opened the door for his unsolicited advice on how to reach the divine.

I was to call them forth by simply calling their name three times while touching acupressure points on my face and breathing in a certain pattern and they would manifest 

( I could only think about Beetlejuice at this point )

He then continued to tell me how I could radically change my life with his processes and that he had cured addicts with this breathing and meditation techniques.

He then reached into his pocket on his shorts and pulled the top card off a stack of business cards and told me to go to the website and watch all the videos and read all the information there.

I in turn was taking this opportunity to listen

be present 

watch his hands and my enviroment

and remember that sometimes people just need to talk to someone.

I then said about four times

thank you for the information 

It could make for a very enjoyable weekend.

(with no intent of looking up the website, 

because in my mind I was sure it would have a virus or some creepy spyware.

I try to be kind- but not stupid)

As I was walking away he asked if I had children

I giggled under my breath

I said no

He then said that was good, because " kids these days are nothing but trouble"

I told him I had still had hope for them

at that, he asked if I knew where the superglue was.

It got me out of my mood.

It also kept me on my toes, and I was making note of where he was and making sure he wasn't watching me or following me.

That part sucked the most. 

Pride in the journey

So The Barren is growing in his grief...he is learning to identify his triggers.

That is HUGE

He was at work learning some new stuff for his current role and a new parent was talking about how thankful they were to have some time off work and it was supported by the employer.

I got a text message saying:

" HR was talking about paid family leave and out of nowhere I find myself about to break down...doing OK now, but it was touch and go for a moment"

After work he met with him mom and they were chatting and she started to ask about all our friends with kids and how we must hang out with them and play with their kids...

He spoke up and said, you know we often need to protect ourselves from our triggers and make sure we are alright with going to an event or party. We often skip them so that we can relax and enjoy our afternoon too. He told her about the event earlier in the day.

She was flustered, and out of no where asked if we were thinking about adoption.

to which The Barren said NO

He thinks she was not sure how to deal with suddenly witnessing his grief 

...I think she just needed to get a question off her chest.

Regardless, I am beyond proud of him and his new ability to speak up about things that trigger his sorrow and memories. He is making progress and that is to be applauded.

Anniversary-many years later

It is the anniversary of my 1st of three miscarriages on tomorrow

and then 

It is our wedding anniversary on Tuesday

We will be celebrating 24years together and 14years married. 

In the meantime I am quiet...I feel kind of sideswiped/wounded.
I woke up feeling okay,
started about my day, but something feels off.

Muscle memory maybe?

My heart has been beating along as normal.
but there is a heaviness.

As of late, I have been referring to our never to be child as our star child.
Made of love and stardust.
It is in an effort to include them as a element into our living lives,
but understand that they are not physically here,
but still able to be seen and felt deeply.
The Barren seems to be okay with this new development.
I think this is me hoping it is another step towards feeling alright.

I am set to work a photo-shoot tomorrow, doing a family shoot for a friend with a toddler.
The one who named her child the name we had secretly picked for our own child.

I assume after the job is done, I will need a nap or a drink or both wrapped in a cuddle.

Even after all these years, I still feel it so deeply.
but....
One thing I do differently, is that I give myself space now to feel it.
Feel all of it, deep and dark and big and bright.

That is the reminder of stardust.

I was that girl

"A 23-year-old American college student who was killed in the Paris attacks was described as a “gifted student” by her teachers and beloved by her friends.

Nohemi Gonzalez was killed Friday night at the bistro La Belle Equipe in Paris. She was spending time with friends when a gunman opened fire on the scene and fatally wounded her."

When I heard about the attacks in Paris I froze, I literally could not process anything at all.
                                                                         *******

Many years ago, when I was in my early 20's I was a student studying in Paris, living out my dream of being an artist in the epicenter of my creative forefathers and foremothers. Eating bread and canned peas. Going to the museum everyday, drawing and dreaming and learning who I was and what I wanted from life and for myself. Kissing boys and crying and laughing. 

I was that girl who went to a concert in Paris, and got caught in a mosh pit and thrown to the ground, tossed from the chaos yet, alive fwith fear and desire for excitement. 

I was that girl who ate in a cafe and ordered an omelette in her best version of French.

I was that girl who smelt the night air and felt the magic of the city

I was that girl

And I am that very same girl, shaken to my very core when I heard what happened.

I cried a lot and wondered if that magic had been taken away

I felt as though something had blown up my memories of the sweet, 

nostalgia of the city of light

Someone had taken a dreamer away, pulled her from this earth before she could finish her dreams

I felt

I could imagine

I mourned a stranger

I mourned all the dreamers and strangers who were simply

living that night. Living and dreaming and hoping for more wonderful.

I am those girls

I am those boys

I am those children

Three Glasses...and some salad

**gloomy post***

I'll own it

I stayed at home all day for mother's day

Hiding, avoiding, and not feeding into the day.

I didn't get any calls, or cards or mementos 

I am not a mother after all

I did send cards to a few friends/family members wishing them a happy Mothering day.

It was easier to send the cards this year than it has been in the past.

I got them weeks ahead of time and so it was simply adding a few words of love and a stamp

My mother was home sick, so I didn't have the pressure of visiting her either.

Since then, I have been working slowly on my own work

doing practice as often as I can

fighting off colds/bugs by doing practice and sleeping.

I haven't been thinking about much really these days and I think that is an issue.

I am in a slump

I am fighting comparing myself to others

fighting self worth issues 

and body issues

I bowed out of a few social events recently, just saying I wasn't able to make them

and not going to them seemed easier than trying to pretend to be present.

This last weekend was a social one that I couldn't bow out of.

Starting with a girls dinner at a neighbors place.

I was anxious about going but I put on some mascara and went and played the mantra, 

have fun, relax over and over in my head.

I was relaxed and having fun, until the second group of ladies showed up 

and I realized that there was another full uterus, the hostess being the other.

Then another woman came in glowing and throwing her hand into everyone's face 

saying, hug me I just got engaged.

I looked at a friend and said, I think I'll take that glass of wine now.

She smiled and in my mind the place suddenly filled with pregnant women.

In reality there were two out of 10

As intoxication was reached, I participated in a dress swap and was able to get a lovely 70's disco queen dress that I had admired from a friend and she in exchange was gonna get a dress that was washed and now too short for my taste.

 Then a slow walk home, 

texting The Barren that I was drunk and walking home.

On arrival I fell onto the couch and The Barren arrived soon after, smiling and happy that I was drunk and in an OK mood.

Sunday was another social event, and I was super anxious.

I adore the women from this group but I always have this feeling that I am the fat girl

I get a once over (full body up and down glance) before the hug hello

it sucks!

I am meant to feel like I need to be doing more, making more, exhibiting more, being more aggressive or MORE....

I was the driver for this event, and so I only had a single glass of wine and salad

Socializing was mellow and free flowing but I became self conscience many times over when people asked about what I ate and didn't eat.

I remember saying at one point, I have a strange and treacherous relationship with food now.

I think I said it enough under my breath to avoid additional questions.

It is true though.

I try and enjoy what I eat, constantly making efforts to only eat and make healthy choices but recently most food has some measurement on a self imposed guilt scale. 

I fantasize about eating a chocolate croissant and a cup of black tea with sugar...or a poached egg in a bowl of noodle soup.

Ugh this all just sucks....

I need to find a way to escape this latest encampment in this place....

it isn't black and doom and gloomy

but thick enough to make me stop in my tracks.

Yesterday and the years before

***warning I talk about death and children***

Yesterday was hard....it wasn't suppose to be and I hadn't planned for it to be.

I got up at 4:15am to get ready for my yoga class...and as I normally do I check the news for accidents, check to see who the teacher for class is

 and social media while I wake up calmly and pull my hair up.

that is when I saw it....I read the words and then only heard a ringing in my ears:

"Goodbye My Love, I will miss you terribly. 

You found the second love letter card from me this morning but never got to open it.

My Wife of 14.5 years (+5.5 years dating) has passed away from heart failure today at noon. She has had health challenges for quite sometime, so this maybe some welcome relief for her.

She was a wonderful woman with a beautiful soul. She made friends easy and captured me on our first meeting with her boy on her knee.

I'm still in shock while I write you all this notice and I'll be back to tell you more later."

The person this husband is referring to was a dear friend from high school.

I met her in high school, she was in our art gaggle, and a talented painter.  She was the token headbanger and wore leather mini dresses and was quick to laugh. She had gotten a full scholarship to the local UC college but was unable to accept it, as around the same time, she became pregnant from a guy who wanted nothing to do with the baby.  She graduated and decorated her mortar board with the words "it's a boy". My bestest and I attended the birth of her son just a few weeks after we graduated. We were there to take photographs at her request. She had to give birth on her hands and knees as she was in a car accident* before getting pregnant and had hurt her back. 

We heard her labor and all she said was "ow that hurts"

She became a single mom, and was asked to move out of the family home as her father could not bare the fact that his daughter was unwed and a mother by the age of 18. 

She went back to school and became a nurse. It was then that she developed a severe latex allergy...so severe that she would pass out, from being unable to breathe, she finally got a service dog and it was these dogs that saved her from death many many times over. 

She still thrived, and found true love in a man that took every moment of the day to make her life wonderful, comfortable and fun.

Her son grew up, joined the marines and is now a sheriff locally.

She fought for animals, had a small menagerie of her own and crafted . 

She joined medical trials to find a cure for this horrible disease that was in every corner of her life outside of the joy.

She had developed seizures that would wipe away short term memories, and recently she passed out at their woodside cabin and had to be airlifted to the ICU, where they found she had low potassium levels. 

They were changing her medications and I guess the strain to her heart was just too much this last time and she left . Freeing herself from her body.

I was unable to think after reading her husband's words, I climbed back into bed and The Barren asked if I had had a nightmare and I whispered "Kara died" and let the tears fall down my face as he wrapped his arm around me. I fell back to slept with a heaviness in my chest that made it a labor to breathe.

When I work up I thought I had dreamt the whole thing...but it was not the case.

I spent the day quiet and watched downton abbey and ate and napped....I texted my bestest and we both agreed that we were really messed up from the news and would call each other later in the day to cry it out together. I was sitting curled in a blanket when the Barren came home and handed me a bag of kettle popcorn, he sat beside me and said nothing but simply shared the bag and we watched something on the screen. He made dinner for us: vegan pancakes and kissed me 

When my bestest called it was the best thing in the world to hear her voice. 

She remembered the car accident*: Kara and her best friend were in her beloved mustang stopped at a signal headbanging to some song on the tapedeck and got rear ended and they both got whiplash. They proudly came to school the next day with neck braces and laughing about it. 

I remembered us making the 1st birthday cake for her son and choosing bright green filling as it would make the biggest mess when he ate it !

The talk and the memories helped us both. 

My bestest said that although she had her son so young and it made her life rough, it was most likely one of the biggest wonderful in her life. As she was able to watch him grow into the man he is today. Giving her a huge sense of pride. If she had waited she might not have been given that opportunity.

I agreed and it made sense to me.

Hug your friends dear ones, hug the ones you want to but hesitate to.

Hug the ones you always hug.

And to all a good night

Thank you everyone for your lovely notes for The Barren....he was most touched.

Sometimes this is a TALL order,
but worth aiming for over and over again.

It has been a whirlwind of changes and stress and work, which is why I have been MIA from this beautiful wonderful place of love and personal growth.

I referred to it as my mourning dress,
as my relationship with ice cream has forever changed

To start with I made it through my gallery shows and this year for the big Warhol-ian event I wore this lovely number, along side new gallery shoes that didn't make my feet hurt at all...strait out of the box even! I sold work for the 5th year in a row...which in itself was a personal goal I gladly met.

I had a funny thing happen to me that has happened every time I met someone of noteworthy status...It gets interrupted or goes amok at that exact moment of introduction. 

Like the universe thinks, nope she doesn't really need to meet this person.

It has happened when I was introducing myself to this personal idol, that I had see give a talk. She actually walked away while I was shaking her hand and introducing myself to her...I finished my introduction by yelling my name across the crowded gallery to her....it was mortifying and I left in a pool of tears...vowing to never mention her name again. 

That was over 10 years ago...clearly I am making slow steps back to saying her name.

It happened again when I worked at a bookstore and I walked up to ask this person if he needed help or had any questions about inventory...except no actual words came out of my mouth instead it was a lovely line of gibberish that made him smirk and I walked away mortified.

Alas, it happened at this last event, except I laughed when I realized what was happening...

As a friend was introducing me to this person, and my hand was extended someone next me put two hands on my arm and physically pushed me out of the way....in such a way that when the friend and person turned back towards me (after motioning to my work on the gallery wall) I had literally disappeared into the sea of people in the gallery...swallowed up. 

I am trying to figure out what the universe is trying to tell me...or if I am just really bad at introductions and I purposefully stumble. 

I'll get back to you on that.

As for changes, The Barren and myself took the week of turkey to turn our whole house upside down!  The motivation started with me having a severe night terror that woke The Barren because I was screaming that someone was at the end of the bed...in his half awaken state he started thrashing and because I can not see without my glasses it made me even more frightened as I was waking and we were both screaming and hitting the air until we were both awake enough to realize nothing was there. None the less it made us think...we need to change shit around and get rid of this. So we burned sage, and hex remover (yep The Barren picked up a jar of the stuff when he was in 

Memphis) We had made a huge list of things we wanted to do in the house and felt that it was monumental to try and do half of the things...turns out we did almost all of them!

It started with repairing the garbage disposal, and then getting rid of a bunch of furniture, and then hacking some ikea stuff and making it into other things and then getting rid of clothes and extra things that we just never thought too much about.

I got rid of childhood things and came to realize that many of the things I was holding onto were for the invisible child we can't share it with...it was a hard real reality but I came to the understanding calmly and consoled myself by say "there is some other child that would love this, I am going to give it to them"

The end result is that our home feels totally different....like a new place.

It doesn't feel sad anymore.

I guess I didn't realize that it felt sad in our house...

in the absence I became aware of the presence.

Now as we slide into the holidays...we are working strait on through them. I have to work on xmas eve and the day after xmas as does The Barren. We have decorated the house and got a little 2ft tree that we placed little resin birds and straw ornaments I got in eastern Europe a decade ago.

We have our menorahs out as well as a Krampus and some Buddhas for good measure.

It feels festive and today a new couch arrived...another on our huge list of things to make us happier.

As the night comes to you, know that I am wishing you a wonderful holiday

I send hugs and love to each of you and wish you a serene, and divine celebration.

xoxox

The Barreness

Inspiration Wednesday

I follow this photographer on social media, and really find daily inspiration from the people he meets.
This one in particular sits deeply in me and made me cry the first time I read it:

Humans of New York

June 28

"What's your favorite thing about your mother?"

"She loves life more than anyone I've ever known. I hope she doesn't mind me telling you this, but recently she's had some health problems. And her health got so bad at one point, she called me and said: 

'I was starting to wonder if there was any reason to go on. But then I had the most delicious pear!'"

The roads walked

I'm a sucker for a funny vagina reference

I have been MIA, sorry about that.

I have been stealthily reading blogs and trying to keep up with all your beautiful lives.

I have been slightly depressed, nothing huge,or concerning just quieter...so I have kept on the down low.

The Barren and I went on a little trip, to the other side of the US.

It was cool and grey and a wonderful change from our current local that is always on the verge of bursting into flames...really. I learned that many people can barely believe that my state is in a stage two drought and that everything really is dead or dying from lack of water. It is sad, and people are now regularly performing rain dances...with conviction. for real...really

I also learned that although we live in a dry (lack of water) state, we have more produce options than others and I am thankful for that....besides the lower carbon footprint, I am use to the greens and citrus.

The place we went was quiet and magical and serene...
we did some good karma yoga to help the MIL and it was just what we needed.
We went on many walks, and looked at stars at night.
We watched sea birds and listened to the night and water lapping on the rocks outside.

Included in the highlights were the following:
I traveled for the first time (IN MY WHOLE LIFE) on a boat with out getting sick...
I used yoga breathing exercises and burst into tears when we landed, I was so proud and happy.

I ate ice cream almost everyday and felt no guilt, just joy.

We stayed for a week, and left the day our nephews and their parents (The Barren's sister, hubby and kids)
arrived for a week with the MIL

(totally unintentional to miss them, but in hindsight a good thing)

Now we are home, and things are back into the swing of things, it was a rough transition back,
 but we are on track.

I got a text from my MIL two days after we left that described her scene:

" We went to the island today.  Fantastic day.  Really warm and no breeze.  Little bam -bam had a complete and total meltdown because he couldn't run and jump all over the rocks on the cliff edge.  There were even signs  posted that said no rescue was possible if someone fell, but that didn't matter to him!  They are off having dinner and I am at home in the peace and quiet.  I think I am only having Big brother this summer.  Little bam-bam is still pretty out of control.  The Island must have been twice as crowded as when we went. What a difference a week makes! "

My nephews are wild things, totally out of control and only the eldest is over-parented; so it is no surprise that the younger is still totally out of control. This is the same nephew I apologized for at the memorial when he was running around the gathering screaming "sexy lady" while his parents shrugged and said
"what you gonna do"
*sigh*

I am now back into my practice, The Barren is traveling already for work...
 and I am fighting some serious focus issues again.
I had a wonderful time away, and returning has highlighted how over committed I am and how stretched thin I am, and how easily I am distracted from my to-do list....
There are some possible BIG changes in my art career on the horizon and I am struggling to find a way to still do all that I need to, to generate income, while trying to transition to full time art making.
I fear it will be two full time jobs for a while. I expect it will be hard and I can do that.
It is the panicked, I am struggling more with; the finances involved with this trial, and the pressure to sell enough to maintain it....or heck make a few dollars on top of covering costs!
Alas, I am charging ahead of myself...I won't know until July...so until then I am trying to make new work.
Save some cash...and be positive for a healthy heart and mind.

I have also discovered that I have really distanced myself from my infertility.
I don't think about it anymore...I don't focus on what I don't have, or should have.
I am me, and my love makes us.

I ran into an old co-worker whom I haven't seen since 2007 and she asked if I had finally had kids.
Mind you we were in a bank lobby and she has a booming voice...it drew the attention of a woman sitting in a chair waiting for a teller...I smiled and said, we tried for a long time but it didn't work. She then told me that another woman we worked with got pregnant and she would give me her number so I could call her and find out how. Inside my head I thought, I should be gracious and say thank you, but instead I said " we can't have children, I've seen many doctors and had surgery, but it is OK...we are very happy"
The lady in the chair, looked up again and then smiled and looked down.
I escorted this former co-worker outside with me, as I had had too much conversation in the bank lobby.
She told be some more about former co-workers and I was reminded how far I had traveled, and how much healthier I was now.
I have dropped my subtitle, I am no longer The Barreness: infertile woman
instead I am
The Barreness: Artist