Baseline

**Brain dump-trauma** 

 I didn't go to the Bog Witch meeting, I chickened out...or found myself distracted enough to let it slide by. I was embarrassed at myself...and then spent time rationalizing why I didn’t make the effort to go. In the end, I simply made myself dinner, sat and watched something on tv and pondered what happened to my get up and go. 

The Barren is currently overseas for his big business trip. He has been adjusting well, and getting things done and exploring and being pampered by the hotel and his company and coworkers. It is really beautiful to witness and although it was so horrible to watch him leave...I am happy that his experience so far has been a good one. I watch his air-tag move around the country and city and it makes me feel more assured in many ways. I can't say it has totally eliminated my catastrophized scenarios, but it has absolutely muted them enough that I can do other things.

We got a lot of things done and sorted before he flew off, like our will and deep conversations that were overdue. It was so beautifully intimate and healing for us both. We celebrated our 23rd wedding anniversary and went out to a dinner. He was so overwhelmed, that I did all the planning and was the only one to share a card and little token.

Meanwhile I also finished my end of the year art deadline, finished a commission, got accepted into a show in NY city, won an international award, stripped my community garden space, shot portraits of a collector couple of mine and finished my 1000th yoga class.

To say I have pushed myself into high gear is an understatement and I don't always run on high, but I have been having more manic style energy bursts since starting this medication.

The second week The Barren was gone we got rain, like A LOT of rain and when I went to use his car for errands, I noticed the rug was shiny...then on further inspection I found the rug was TOTally SOAKEd and the back passenger foot-well had two inches of standing water in it. No open windows, no open doors...the inside was dry...but the floor was under water! so I spent multiple days getting as much water out as possible between additional rain storms. Yesterday after multiple hours with a shop vacuum, I "tapped out" and drove it to the mechanics for professional help. I had done everything I could and still it wasn’t enough. I contacted the insurance company and filed a claim, and now it is with the professionals.

********

The Barren is home, safe and didn't get sick! MASSIVE WIN for us both.

A funny snafu was that I had kept all the information about his car to myself, as there was nothing he could do from India and so I figured I'd explain when I went to pick him up. The night before he was set to travel home, the mechanics texted him an invoice! He called and said why are they texting me an invoice, is this spam? I explained what happened and we both had a massive laugh about it. He has been considering another car and this might have been Mother Nature’s push to change things up.

Since his return we've hunkered down and have been taking things at a slower pace. He leaves again Sunday for another trip but this time only East and for only a week.

Last weekend we got some results back on my father, and it will require some more appointments, procedures and patience. Upon this information being shared by my parents to other family members, I got a phone call the day after. Actually a conference call with a slight interrogation feeling to it, asking me what I am doing and how this is being addressed and why I wasn't pushing my parents into making choices, and do I trust the doctors etc...

I finished the call, and stood up to find my whole back had a spasm and my left hip was trashed. I have spent the week stretching and heating and taking Tylenol. Thursday was the BIG GALLERY exhibition and I want to be able to stand and share the excitement of the night and my accomplishments.

I ended up at the massage therapist on Wednesday asking her to cast spells, and do any other magic should could do to help me be more comfortable. It is most likely a sciatica episode and as I have NEVER had this happen before I was learning as I moved through it.

She gave me a massage, and did some cupping, reiki, hot stones and preformed some serious magic to my back and hip. Leaving me so so thankful!

I arrived at the big event last night rested, ready and in little, to no discomfort.

I was able to get a couple photos just after entering the event, and then my in-laws arrived. I love that they come to this event. It is always a funny surreal moment, as my mother in law has hearing loss and doesn't read the room, so I have been interrupted in a conversation more than once by her interjecting herself, because she can't hear I am already talking. My new father in law is often decked out in a Santa cap and seasonal shirt and wandering about with a smile taking in the busy gallery scene. Last night was the same, so when The Barren suggested they head out front to get some air, I followed and they rested against the front window, chatting and then....

My father in law suddenly collapsed, I threw my arms out and caught him before he hit the cement. He seemed to have fainted...he recovered and stood up again, and while I was chatting with him...he collapsed again...this time for longer and I caught his crumple again, making sure his head was safe and straightening his legs from below himself. The Barren called 911 and the response was swift. I kneeled on the sidewalk next to him talking to him quietly and convincing him to let a professional make sure he was okay. 

My mother in law just kept saying this has never happened and he was tired. As wealked her to the car, I reasched out and placed a hand on her shoulder, to which she responded "I'm fine", I looked her way and said, sometimes it is just nice to be reminded that you have people around you that care. She didn't really find comfort in my softness, so I let the words float away. We took her to the ER to wait for word. He was being treated for dehydration and low blood pressure and after hearing this my MIL told us to take her home. He had other labs being done, so she would wait for results and his call to pick him up from home where she had a car. She shooed us out and we sat in our car for a moment wondering WTF just happened!?

We went to a restaurant in town to stare at each other, ask each other over and over " you okay"; my hip/thigh pulsing in pain and try to process the evening that just unfolded under a beautiful full moon in front of the gallery on the biggest night of the year.

As our food arrived, MIL texted that he was released and home. As of this morning, although he didn’t sleep well, he was fine and she'd check his blood pressure before they take the bus to retrieve their bikes from last night. 

So that was last night.

Totally normal, totally surreal, absolutely baseline for this year.

in reflection, I am thankful that my body carried me through the night, never once faltering at what I asked from it. Showing me how strong it is and how capable I am.

My cousin was there, helping me by getting me a glass of water, putting hands on my shoulder, while The Barren supported by his mom and answered questions. Her question was "how can I best support you right now?"

Kindness does matter

Rollercoaster of Love

 

I am still here, still above ground.
This post does ramble...
I am a swirl of thoughts feelings and moods in every hour of the day. 

I am still in a guinea pig level of this new medication...but I am cautiously hopeful that things might be working better. I haven't been in an ER since May and I count that as a win! I have locked down my diet even more, even though having an auto immune disease means that the food doesn't really play a part in the inflammation but can contribute to irritations. So I am experimenting even more on taking things from my diet, or massively limiting them.

It is exhausting and makes having tea with a friend VERY challenging. I am there sipping water while they eat or drink beverages I once enjoyed. They try and not make a big deal about it, but I see their looks, wondering if I eat at all...or if I am hungry or...who knows. 
I am trying to make it a practice of being present in a conversation and present with the person who has asked to share time and I choose to share time with as well.

 Honestly though, at times it is very hard to not show how I really feel about how scared I am. How I constantly fear that I might eat something that could send me into a ball of pain. How they might see how scared I am to eat anything I haven't made myself...how hyper cautious I am about everything, how this has massively changed my relationship with food, my body image, my self-esteem and wellbeing.

I am back to assisting with my parents in person. I was invited back to help. I have maintained all the stuff in the background, but was refused when I offered to help take them to appointments or help by dropping off meals. So I started with shuttling my father to his mental health appointment and was asked to sit in on the session. Another therapist saw how we interact with my father and saw how challenging it is. My father is a performer, and so he is 100% on when he is around people other than family; presenting a different version to the outside world than is true making up facts. The therapist sees it thankfully, which is reassuring.

I also took my father to his annual wellness check and it was ordered that he needed a treadmill test. I took him to that, and I think it was a shock to my father that he wasn't able to last more than 2 minutes on the walking pad before his legs gave out. He will be returning to the test, but via IV dyes and stimulants to test his heart. It has been heartbreaking and beautiful to see this side of my father. Beautiful in seeing how vulnerable he is, it is a rare thing to be able to witness this side of our parents, so I hold it as a precious thing.
Each of these visits leaves me spent: emotionally, and I want to comfort myself, I do what I can to refortify myself. When he was in aftercare after his fall, I would eat a bag of harvest snaps on the drive home, screaming in between when tension was so high. Now, I drive in complete silence, no snacks are okay at this time....

It is a rollercoaster

I am rule follower, but I am determined to find a path that will work for me. 
I had two social meetings this past weekend and both left me so tired. I joke that the person who says yes to these is a different person than who shows up. I know it is super important to be social, and connect with people who are not toxic, so I push myself to go. I enjoyed both events but I was pretty quiet afterwards. I have found myself looking at people and wondering what it is like to walk in their life, eat what they eat, socialize like they do. I have found myself so much more serious and introspective. I used to identify with Tigger and now I am a cross between Piglet and Eeyore. 

Has anyone else been feeling like this? A shift in how you are interacting with the world around you?

The Barren has returned from his trip to Canada and he mentioned that the city he had his business in was light and vibrant and happy. 
I said "was it like to not waking up in a pool of existential dread every day?" and although we laughed at it, it was true.

Soapbox moment to the universe: I love where I live, it really is pretty and the kind beautiful people I interact with...but at the same time I absolutely HATE this government and everyone who is playing along, justifying it, validating it, supporting it and downplaying it.

I have been hunkering down and trying to find a bit of loft in my mind. Sometimes I get so caught up in the downward spiral of thoughts....other times it is like I am rollerskating around big holes in the road. Currently my garden spots are bringing me joy. I have a community spot and a couple guerilla spots around my complex that I have planted and they are all thriving and bright with blooms and food. I am slowly exploring art making practices that are new and interesting. I am practing yoga multiple times a week and getting closer every class to making my goal of 1000 classes done by the end of the year. Today was class 968. There have been some wins and I am celebrating them. 

My life feels like a rollercoaster for sure, but I am still trying to see it through love lenses,
No matter how cheesy that is.

ALOT- yep I meant it like that

TW **pregnancy talk towards the end**

I have begun taking HRT (hormone replacement therapy), to me this is another milestone in life...

I went to a second doctor to get a second opinion about an ultrasound result and was given the all clear for treatment. It was a 1 hour wait to see him, also my first male GYN doctor. He came into the room with a resident in tow also a man, and sat down, apologized for the wait and asked why I had come in. I said, get ready for an earful, and then I recounted the history with my uterus & ovaries, why I get yearly pelvic ultrasounds, recent tests and results and my concern about the most recent ultrasound results*. Once I was done, he asked if I was in gynecology, as my descriptions and knowledge was similar to his...I said, well I've had to be my own advocate for a  long time and this is the result.  He said he only had one question, and it was a simple yes or no. My assumption about the current situation was true and he agreed with the prior midwife and the result was that I did not need the procedure the ultrasound tech suggested.

After that was cleared up, I asked if he could recommend a menopause care doctor in town, to which he explained that we could take care of it there....I could get onto HRT, as my breast lump is benign, and I am early into menopause. I told him I had been reading about all the benefits of starting early into menopause and that I was tired of feeling like a zombie. I wasn't sleeping, I was having a hard time focusing, I was more and more concerned about my overall health, my libido had dropped, and although my hot flashes are mild, my night sweats for the last 10 years were getting REALLY old. 

He reassured me of the benefits, and after suggesting that I start a patch. I told him that although that was a great option, I have an allergy to adhesives and so we needed to find another mechanism for delivery. I asked my questions and voiced concerns about my endo, and fibroids and cysts; which he answered and then I left with a prescription and knowledge in what I was choosing.

I sat in the car and felt..........SEEN, HEARD, and scared but EXCITED. A new milestone.

When I picked up the drugs from the pharmacy, I asked the pharmacist what to expect and was given another pep talk and left feeling good about my choices.

My bestie and I have had conversations about HRT and when she went into the doc to have her IUD removed and to ask about HRT the doctor was far from helpful, instead delivered the phrase " it is just something we need to deal with" She is now on the hunt for a doctor that specializes in menopausal care too.

This is not something we should have to "deal with" she is miserable, I am feeling less miserable (even after a week, even if it is psychosomatic at this point) and we deserve better care.

All this after a span of two months of constant stress trying to make something for the newest exhibition that the gallery invited me for. After too many sleepless nights, failed attempts and tears I turned in four options, that I had created with the theme, knowing that I had literally tried everything I could to make the art. Thankfully, and with a kind nod from the universe, I was invited to submit a selected work. So I am in the exhibition. It is a fundraiser, but 50% of the sale goes to me, and the rest is split between the gallery and the garden.  I am quite proud that all the work manifested into a positive reality.

I have been "resting" my creative self since the submission. I had tea with some longtime friends who are painters and preparing for their solo exhibitions. I told them that I was flattened creatively from what seems like a constant sprint. They told me about the post exhibition breakdown, I was still running on my treadmill in an effort to make something else, capture that spark...grab for the stars...be everything and everyone! 

It was reassuring to hear it is real and needed. We are all feeling and looking haggard, wanting to make beautiful, meaningful work while still being everything to everyone and trying to take care of ourselves too...it is alot, a big furry, alot,  just there waiting to see what we step in next.

from Allie Brosh

Does the world seem to be spinning strangely? Is time whipping by like a top?

It is graduation time again, maybe that is why the alot appeared, time markers, reminders of how old my star child is...

Why are all of my yoga classes filled with visibly pregnant women, so so many of them and so many more that are newly pregnant women talking about how newly pregnant they are...

I thought all the dudes got vasectomies' when Roe was overturned...I guess not.

I guess it is another alot.

*my ultrasound result said that I should get an endometrial biopsy, as my endometrium is too thick for a woman my age. I got two opinions from two doctors who looked at my past ultrasound results and agreed it was not needed. Plus, with my closed cervix, I would require a D&C just to access my uterus...

Birthday day

 

I made myself a cake and took it to my parents place the night before my birthday.

The four of us shared slices and I left most of it with them, so they could continue to enjoy it for the next couple days. It was a nice quiet time, but it highlighted my parents changes in cognition and socialization. I focused on being present as best I could, but when we left I was clearly overwhelmed and overstimulated from the visit. The following day The Barren and I went to a museum and ate some ramen...then we came home. He is still fighting a cold and was tired, so I made myself birthday tacos, got in my PJs and watched Indian Matchmaker on Netflix while he played video games.

I think it has become clear that birthdays are not going to be big deals anymore. For The Barrens birthday I planned a whole week of things he loved...we went on an overnight and to his favorite breweries and places. For my birthday, it felt like he kinda got overwhelmed with work and chose to not do anything. So that was that.

Part of me wants to let it ride, another part of me felt disappointed.

If I am going to be honest, and it is my blog, so I can say that.

I felt kind of forgotten, and it didn't feel celebratory.

Lesson: no one is going to celebrate your birthday like you celebrate other people

The art exhibition ended the day before my birthday and was a personal success in many ways, there were a lot of bumps with it as well, and I learned a lot about the experimental process along the way. Four of the six pieces exhibited sold and that is a big personal record for me.

That exhibition has folded over into the next opportunity that I am currently working on...and stressing about.

I am not sleeping well, and I need cannabis gummies most nights to help me stay asleep, but I am eating clean, and exercising and taking my vitamins. I am being a responsible adult, and that seems to be taking more and more effort.

The number on the cake is not phasing me, at least not yet...

so that is a plus 😀

I made a list of things I wanted to do for my bday:

Take annual nude selfie ✔

buy myself flowers ✔

make a yummy cake ✔**

enjoy a cuppa tea and a sweet ✔

paint nails

shoot some film ✔

wear something that makes me feel good about myself ✔

laugh ✔

I have also decided to break form this year and attend a baby shower. I have not gone to any in a looooooooooonnnng time, but a darling woman who I used to nanny for is expecting and has invited me to attend, and I without much thought, said yes. I was shocked at how easy it was to plan to go. I guess I am growing in many ways.

So here is to 53, a total shock, a real leap of growth, a change from the norm...

it was my birthday Tuesday and I survived. 

**cake recipe**

Krampus

 

In order to make my latest adventure to the ER more manageable and less scary...I thought about what this flare might have looked like, what kind of personality did it have and I came up with this.

Big Flamboyance

I was up at 1:30am awoken with stomach tightening, that turned into a 12 hour saga of regular contractions and wave of nausea making all fuel leave my body, and leave me unable to form thoughts, drink water or even cry. That alone wouldn't get me to the ER, it was the pain in my lower abdomen that got me there fearing it was my appendix. Thinking the worse of the worst scenarios. 

Well, lucky for me, there was a lonnnnnnnnng wait to get a room in the ER. Our local hospital only allows the patients in the ER waiting room, having their companions wait in a separate section of the hospital until a room is assigned. The Barren was near but not with me while we waited for 3 hours to get a room. During that time, the ER filled with sick babies, lots of sick babies that sounded like seals barking. People having seizures and others puddled moaning in the chairs. I meanwhile was seating curled into a in fetal ball trying to not think about how much I was feeling past trauma, how I just wanted to go home, hold The Barren's hand and how silly I felt being there. (reduce yourself to make space for others much?) 

The Barren meanwhile was in the perfect spot to see all the new parents leaving the hospital with their babies in tow. So he was having just as much fun.

I think it was hour two, when I remembered I was just learning a healing mantra in my meditation class. I started trying to remember the words, I forgot some, then remembered them, then jostled the order, but I figured if I got any of them wrong it was still a good thing...I was focusing my breathing and mind on something that wasn't my pain, fear, or embarrassment.

Om tare tuttare ture mama ayru punye janana pushtim kuru soha

White Tara healing mantra

*****

At the three hour mark, I was called into a room and The Barren was ushered in separately. I met the doctor for a hot second, he determined that based off my blood and urine, it was not a blockage, rip or my appendix. I was given a cup of water to see if I could drink water again, anti-nausea drugs and IV fluids. The nurse, who was a totally cool dude with pink on the ends of his long hair, said that he believed what I was experiencing was peristalsis and because I was slightly dehydrated, I most likely could feel it more than normal. Then he unloaded some other cool facts like, the smell and taste I experience when the line is flushed before I get my infusions is actually genetic, and not everyone has that ability, and it is actually the blood flowing through my olfactory...anyways it was pretty cool. I got a call from my GI doctor right after the IV of fluids was placed and he called in a prescription for more anti nausea medication. (I was super thankful he was a rockstar like that).....this new diagnosis has a steep learning curve, and what I was experiencing was a flare. There is really no known causes for them, and it takes practice to learn the cues of one coming. So ideally I'll be fortified knowing mine tend to last for 24 hours and then subside, but can hurt like a mother when they are here.

When the IV was done, I felt re-booted and went home to shower and eat two tablespoons of sweet potato and go to bed. 

As I was eating said sweet potato, I asked what the date was and it was the 5th! The 5th of December....and I realized just then, that I had been battling the KRAMPUS....and I won.

Forked

 

I'm exhausted

I have made it to the other side of the constant testing, I think.

The harrowing MRI turned out fine, nothing bad found, no new information.

So for the record, these MRI's are crappy ways to spend $100 at a time.

anyways, that part seems to be done.

I had my annual check in with my GP physician yesterday, I was assigned a new one.

When she entered the room she had a long list of notes on me as she had reviewed my record...kind of.

I spent most of the appointment watching her chart my current situation.

She asked a couple questions, I didn't have to have a pelvic because another department does those now and when she started telling me about my dense breasts, I told her I pay outta pocket for those ultrasounds too. I was overwhelmed...

I do know that at one point I said that "this was easier than my decade of infertility"

 Between you and me, I was still quite overwhelmed and feeling traumatized.

She stopped everything, looked at me, dead in the eyes and said:

Are you feeling underwater, do you feel like medication would help?

I was sort of taken aback, I think mostly by how close she was to my face, and the unblinking eye contact....but I said I don't think I am there yet.

She said things like: manage chronic illness and you are a menopausal woman 

If those weren't enough lovely gems from the visit she went on to tell me that she believes I have a secondary disease with my UC/Crohn's 

Hyperthyroidism.

She scheduled me for a bone density exam, I got a breast exam and then it was done.

I got dressed, got three shots and went to my car to cry, again!

I am spun...I am in a land I know, but all my markers are not familiar to me.

I go to all my appointments alone...I am not sure if a parent, lover or friend would have made this any better...but I know I am not okay.

In fact:

Stick a fork in me, I'm done.

So here I am a leftover, emotional mess.

Not knowing which direction to turn first.

I did have a good start to the week. 

I am not going to leave this post without sharing good things too.

I met with a curator for the yearly exhibition I am thankful for being invited to for the last 13 years. 

I was juried into it once again, and over the moon about that.

If that wasn't enough, the best part was that I got to show some work in person to the gallery and I will be in another exhibition in March! 

I am scrambling to make a lot more work between now and then.

That was a good thing.

So in between battling some serious self doubt, creative blocks and just straight up sadness I made something of interest. Something unique.

Now, if I can only stop making new diseases for my body!

We close our eyes

A Woman is Supporting Another Woman, Who has fainted upon Reading a Letter (1807)

Christoffer Wilhelm Eckersberg (Danish, 1783 – 1853)

 I start my infusions tomorrow.

Last Wednesday I got the call that all was set into motion. Since that call, the date has been changed the location has been changed and I have learned the name of my nurse. Plus made appointments for several other appointments and tests that need to be completed.

I have also rushed a friend to the ER 
and dealt with many stressful situations that comprise a life.

I have shared the information with my bestie, my brother, my meditation teacher, my massage therapist (boy I sound quite affluent) but not my parents.

I am having concerns with sharing it with them until after my first session so I can answer all the abstract questions my mother will ask and that way I can still feel a micron of control until then. Also my father is having some memory issues and the last thing I need is a daily call asking in a childlike voice " how I am feeling" when all I want to is to feel strong and powerful and capable.

I told my bestie that I don't want:

" the last thing I want is to be a willowy Victorian woman 
wasting away in the corner who everyone treats with caution"

I am now trying to get used to the day being peppered with medical calls...all of which seem to send a wave of chaos and panic through me and my instinctual reaction is to run....

leave the house, do anything else than what I have to do.

I have managed to make a couple things, and although it feels like pulling taffy, and that it is a steep, steep incline; I am seriously determined to keep on keeping on. 

I have to see the lifestyle I want, instead of the life that someone else thinks I should have.

I sound like a verbal vision board...

I clearly am doing anything and everything in my power to normalize this WHOLE experience.

The Barren is coming with me to the first infusion, because after asking, the nurse said he could come to the first one. 

I have also started a visual for my mantras:

I am a boat on the water, bobbing on the surface.

No water can get into me or sink me

 I can ride out each wave with curiosity and calm.

This is a whole new world...

I am really just guessing at shit now

Gone

 Let me start with this....

FUUUUUUUUUUUUCCCCCCCCCCCCCKKKKKKK

I had a CT scan scheduled for 9am on Friday morning, I had drunk a container of barium the night before and was staying away from social media to try and calm my growing list of fears, as I drank the second container.

I had been in my in doctors office on Thursday morning with The Barren 

because I was on the floor, folded over in pain. 

I had STAT bloodwork done, a STAT ultrasound done 

because they didn't know what was causing the pain. 

Things I feared were causing the pain

impending DEATH

ectopic pregnancy (even though I haven't bled since December of 2020)

infertility trauma has trained me well

bleeding ulcer

ruptured appendix

At the hospital, I was trying to calm myself while I waited for CT tech and I heard the receptionist say

 " did you hear? they overturned Roe V Wade"

(she mentioned it quite casually, like, hey I brought a sandwich from home for lunch today)

My mind begun to spin, I went totally numb.

As I laid on the CT bed, and the nurse tried MULTIPLE times to feed an IV into my arm I thought, what the hell is happening right now?!

The scan went on and I was syrup sweet to everyone because they have all lived through years of trauma treating stupid non mask wearing people.

I got dressed, took a selfie in the bathroom and made it back to my car to collapse into a puddle of tears.

I was too scared to move really...I felt lost under water and unable to see where the bubbles were going.

I texted The Barren that the test was done, and I was headed home.

There was road work and delays and as I sat in waiting lines, I screamed.

Screamed deep, guttural, primal screams.

I wanted the men in the work tractors outside my car to hear my rage

I wanted birds to fly off course

I wanted to be free 

I was terrified for the women suddenly stuck in line, suddenly without options suddenly trapped. I screamed in hopes to blast open walls, I screamed and screamed and screamed to empty my lungs of all air, I screamed until I thought I would pass out. 

Then the line of cars began to move and I sat silent in my car the remainder of the trip  like I had pulled all the air out of the space... until parking at home.

I had lost my voice; literally and physically.

My arm hurt, my throat hurt, I was scared to eat, I was scared to move.

I drank a glass of water and then I don't remember what I did....

I had visions of people shooting the justices (there is a new open carry law) in restaurants out of grief,  because their partners died unable to get an abortion for their ectopic pregnancy.

I went DARK DARK DARK and that scared me.

I got text messages from a couple friends, I sent a couple text messages telling friends I loved them.

I skipped out on a night out watching The Barren play music, and instead stayed home and cried.

The result of this has left the men in my life confused and feeling useless. I love them but I don't think they understand the depth this radiates in my sense of self.

I live in a state that has protected the right to abortions and is aiming to add it to our constitution:

"On Friday, Mr. Newsom signed a bill to shield California abortion providers from liability or prosecution related to out-of-state bans on abortions. He also announced an agreement with Gov. Kate Brown of Oregon and Gov. Jay Inslee of Washington to establish a West Coast abortion firewall that would protect providers and patients from the legal reach of other states.

Pending bills would authorize experienced nurse practitioners to perform first-trimester abortions without a physician’s supervision and create a state-administered fund to help underwrite travel expenses for the many women from abortion-ban states expected to come to California for an abortion."

THIS DOES NOT CHANGE MY RAGE

I made donations to abortion aid funds on Saturday and plan to sell some recent photographs as limited editions to raise more funds for Abortion help for people nationwide.

I did a series of self-portraits that I posted on social media and disturbed some friends with their rawness, I was not afraid to be raw, I feel stripped of something...it is a feeling that I can not really put words around, although I am trying here.

I seem to be explaining myself to a lot of men in my life, and hand holding to help them understand why I am acting the way I am. What I am doing is frustrating and I am trying to keep myself from lashing out at the wrong people for the right reasons. 

Has my place in society and my worth changed or shifted now...I know it has for many others over these years and it is painfully punctuated for women of color and trans people. 

What or how are you coping? The WHOLE world sees us and how super fucked up this country is.

I can't form any more thoughts right now...

I wish you strength for your conversations and peace for your quiet moments

Breathe from your chest

 I did a grown up thing and got my colonoscopy done. It was alright and I made sure to tell EVERYONE about my stage 4 endo and where it was attached to my bowel. 

The doctor took biopsies and removed a couple polyps and said I can't take any NSAID's for two weeks. I've only had one optical migraine and I breathed my way through it.

I am thrilled to be on this side of the exam. 

It was taking up soooooooooo much space in my head and conscience. 

When checking in the nurse noticed I was quiet and still and she asked if it was my first time, after saying yes...she asked what I was most worried about...and I told her I had white coat, she asked from what...and I told her a decade of infertility. 

HER WHOLE BODY LANGUAGE changed and she was soothing and said she was so very sorry and placed my IV on the first try...and it didn't even bruise!!

When it was my turn, the doctor was nice, the nurse that gave me the drugs was kind and I asked if she would hold my hand, and she did until she had to administer the drugs...I was in a twilight sleep and was told to breathe from my chest, it made me think of yoga and I did as suggested. I have spots of memories of the procedure and then I was done. I went back to the bay, was helped to get dressed, walked out to The Barren and taken home, where the Barren had made me some vegan scrambled egg and rice and a glass of water.

Then I went to bed to sleep off the drugs and fart.

They found things in my colon. Fucking nothing surprises me anymore. It was clarified that nothing was cancer and no endo had penetrated the colon wall but, there is a possible immune disease. They won't really know for sure until I do some blood work and stool samples...whatever.

I seriously don't have enough energy to be concerned or worried about stuff. This last year and a half have stripped me of so much...clearly this is another thing.

I go in for another in 7 years or something like that. In the meantime, I have a new doctor trying to figure out my unique body.

On the flip side, we finally brought the cats home. 

We spent a week with them before telling anyone we brought them home. It made a good difference. They have all their shots, are neutered and spayed and are learning how to be housecats. 

Here are the three that now live with us:

Zahra- the kitty that started it all 💗

She is about a year old

Umber- this boy loves his mommy and naps

12weeks old

Kugel- the littlest of the litter and Parkour expert 

12 weeks old

The energy is totally different and as much as they are getting used to being housecats, we are re-learning what it is like to have young cats again.

It has been well over a decade since that was the case.

They change everyday, and hide less and are curious about more.

Soon we hope one will want to be a lap cat, nap buddy, and snuggle.

I can feel my heartbreak from the loss of our boys, becoming less, but their familiar natures are hard to unlearn. Having young cats and not old man cats, where you are used to having something wrong weekly, is an adjustment.

My breathing practice has helped stay calm when I hear a bang from another room, breathing has helped keep my concerns at bay...and breathing has helped me sit for an hour just to move a string back and forth so that I can pet them a little longer each time.

Breathing helps.

My breath is my strength

Normal heartbreak

This is my youngest niece.

She is in first grade and this is her new normal.

I made her mask and never imagined I'd see a photo of her like this.

This is her back yard...I am thankful she has safer outdoor space but this just breaks my heart.

Her teachers and principal did one of those drive through the neighborhood and waving to the kiddos that are all now homeschooling. The teachers miss their students and this is their way to support them and show their love. What a crazy new way of seeing the world.

I have been distracted by making masks and mailing them to loved ones far and wide.

It is replacing my normal birthday karma*, and I am happy to do it and it has been a sense of helping in this whole crazy. I have made close to 80, but that number is about to go up as I am making a new set this weekend.

I am using all my old hoarded fabric from when I use to make kids clothes.

Talk about a cathartic turn.

I am watching these beautiful fabrics shrink as I send every new package out to full families.

* I give gifts to loved ones for my birthday every year, recently it has been a piece of artwork but this year it is masks.

The Barren and I are getting along just fine. 

I am thankful for that and I think it really highlights how we can really make this work for another 150 years together.

My birthday is the 25th and I have decided to make a cupcakes, drive the 40+ miles to my parents home and sit across the street and eat our annual birthday cake for breakfast together, apart.

That is the grand plan, that is what 50 will look like for me.

The Barren has agreed to come with and participate in the cake eating celebration.

I continue to listen to the science and plan on this taking longer than expected and getting scarier.

I continue to be thankful that my family and friends are healthy and following rules.

I am thankful for a lot of this upside down version of life.

I am just taking it one step atta time.

I fell twice in less that two weeks here at home; two good bruised up falls.

 As I move slowly and watch my body heal and ache, 

I am thankful that I am able to heal and have the space to do it slowly.

One was a slip on the tile of the bathroom (the same tile we've had for 20+ years) 

and the second was a trip over my work chair that had me land on my ass.

Twin bruises below my butt and a skipped down the rib-cage and stab into my side bruise,

 thanks to a framed artwork.

Thankful I didn't land on the cat who was right beside me !

Also thankful for the extra padding on my body...

as I was wailing in pain, I started laughing and confused The Barren.

He asked if I was mentally alright...

Through laughter I said, " My fat saved me!" 

So yours truly is shaking off this final year of her forties and in a deep metamorphosis into a 

MOTHER FUCKING BUTTERFLY

in time for my birthday!

Tiggered

So I am on "summer vacation" which looks like

 a week of not commuting and me trying REALLY HARD 

to focus on all the art things that have fallen to the wayside.

Updating websites and social media and professional sites.

I am also looking for new opportunities and waiting on word from other 

submitted competitions.

I am going to class as often as I can and trying to balance it with having "fun"

I am alone for this week, meaning The Barren has next week off for what we loving call

"music camp"- which is an event that happens annually for him. Where he takes a week off to just play music both intimately with a friend and perform open mic nights.

During that week, I rarely see him and so it is like having a roommate who leaves dirty socks and dishes behind but never seems to be here.

This year, he is taking a second week, so that should be stranger.

When I told him that I had this week off, he said he'd support me by making sure to bring home or make food so I didn't have to think about it.

but...

work got super stressful for him and I am doing what I normally do

laundry

dishes

cleaning the cat box

paying bills

making my own meals and trying to work in the studio

**sigh**

last night we had a blow out because, he came home asking what I wanted for dinner and I told him after a day of reading submission requirements and making a newsletter my brain was blown...

this lead to an argument where neither of us wanted to Adult and make choices for food and so he made himself dinner and left to practice music

I made myself dinner and watched a movie alone and cried.

My yoga classes are good and I feel stronger...

but the owner of the studio is suffering from infertility and is being very open about it on social media and I think I am being a little triggered by it.

ok, maybe a lot triggered.

I feel so deeply for the struggle and the path that she is taking...

first surgery for endo and now they have several failed IUI cycles and declared today that next month they start IVF.

I wished her the best and am trying to not focus on it and just do my practice.

I have also found myself choosing to not attend her classes as I would only think about her struggle instead of my own journey.

**sigh**

I go my period a couple of weekends ago...

52days late.

I had two train crash days where I was bleeding hard and heavy 

and then it was gone again.

I am thankful and now know what it might be like next time.

strange indeed

The day before my period I fainted before yoga class...

I got up before class started to pee, which I do a lot more than I'd like...but normal stuff

and I got light headed, also normal...you know how your vision is dimmed because your blood pressure is trying to regulate...well it just came at my wave after wave and the world started to tilt and I was thinking " what the hell is happening?!" and then I was awake. 

I have NEVER done that and I fell into the yoga mat storage

I came to fast and because that has never happened to me before 

I just went back into class and did class.

No one saw me faint, and aside from some gnarly bruises it has not happened again.

Although, I am taking precautions when getting up from the floor and in transitions.

So that is my summer so far....

oh and I delivered a HUGE project for a new hotel...

that had been in the making for over a year.

and it will knock down a lot of my credit card debt...

having an inconsistent income has some downfalls.

I can't imagine doing anything else...but it will be nice to have less personal debt

and maybe be able to start putting some money into my IRA again...

even if it is just $20 a month.

I think I'm gonna gather coins from the laundry and maybe buy myself an ice cream

it is summer after all!

Changes

"Strange fascinations fascinate me Ah, changes are takin'The pace I'm goin' through"

David Bowie-Changes

I am feeling a little bit like a caterpillar in her cocoon.

I am not sure what to expect, but things are changing.

My body is changing, I am only having small "oh no" moments when I think I have forgotten to take my pill...they are coming farther and farther apart these days.

I have been doing yoga, taking my vitamins, working and trying to come to terms with my body image. That last part seems to be rearing an ugly predictable head and I am trying to "whack a mole" it away.

Thinking too much about what I look like, what I am eating, looking closely at every hair and line and fold wondering if I can make them go away...or am I really just falling in love with it and fighting that. Like finding something wrong in a potential partner, but only looking for flaws to sabotage the relationship.

I want to be in love with my amazing strong body...

My mindset is shifting too...

We were at farmers market the other day and a toddler was having a fit because a sibling was able to push a  cart or something, and I was able to smile as we walked past it. The Barren watched the little person throw themselves onto the ground and smiled at the determination; and our ability to walk past it.

Normally I would stop and watch it unfold see how the parent dealt with it and take mental notes for myself in a similar situation. 

I don't need to.

I don't nee that knowledge.

I seemed at peace with that, and The Barren seemed calm too.

We are growing, maybe even aging out of the infertility mindset.

We were suppose to host our 15yr old niece this weekend, but she is super behind on her schoolwork and her parents were tired of enforcing her doing her work...but I wasn't and said that she could not come over until she caught up. She has been wishy washy about school work and her mother is as well, while my brother is strict about it for two weeks then folds out of exhaustion from trying to enforce something that my niece could clearly not give two shits about. So I just stepped in and said, she had another week, to catch up.

I felt like, she needs to understand that this is important, it is her first year of high school.

I guess I was being a parent, in an Auntie way.

I am pretty sure things won't change much in the next week...

but I wanted to put my two cents in, I guess.

School was super important to me, and I equated knowledge with freedom. 

I was teased/bullied for being smart in elementary school, so much so, the teachers had a meeting with the class when I wasn't there, which made it worse and so I pulled back and stopped trying. It took years to mentally recoup myself and by the end of high school, I was pushing forward and making great efforts-and college was another hill but I took every class the community college offered and found myself quite smart...

much to the surprise to many around me, who had kept the image of apathetic me in mind.

I love learning and school.

My brother didn't nor did his wife.

so there is that.

The Barren and I have plans for her next weekend, some live local music, bookstores and space to talk or simply draw.

 We look forward to learning more about her, if she allows us.

We are done being a parent and ready to simple be allies or influencers.

Aligned

It is gonna be quite a week!

Today my niece (15yrs old) is having a 10cm cyst **removed from her left ovary

The same surgery I had

the same ovary

27years earlier

The doctor assured her parents that she would also look for endo

She has no questions, but like many teens is only concerned about needles.

She is set to have the operation about 3 hours from now.

I gave my brother tips that helped me make the experience more comfortable....

most of my suggestions have fallen outside the wall he and my sister in law have constructed.

My father asked me a couple questions through gritted teeth the night he and my mother found out...

He is angry about it.

I think it is safe to say we all are concerned 

I am hopeful that she will be better after the surgery than her current state.

The cyst can be seen bulging from her tummy when she lays down.

I am thankful that they are checking for endo 

and that ideally will find nothing or able to remove what is found.

I am at the studio and home today. 

I was told there was no reason for me to be there today.

(I'll be at the door to the wall, with pear juice, some magazines and GasX in hand tomorrow)

*********************

The Barren is traveling for work this week

He is thousands of miles away.

I didn't get the morning call and TOTALLY had a massive panic attack

He finally called a half hour later, and when I heard his voice I tumbled into a puddle

unable to hide my concern and fears.

He apologized repeatedly 

Why the concern? He had a coworker/friend die on a work trip 

So since then I have been pretty terrified 

He travels again the first week of May

**********************

I am due to get my first real period soon...I think today but who knows?!

It feels like it is readying herself....but I don't really know

so the wait begins

**************************

The Barren's Aunt is donating a kidney today

I found out via social media...

*****************

My birthday is Thursday

I have no plans, no parties, other than take a yoga class in the afternoon

I had a sweet treat time with The Barren this past weekend...

Put on a pretty dress, had a fancy drink and got some much needed time with him 

It is a strangely aligned week.

I am cleaning and dumping old paperwork out of corners of the house to keep myself busy.

The world feels different

**The cyst was 14cm and consisted of three pieces all surrounding her ovary. One included hair, the other two had thick liquid in them. The surgery lasted 2.5hours and in the removal she lost a portion of her left ovary. The doctor assured her parents that the portion that remains has eggs/follicles and her tube is healthy...the doctor was glad she got her in so quickly as this was a ticking bomb.

Mind Games

So this not bleeding thing is pretty awesome...

I am comfortable, and feeling like me...whatever that means, I am still learning.

I actually laughed out loud when I read this

Last Friday I went to class and as I entered the studio I had the optics appear before a migraine..

I ran out to the car and took my aspirin and then returned to the studio to take class.

normally my optics don't mean anything except slow down...so I did

the optical stuff dissipated (thanks aspirin) and I felt better, I had opened my vessels and I was putting super oxygenated blood into my brain...

well about half way through class the pain started...I slowed down and did as much as I could.

At the end of class I sat for a little bit thinking maybe it was too hot, or my blood pressure needed to regulate. It was pounding as I walked to the car...and I was feeling quite un-okay.

I had to pick up something from the pharmacy and was thankful that they had a drive thru window, as I smelt REALLY strong and could not imagine masking the pain I was experiencing.

I made it home, ate some pre-made soup and fell into bed.

The cat kept me company:

I was down for the rest of the day, moaning and waiting to be able to take a migraine pill

it was areal adulting moment and I figured as the hormones regulate to my own thing...I might be flattened every once in a while.

The next day I sliced my thumb open while framing artwork and I got to the see The Barren almost pass out from seeing the blood flow outta my finger and into the sink and neighboring counters.

Meanwhile I was looking to see how many fingers were indeed involved in the slip.

It was just my thumb, on my dominate hand.

It didn't hurt and I was strangely calm...

it stopped bleeding and I got to reassure The Barren that it was not infected...

I kept telling him that my body heals itself.

It is amazingly reliable that way.

I spent Sunday on the couch, hiding from additional possible things I could hurt myself on.

Other than that...I am trying to stay busy.

Take yoga as often as possible

eat well

take my vitamins

get sleep

and try and find time with my hubby

We seem to be ships passing-

our schedules are not aligning much and he has back to back travel for business coming up starting next week. So the solo thing is something I need to get cozy with.

We tell each other how much we miss each other...but time never seems to synchronize.

So, still waiting for that big sexual peak thing to snap into place, 

while we are both in the room.

This latest transition is very mortal

I am reminded a lot of my impermanence

I am not sure if it is because I am more aware of it now 

or if I had missed the signs all these years...

Continue to be kind to yourself