I am still here, still above ground.
This post does ramble...
I am a swirl of thoughts feelings and moods in every hour of the day.
I am still in a guinea pig level of this new medication...but I am cautiously hopeful that things might be working better. I haven't been in an ER since May and I count that as a win! I have locked down my diet even more, even though having an auto immune disease means that the food doesn't really play a part in the inflammation but can contribute to irritations. So I am experimenting even more on taking things from my diet, or massively limiting them.
It is exhausting and makes having tea with a friend VERY challenging. I am there sipping water while they eat or drink beverages I once enjoyed. They try and not make a big deal about it, but I see their looks, wondering if I eat at all...or if I am hungry or...who knows.
I am trying to make it a practice of being present in a conversation and present with the person who has asked to share time and I choose to share time with as well.
Honestly though, at times it is very hard to not show how I really feel about how scared I am. How I constantly fear that I might eat something that could send me into a ball of pain. How they might see how scared I am to eat anything I haven't made myself...how hyper cautious I am about everything, how this has massively changed my relationship with food, my body image, my self-esteem and wellbeing.
I am back to assisting with my parents in person. I was invited back to help. I have maintained all the stuff in the background, but was refused when I offered to help take them to appointments or help by dropping off meals. So I started with shuttling my father to his mental health appointment and was asked to sit in on the session. Another therapist saw how we interact with my father and saw how challenging it is. My father is a performer, and so he is 100% on when he is around people other than family; presenting a different version to the outside world than is true making up facts. The therapist sees it thankfully, which is reassuring.
I also took my father to his annual wellness check and it was ordered that he needed a treadmill test. I took him to that, and I think it was a shock to my father that he wasn't able to last more than 2 minutes on the walking pad before his legs gave out. He will be returning to the test, but via IV dyes and stimulants to test his heart. It has been heartbreaking and beautiful to see this side of my father. Beautiful in seeing how vulnerable he is, it is a rare thing to be able to witness this side of our parents, so I hold it as a precious thing.
Each of these visits leaves me spent: emotionally, and I want to comfort myself, I do what I can to refortify myself. When he was in aftercare after his fall, I would eat a bag of harvest snaps on the drive home, screaming in between when tension was so high. Now, I drive in complete silence, no snacks are okay at this time....
It is a rollercoaster
I am rule follower, but I am determined to find a path that will work for me.
I had two social meetings this past weekend and both left me so tired. I joke that the person who says yes to these is a different person than who shows up. I know it is super important to be social, and connect with people who are not toxic, so I push myself to go. I enjoyed both events but I was pretty quiet afterwards. I have found myself looking at people and wondering what it is like to walk in their life, eat what they eat, socialize like they do. I have found myself so much more serious and introspective. I used to identify with Tigger and now I am a cross between Piglet and Eeyore.
Has anyone else been feeling like this? A shift in how you are interacting with the world around you?
The Barren has returned from his trip to Canada and he mentioned that the city he had his business in was light and vibrant and happy.
I said "was it like to not waking up in a pool of existential dread every day?" and although we laughed at it, it was true.
Soapbox moment to the universe: I love where I live, it really is pretty and the kind beautiful people I interact with...but at the same time I absolutely HATE this government and everyone who is playing along, justifying it, validating it, supporting it and downplaying it.
I have been hunkering down and trying to find a bit of loft in my mind. Sometimes I get so caught up in the downward spiral of thoughts....other times it is like I am rollerskating around big holes in the road. Currently my garden spots are bringing me joy. I have a community spot and a couple guerilla spots around my complex that I have planted and they are all thriving and bright with blooms and food. I am slowly exploring art making practices that are new and interesting. I am practing yoga multiple times a week and getting closer every class to making my goal of 1000 classes done by the end of the year. Today was class 968. There have been some wins and I am celebrating them.
My life feels like a rollercoaster for sure, but I am still trying to see it through love lenses,
No matter how cheesy that is.
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