Carried Away

warning: heavy post

 I am learning more about the human brain and grief than I had ever imagined.

My most recent adventures have taken me down roads of cognitive medical reading, personal wondering and expansively painful learning.

My father had decided he was going to have the surgery after our visit to the neurologist. The doctor pretty much said, aside from fear of the surgery (which is normal) why NOT have it. At that " suggestion" my father said, fuck it schedule the surgery. 

I was there asking for alternatives and finding out that his long term headaches were probably the start of this who event. After ping pong visits between the neurologist and the neurosurgeon it was shown on MRI scans that my father actually has a lot of atrophy of his brain and so the surgery was not the safest option or the preferred route from the surgeon. So back to where we started and watching his cognitive decline and body function loss up close.

(below text written in stream of consciousness)

I have just finished two of the most challenging weeks with them. My father had a yearly check up and the doctor seemed fine with all he was doing; which seemed like a cursory look at things but I was exhausted and my father had been coughing all day. Doctor listened to his chest and said it was clear. It ended up keeping my mother up all night and she was already running on almost no sleep. He then states when we return that he "isn't feeling well" I say if things are not better soon we are going to a walk in clinic. The weekend that followed was all coughing and my brother took him on Monday, because as an immune compromised person he wanted to make sure I was safer until we knew more and it was bronchitis possibly the start of pneumonia. By Wednesday my mother on a call with me coughed and I returned to town to take her to a clinic that confirmed she had pneumonia, and Friday I returned because she was worse and then we went to the ER because her symptoms pointed to C-diff and she hadn't eaten since Wednesday after the first appointment and my father had decided to stop eating and then the ER, who said she had a viral pneumonia and then we were there again Saturday to watch them eat, because now neither of them was and then Monday and Tuesday my brother and wife took food to them and I spent all day calling non-profits and doctors and learning about Medi-Cal and being overwhelmed with tasks and calls and then Wednesday took my mother to a psychiatrist to see if she could start her SSRI's again because she stopped ALL her meds cold turkey a couple months ago including her zoloft, which might add to why every interaction with her was her crying. Sitting in the office for her meeting was strange, but even stranger was her new dementia like memory looping of phrases and memories was heartbreaking. The doctor said with her level of depression it was common and should start clearing when her new medicines start working. Then Thursday meeting with the exterminator for their home who said we need to replace the dilapidated garage door because they can't help if there is a literal open door for rodents. (it was not a surprise or a shock) So my brother is taking charge of that. A physical therapist who only came for 10min that day and sent me into a mental rage and then finding that a very important document for my father had expired and that stops the process of the other big project. So yesterday was all day of online renewal forms and finally signing documents for in home help that we can pay for out of pocket and ideally that help, will start Tuesday. More meetings Monday and doctors appointments Tuesday and managing schedules and paperwork and answering phone calls and texts from family who want to know all the details....and then ask if I tried x, y, or Z. In the end my mother told me I was really good at the "handholding" I was doing for them and I should make it my job. I said " I'd really just like to be an artist"  and she said " you can be creative with it, the caregiving....That was the javelin into my heart...and I kept a poker face and waited to get into the car and drive away before crying. The diapers, the food fussing, the medications, the water reminders, the doctors offices, the questions and suggestions and assumptions....remind me of my infertility days. The casual suggestions about adoptions and sex positions and the  'if you just" or "have you tried" and the banger "have you considered"

I only made yoga once last week, I am currently sitting in my workspace trying to catch up on normal things, like laundry and bills, but I have gotten 4 calls from the parents already and I am still trying to imagine my work. 

Trying to see it in my minds eye...imagine making it, breathing deeply and feeling content in the process. Telling myself that life isn't passing me by and my work still matters and I still need to make it because although all this time has been stolen from me and my partnership....it really does matter and things will change soon and I can use all this energy to make my own art.

Winter

The month is rolling by quickly...and I am thankful that I have survived the thanksgiving holiday event.

The Barren and I went on a road-trip for a week to visit family. We started what we knew was going to be a challenging week with an over night at my besties. They fortified us with laughter and smiles to carry in our pocket before heading into the eye of the storm. That was a highlight for me. 

The motivation for me was to focus and make sure The Barren got time with his father, even though the reason we were gathering was for my BIL who has stage four cancer and is currently on drug trials and under medical care.

The setting was not ideal, you see, he, his wife and their teenagers (nephews) are also some of the many people who voted for the orange IDIOT and is proud about it. He had stated in the past that he was never offended by the confederate flag, or the nazi symbols. Feels women are here to serve men, and that his god is the only god.

So as you can image I was quite conflicted about my feelings; wanting to be compassionate as they are living in a cancer world but also red hot rage at what they believe and live in. I was fearful and upset about being asked to sit at a table with him and his wife and teenage son. I used to have actual nightmares as a teen about nazis breaking down my door and the idea of sitting at a table with them was A LOT to try and digest. So in my typical lemons to lemonade thinking...I turned love towards my hubby as I knew he wanted to see his father and Aunt, as he fears that this might be one of the last times to visit with them. We made a point to try and spend as much time as possible with them. Hubby was able to play music with him and simply take in all that his father is. 

It was punctuated with some bittersweet reminders, as our MIL is quite a handful of needs and is almost completely overtaken with Autism, ADHD and mental health struggles. She is chronically late and was towing two dogs with her. One of which could barely use its back legs and was often left for hours and hours alone. Making for accidents in the rental house...and heartbreak to witness. It took her three hours to pick a wine from Trader Joes while the rest of us sat waiting for her to arrive to a pre-thanksgiving evening. Finally canceling dinner together.

When we all gathered for the meal, my MIL was already multiple hours late, I was so anxious, I found myself masking like a champ! My current food situations made this food centric "holiday" even more challenging for me. Everyone was asking questions and I wanted to evaporate. At one point I walked up to my SIL and whispered in her ear to "please stop asking about what I can or can't eat, the constant questions make me very anxious about food" She stopped and I was left alone by her for the most part.

I manifested a bit of Shosanna from Inglourious Basterds and hid behind my camera and took photos and did not make eye contact with my BIL. When asked questions directly, I avoided eye contact. 

I was a swirl of emotions and feelings and by the end of the night, I got in the car with my hubby and shut down completely. We left before dawn the next morning, spending the first few hours in silence. Not completely sure how we felt about anything. When I got home I cried and told The Barren that I wasn't brave enough. I should have stood on the table and condemned their racist, sexist actions. I was a fool to my ancestors and was just really disappointed in myself.

I haven't spoken to my SIL or BIL since thanksgiving night and don't expect to hear anything from them unless they want something. Which is how they normally are. 

I have been out of sorts since, but have been actively working on getting back into my stream.

Do you ever feel a whole body shift? Like you need to purge everything you have been doing to start anew? Maybe that is what I am feeling...

Maybe I am about to wrap myself up and become something else.

I got a space at a community garden, I am spending time there, sticking my fingers into the dirt and feeling the wetness on my skin. I am overwhelmed by the number of shifts that have taken place this year. My parents, my health, The Barrens stress, the responsibilities of home and animal companions, trying to make time for time with other people and myself....

I think I need a nap, maybe I am a bear and need to hibernate and awake in the spring hungry and hopeful again.

Still

 It took the Barren 16 days to clear the virus....16 days of sleeping on a couch for me, 16 days of fretting and worrying, but we got through it and he even had a consult with a doctor about removing his gall bladder and in the end decided to keep it for now.

Meanwhile my parents have refused any and all assistance my brother or I offer to them directly. I say this because I still book and confirm all my fathers appointments "behind the scenes", so he is prepared for each appointment. He has started seeing a psychologist,  and my mother has pinned floppy hopes that it will "help him". I have become far more jaded and based on what he has refused to do ANY homework/self-work for all his occupational, speech and physical therapies...I would be VERY surprised if he creates the opportunity for himself to grow...but I would love to be surprised.

My relationship with my parents has been altered in a significant way. In fact I described it to The Barren the other day like this: it is like I have lost both my parents, but they are still here and I am left watching it all disappear each day in a new way. Like an extended period of grief and mourning. It breaks my heart in new and different ways every time I call them. 

Yesterday I acted impulsively and decided to drive the 40 minutes to their place and offer a CPAP pillow I had sourced for my father thinking that it might make it more comfortable for him and then he would wear his CPAP longer than just a couple hours a night. I hadn't seen my parents in well over a month and when I arrived and knocked on the door; it swung open with great force and my father was standing there, without a cane or walker hunched over and glaring at me. Then said hello, looked at the pillow in my hand and said what brings you here? I said I had gotten this for you to try...I was..., before I could even finish my short sentence he responded...NO, DON'T NEED IT. (he said these words in a short, loud and stern way) I started to show him the features of the pillow and again he said "no, I will not use it. Thanks though" and that was that. Like we didn't say much else after that.

My mother, peeped around the corner, said it looked like a comfortable pillow and that she was sorry he turned it down. I was interrupting their dinner that my father was microwaving. I had not even entered the house yet... I was standing on the front porch still...

I left them to their dinner and got back into my car....I felt so much. I felt so...I was glad I had invested so much in my fathers recovery, but it was like a neon sign that I was far more invested in his recovery than anyone else. That is where I am trying to heal from right now.

When The Barren asked how the visit went I said "Abruptly" 

I am struggling to get past all the trauma of the past three months. It has left me numb and uninspired and fumbling to find myself again. I have developed a new side effect, I am not sure if it is from the new infusion medication or stress but I am now learning about Burning Mouth Syndrome. 

I feel like I am falling apart; all my seams have come undone and I do my best daily to wake up and focus on anything other than everything else. My therapist use to refer to it as the " chop wood carry water" of life. Picking yourself up and doing tasks in an effort to keep moving and giving yourself time to do everything else that needs to be done so you have space to work on yourself and your thoughts.

The Barren is at his annual music week away for the summer and is having an amazing time. I am so excited he has this time. He is with his bestie and they are learning all sorts of new techniques and music theory from the best of the best. I literally could not be happier or more proud of him for taking this time for himself.

I am home solo trying to pretend I am at an artist residency....and make something. 

I have put film into several cameras and have shot some images...I have made some green developers and I hope to see if the pinhole photos I took today created any images. I have been feeding myself clean food, I have participated in a community garage sale, but only for an hour and a half, as the people who started coming freaked me out...hahah I have been writing down ideas and contemplating new materials. I am catching up on admin work for my website, etsy shop and wrote a newsletter announcing what the latest was.

I guess the whole reason for this post is that I am still here. 

I still have not gotten the virus, I still mask in most public spaces, even with glares. I am still waking up with a smile each day, even when my whole world is tilted and new things seem to gather around the edges. I still have a sense of hope that one day I will be able to travel again and feel lighter in mind and mood.

I do hope that if you got to the end of this post that you are doing alright, holding on to the edge of your day...finding something sparkling in it....because that little bright thing is meant for your to notice and hold.

In-laws and outlaws

Tuesday of last week, marked two weeks since my second vaccine dose and meant I was fully vaccinated.

Over a month ago, I made an appointment for my first haircut since August 2019...I am not normally a hair person, but my hair was making me feel older and it was chaotic, something I normally embrace, but a haircut made me feel a little pretty and I was ready to honor that need. I tipped my hairstylist 100% because he is awesome and I wanted to celebrate him and his new downsized business. I have gotten my hair cut by him for 20+ years!

I then went to the dentist, and it ended up being far less stressful than I thought it was going to be...apparently all dentists are booked solid, so I was glad I made that appointment too.

And because I was now fully covered, we made a spur of the moment choice and visited The Barren's father, as he is immune compromised we both needed to be covered. This meant a road-trip and a day long drive. It was great to see him and hug him and spend even a little bit of time with him.

He is married to a woman who has very very high levels of need. She controls most situations by delays, she has a hard time transitioning from one task to another and is chronically late. Now my father in law is all engulfed by it as well and so they get lost from time lines for weeks. The Barren texted his father asking if they would be home this past weekend and he said yes, and then we booked a hotel and told him we were coming to visit, after hearing it, FIL changed days that he would be available (they are getting their floors done) and we added another day to the hotel and said great see you then. The Barren told his father he wanted to visit a music shop with him and that they would only be open a few hours after we arrived so we would pick him up to make the timeline...When we arrived it was a fairly swift transition, as his wife was staying behind to walk the dog.

We ordered food before returning home with pizza for us four and on arriving, his wife spent another hour+ doing who knows what and delaying dinner (she did put the pizza into the oven while she did something else while we all waited) the oven turned our pizzas into crackers. DH and I sat waiting at folding tray tables waiting for her to begin dinner....

The following day we went over after breakfast so The Barren and his father could play music for a bit which is all The Barren wanted to do to connect with his father. 💓(his dad doesn't call often and is even harder to get a call back from these days) While the guys played music I sat listening to his wife talk about things, and try to not take any bait:

What do you think about what is happening in Israel? What about this other political situation, I mean how can they eat cows...why would you not want to get the vaccine, I don't think your reactions were what you think, I hear people are waiting longer to have kids...

At that the Barren chimed in and said, "yeah we are still waiting"

Then she suggested we go to a music festival at a local winery, we jumped at the opportunity to go and we all gathered our things to go, then we waited...she took another hour to get ready to head out the door. I had squirreled some snacks in our car, thankfully. They get so wrapped up in tasks she doesn't really eat regularly and I am a woman who likes to snack all day long! So I was hungry...they brought their dog too, who is a rescue that has serious anxiety issues and can not be left alone. So she was panic panting the whole time and it was really hard to witness, I also was having a hard time being around sooooooooo many people kind of wearing masks. 

This is when I began to get " sparkles" my optical migraine trigger and whispered to The Barren about it, but my MIL heard and stopped taking photos of children dancing to ask if I wanted an aspirin (which was nice) I tried really hard to down play it, but it was the perfect out of a stressful, situation and so we scapegoated me and left early. As we said goodbye to my FIL,I got a photo of DH and FIL and it was lovely and bittersweet. 

The Barren drove us into town while I fought a freight train of a migraine and a panic attack. We got dinner, as we were famished and I did some conscience breathing exercises while I waited for the migraine drugs to kick in. MIL texted and we pretended that we were already back at the hotel and I was sleeping, when were were actually secretly eating and then going to the hotel to sleep. MIL offered to bring us leftover cracker pizza and we thanked her for the beautiful gesture but we were fine.

The next morning we left for another full day of driving back homeward.

Sigh

On the way home we made an effort to stop and see things we never had, after all, this was the closest to a vaca we'd taken in multiple years! It was another exhausting day and when we rolled into a town only a couple hours from home, we booked a pricey room at the hotel my art is in...TOTAL splurge!

It was super cool to see it in person after all this time.

The hotel was delayed in opening, and when it had a soft opening in Dec 2019 I wasn't able to make it, then 2020 closed the hotel and then opened it and then closed it and now it is open again. So we went to see the work finally installed.

When we checked in, I gleefully told the reception person that I was the artist that made the lobby's artwork...they looked up and said "oh" and then looked back at the computer.

Trying to not let them dull my sparkle, I asked if people ask about the art on the walls, the reception person said " not really" their apathy was enough and I walked back over to the art and quietly had my own party in my head.

We drove home the next morning, after I had taken as many photos as I could think of taking.

It was a 2021 kind of vaca-we walked into our door, dropped our dirty laundry into the basket, I walked into the kitchen and began making dinner. It was gone...all of it was done and we were back to Homeostasis.

Since returning, I have gone to see our "girl" and her babies, attended my online art lecture and today after consulting a physician friend, I went to the final class of a favorite teacher, and returned to my first in studio hot yoga class since March 2020. (strangely emotional)

I wore my mask the whole time, the only one doing that. I got a spot closest to the door, right next to one of the three air scrubbers that run during the class and got a sweat on and left afterwards. Passing a studio full of unmasked people. Vaccination proof is honor system, so I took extra actions.

Things are trying to get back to what they were, but it will never be the same again. And it seems that as hard as people try, it seems more and more offset.

Twisted

I have been keeping up with my home yoga practice.

Many days it is like pulling myself through taffy, other days it is total joy.

This practice is healthy for me, as things are upside down in my country.

I am ashamed, angry, heartbroken and yet still hopeful.

I have begun a re-education of myself and some days it feels as though 

I am studying for a huge exam. 

I am learning to understand where and how my white privilege has benefited me.

I am understanding how many of my brothers and sisters have been denied opportunities and treated differently because of the color of their skin.

I am not talking about simple understanding; I am trying to understand the depth that white supremacy has taken a hold and been a part of culture here in the US.

The scary stuff, the hard stuff....the deep understanding of what I don't see and why.

Example one:

I am a hippy kid, a child that was raised in a multicultural neighborhood.

I had friends from all backgrounds and my mother made a point that we 

be "color blind".

I realize that was a mistake now, that by not seeing the beautiful color of my friends, 

I overlooked/ did not acknowledge, the beauty of their skin and missed out on their cultures.

I am looking into my fears and prejudices and trying to understand where they come from and if they are from trauma or outside influences.

It is hard work, but I know the hard work needs to be done to make big changes.

For myself, my relationships and our future.

I was exhausted and was watching Former President Obama speak in a town hall. When he came on the screen, I felt my whole body relax....like the safety of a familiar friend had arrived.

Then, I listened to Dr. Bernice A. King speak and say:

" don't be afraid to make mistakes"

I am feeling the responsibility of the world,

a frantic need to understand everything from everything all at once...

these words made me feel a little better.

In my readings I have discovered so many beautiful wonderful non-profits.

Amazing artists, beautiful poets and writers.

Activists and support systems.

It has been a supreme enlightening, like turning a page in a story and discovering so many new treasures just around the corner.

Even on my meager income, I am thrilled to become a donor to a number of groups.

We are attending a peaceful protest rally tomorrow.

I am looking forward to it.

Masks, glasses and social distancing in place.

We are starting with "parading" which is driving around the protesters with signs of support..
then if it appears safe for us to join the crowd*...we will.

*There are new cases and deaths from the virus every day in my town. Two weeks ago my city was one of the first in our state to open up patio dining, beaches and parks... and so floods of people from larger cities descended into our little beach town....ignoring many precautions.

I am working on so many things right now mentally.

I am trying to be an artist and create things,
but have found that the pressure for an artistic response about:
 the virus 

the Black Lives Movement

the isolation

the loneliness

has made creating impossible for me.
During meditation the other day I came to understand that...

I don't think I have processed it all or enough yet to create a response yet.

I am recalling Elizabeth Gilbert's Ted Talk about the "Elusive Creative Genius"
and taking heart in it.

So I am starting back at square one and beginning my walk again.

What is important to me

What brings me joy

what do I love to do?!

I am ready to twist myself into whatever shape I am suppose to be.

Alone with my rants

I think the isolation in starting to get to me.

I am sleepy a lot and not really feeling creative.

I have taken to making more masks. 

I had to stop last month because I made my neck spasm from looking down 

at the sewing machine and ironing board.

© The-Barreness.blogspot.com

When I finally stopped I had made close to 90 masks for family and friends.

This time I am breaking up the parts and so far it has protected my neck.

I am up to about 25

I am hoping to sell some...my other job is non-existent even after installing a remote desktop to try and capture anything that might fall through the cracks.

***

Silly rant to follow

***

I am cleaning/tidying up a lot too.

It seems to have totally fallen onto my shoulders.

I cook 90% of the meals, clean, do laundry and the shopping.

I think it is starting to become too much,

I test the waters every once in a while to see what would happen if I didn't stop in the studio and dinner time arrives...it arrives and then I am asked what I was thinking of making...and then I end up stopping and making and cleaning up dinner.

The Barren has taken to baking bread regularly and often I end up cleaning up after that too.

After dinner my dishes are collected and then I find them stacked on the counter, left for cleaning.

I clean them as I find a full sink in the morning massively distracting...

so I am trying to perform an act of kindness for myself.

I am not going to complain about it as I figure it would only leave to an argument and I don't want that energy in the house.

OK rant over...a rant about silly things!

***

-Second rant-

I went to pick up online orders for groceries yesterday. It was a warm day, and I was SHOCKED by how crowded the beach was, the streets were filled with people.

I mean I guess as Americans, just like all the memes I've seen:

we got tired of the virus, so it simply does not exists anymore.

As a rule follower, I am short circuited, by this.

I see new cases every day in my county, and there was a rise two weeks after Easter, and now I expect there to be another two weeks from now.

People have died locally, and still so so so so many people ignore the request to wear a mask.

It is still "suggested" that you wear one.

***

Onto Uterus news:

I made some gifts for two baby showers that are coming up.

I made them and then made sure to get them out of the house ASAP

I didn't mind making the burp cloths and printed onesies, 

but my gosh, I could not have them stay here.

Virtual baby showers!

I mean is this a new hell...??!!

I normally do not go to showers...that is my no-go line in the sand, but

The Barren RSVP'd that we would attend a virtual one...so I am going to a baby shower.

OMFG

I am thankful that it is just us in the home.

We have a small place and the idea that a kiddo would be here too pacing and trying to do school and be occupied is a scenario I can not imagine.

So in that regard, yeah for being Barren.

Also my period is 26 days late so far...

Aside from a pandemic, it appears that I have officially kicked open the peri-menopausal door

I feel a little shaky mentally

I am taking everything slowly...and methodically 

I guess I am grieving the loss of what was, and realizing that it will be a long time before I can go to art shows, or galleries or museums.

It will be a long time before things seem like a new normal.

Maybe it will never be a new normal.

I am just kind of lost for an anchor of okay.

My yoga studio is moving to streaming classes next week...

that might be closer to like being social kind of...

it all feels off.

I do hope you are all feeling less lost and shaky.

Pacing and Crying

So last week I woke up and said, I should get a few things in case this changes.

The Barren and I made a list and I headed out to the shop to get what we needed.

It was way way harder than that.

I arrived to a shop that has bulk bins, as we are trying to reduce packaging in our lives.

I was greeted by chaos, and empty shelves and dazed people.

Some were just trying to do their weekly shopping but the others were stock piling!

I stood in line and bought some of the items we were looking for.

I made a second stop at a health food store to pick up some of the other items then came home and took a nap. On waking up I headed to the traditional grocery store to see if there was any dried pasta or sauce...insanity there too, people buying frozen pizza and hungry man tv dinners.

I picked up some fresh produce and pasta....thankfully there were loads of pre-made vegan options available.

The Barren and I went to the Indian market on Saturday and got a bag or rice and lentils and spices.

the owner is a wonderful lady who was OVERWHELMED by people buying ALL the rice.

It is like something from a movie

I went to work (it is myself and my brother) on Sunday to avoid people. 

I asked him how and when were we educated on what to buy in case the world has a pandemic? 

I went out yesterday to get medicine for the cat and pick up eggs for The Barren...

no luck on the eggs.

I awoke from a panic attack this morning and face-timed my brother...

we were both in bed and he showed me my nephew putting together this lego set that he finally was able to get from Christmas (he had to earn it in no attitude and such)

I then called my parents in tears, telling them that if they make bad choices, and end up in the hospital I won't be able to see them.

My father has taken this all as a personal insult and it fighting all real logic with toxic positivity.

He heard my tears and made promises, the last time I did this was when he didn't tell anyone he was having chest pains for a couple days.

I think I screamed at him then ...

So this is the normal here.

Hubby and I are getting along ok, and he is working from the kitchen table and so his ability to walk away from work at the end of the day is harder now...

I hope this weekend we will have some change, maybe a walk outside.

Oh- we are suppose to go to Farmers Market on Saturday morning in hopes to get eggs.

and more fresh veggies.

I am trying to suppress my panic at not making any money right now

 and wondering how I might pay bills...

I don't have to get political to express my disappointment at not knowing what is going on.

Being frustrated that my town doesn't have enough test kits or swabs to test people with.

I keep hearing that our food supply is stable, but just got word from a neighbor who went out that there are empty shelves and no paper products to be had.

The Barren is flirting with a bidet attachment for the toilet now.

I am fine with that.

It feels like I was blindsided by this all...and the more I dip my toe into the news

the more horrible it is, and so so so sad.

This all feels like a movie

I am floating in this horrible movie that I never wanted to see.

I am scared and unsure what to do to make this upturned ship right itself.

I assume we all feel like this though 

and there is a sense of comfort in that too.

kind of

invisible

I see colors when I close my eyes.

I first noticed it in meditation class and it was a wonderful illumination for me.

Ideas flow and colors are beacons of emotions.

No one else can see the colors I see when I close my eyes;

They are invisible to everyone else.

I had a massage last week and mentioned to the therapist that 

I see a particular color when she works on my back.

She made a comment on what a lovely color it was and 

mentioned that another one of her clients, sees gold when she has her feet massaged.

It unfazed her and I was validated and understood.

It was no surprise or a weirdness to her.
*sigh*

I am finding that invisibility seems to be a reoccurring theme as of late.
I feel unseen for the most part...able to pass through the day unnoticed, or forgotten.
When the feeling floods me, I tend to send out love notes to friends.
Either by text or actual cards in the mail.
I send notes of encouragement
notes of love
notes to simply tell a person they are held in high regard
notes of strength to act as floats;hoping to keep your head above water
I send notes that say Hi I am checking in on you

For the most part these are not really acknowledged.
Like my notes become invisible once I drop them into the postbox.

I continue to send them despite the lack of response.
I believe that no matter what, kindness matters.
I send them because I want to, not that I expect a response.
(but isn't it nice to know they found their person?)

The Barren keeps asking what I want to do to celebrate my upcoming birthday.
I turn 50 this year...
a number I am still baffled at, but a number that designates
how many times I have spun around that glorious ball of burning gas in the sky.

I come up empty each time he asks.
Shrinking from embarrassment.
As much as I know how much this frustrates him, I have no ideas.
He keeps asking if I want a party?
I would love a party...but
Honestly, the first thing that comes to mind is " who would come? "
I could invite all those people I send love notes to,
but I am really scared no one would show up.
It would simply highlight how untangled I am among the people I know.

We've thrown parties before where everyone who says they are coming,
 calls the day of the party and tells us they can't make it...
leaving us with a table full of food and us in our PJ's dazed as to what happened.

I continue to try and reach out to people I meet at the yoga studio or in life
but keep coming up "hot potato-ed"

I know this sounds like a pity party...but I am really struggling to crack this code.
What do you do for your birthday if you are without people you spend time with?

My bestie lives a days drive away, and we have hopes to meet somewhere
half-way this year for a weekend girl getaway.
(that is something to be excited about)

I want to help hubby
Maybe if we simply go to a park and set out a picnic,
and if no one shows it would still be a nice day in a park with snacks
and not hurt as much as it feels right now.

Does anyone out there feel invisible?

Resurface your skin

Thankfully, my unplugging is helping.

Another massive tragedy has hit my town and everyone is reeling and tender.

This came after I was scrolling the local paper for events for the extended weekend and found a mugshot of a man that was often our waiter at a local restaurant. 

In our interactions with him; he was kind, remembered us every-time we visited and had the kind of polite manners I remember we all were suppose to have as kids.

He was arrested for stabbing to death two people he knew. 

I think I am still in total shock about that too.

Then, like a morbid cherry on a fucked sundae, 

 I read about a friend (peer) that I use to work with loosing her husband unexpectedly in his sleep.

I have been doing yoga, 

working in the studio and making meals.

The Barren and I have been spending quiet time together 

and talking about all the scary reality that is hitting us all at the same time.

Parents aging and acting older

What do we want with our lives as we head into older years

Watching kids/nephews/nieces/ godchildren grow

facing responsibilities and taking care of our bodies

it all really sucks

I long for those carefree days of naive bliss

I read somewhere that to help maintain your mental cracks

when you are feeling depressed

overwhelmed and under-prepared

start with thinking about how you want to feel.

It seems quite patronizing but in my mind...I make it into an image.

I imagine a beautiful sun filtered field, butterflies flickering above the tall grass

a soothing breeze and the calm that comes from stepping into that image.

It has been helping me direct the overwhelming feelings into a space I can breathe again in.

I hope that the world has not overtaken you dear warriors

We have been walked over by hopes way too many times already.

Please try and fight to seize the joy that is still yours.

Tiggered

So I am on "summer vacation" which looks like

 a week of not commuting and me trying REALLY HARD 

to focus on all the art things that have fallen to the wayside.

Updating websites and social media and professional sites.

I am also looking for new opportunities and waiting on word from other 

submitted competitions.

I am going to class as often as I can and trying to balance it with having "fun"

I am alone for this week, meaning The Barren has next week off for what we loving call

"music camp"- which is an event that happens annually for him. Where he takes a week off to just play music both intimately with a friend and perform open mic nights.

During that week, I rarely see him and so it is like having a roommate who leaves dirty socks and dishes behind but never seems to be here.

This year, he is taking a second week, so that should be stranger.

When I told him that I had this week off, he said he'd support me by making sure to bring home or make food so I didn't have to think about it.

but...

work got super stressful for him and I am doing what I normally do

laundry

dishes

cleaning the cat box

paying bills

making my own meals and trying to work in the studio

**sigh**

last night we had a blow out because, he came home asking what I wanted for dinner and I told him after a day of reading submission requirements and making a newsletter my brain was blown...

this lead to an argument where neither of us wanted to Adult and make choices for food and so he made himself dinner and left to practice music

I made myself dinner and watched a movie alone and cried.

My yoga classes are good and I feel stronger...

but the owner of the studio is suffering from infertility and is being very open about it on social media and I think I am being a little triggered by it.

ok, maybe a lot triggered.

I feel so deeply for the struggle and the path that she is taking...

first surgery for endo and now they have several failed IUI cycles and declared today that next month they start IVF.

I wished her the best and am trying to not focus on it and just do my practice.

I have also found myself choosing to not attend her classes as I would only think about her struggle instead of my own journey.

**sigh**

I go my period a couple of weekends ago...

52days late.

I had two train crash days where I was bleeding hard and heavy 

and then it was gone again.

I am thankful and now know what it might be like next time.

strange indeed

The day before my period I fainted before yoga class...

I got up before class started to pee, which I do a lot more than I'd like...but normal stuff

and I got light headed, also normal...you know how your vision is dimmed because your blood pressure is trying to regulate...well it just came at my wave after wave and the world started to tilt and I was thinking " what the hell is happening?!" and then I was awake. 

I have NEVER done that and I fell into the yoga mat storage

I came to fast and because that has never happened to me before 

I just went back into class and did class.

No one saw me faint, and aside from some gnarly bruises it has not happened again.

Although, I am taking precautions when getting up from the floor and in transitions.

So that is my summer so far....

oh and I delivered a HUGE project for a new hotel...

that had been in the making for over a year.

and it will knock down a lot of my credit card debt...

having an inconsistent income has some downfalls.

I can't imagine doing anything else...but it will be nice to have less personal debt

and maybe be able to start putting some money into my IRA again...

even if it is just $20 a month.

I think I'm gonna gather coins from the laundry and maybe buy myself an ice cream

it is summer after all!

After Party

Niece is healed

I am thankful that she can do things like lay on her stomach and exercise again.

yeah science!

My birthday came and went

birthday outfit

I started the day with yoga...

turns out, the one person I chat with in morning classes is a birthday twin!

Never in my life have I known someone else who shares my birthday!

( I will call it mine even though it is hers too)

CRAZY

I had breakfast chessecake bars with my parents, 

along with an awkward but nice visit.

The Barren sent flowers to me, 

he hasn't done that in years!

and then I was alone...

I wondered what to do.

I bought myself some lunch out

I went to a thrift store

and then came home again still not sure what to do with myself.

I ended the night with some couch time with the cat and then off to bed.

I think I need to plan my birthday activities far better for next year.

I am left with a feeling of disappointment in myself.

The Barren returned and will be leaving again Sunday for another week away....

I am excited about what he will be able to do while away...but I miss him terribly.

I have yet to get my period too...

seems I am already all over the board with my cycles.

I took a pregnancy test yesterday...

just to cross that off my worry list.

Now it is a worry...before it would not have been,

TRANSITIONAL THINKING anyone??

The Barren asked if it felt weird peeing on a stick again...

I said it wasn't too weird except I could hear my heart beating in my ears.

The not bleeding thing is wild, and quite a convenient feature in my day.

I am apocalypse level loaded up on tampons and pads... and if things continue like this, 

I will make them into small grab bags for homeless women I encounter.

I was chatting with a yoga teacher before class the other day and she asked how I was feeling post birthday...she is a true star gazer and always keeps me in the loop about astro changes and how they are linked with mood and life...and I explained aside from the normal existential thoughts around your birthday it feels like something in percolating.

I eagerly await this wonderful new event!

I am done with negative shit

A whole new womb

***below is some babble-and bad punctuation***

I am entering a whole new stage of womanhood 

and closing the door on the reproductive years.

it is so very bittersweet

Even with a decade plus of absolute heartbreak and 

another myriad of years of confusion 

with a sense of being untethered to any one point or direction in my life...

I am here now

I am not on any birth control and I have finally stopped bleeding!

I am kind of in shock about that still...

After bleeding daily for 6 months it is strange to suddenly not!

I even have a bit of my sex drive returning, which lets face it, is a BIG DEAL!

I was actually kind of mad that I would miss my sexual prime 

under a haze of birth control pills...

Seems I might get some fun outta this yet!

We (The Barren and I ) seem to run in tangents and this whole new road has intersected with a need to "organize" our lives a bit more. Which has manifested in cleaning out old boxes and flushing the dead space. I think with the recent loss of our beloved cat, we needed to shift the energy and this seemed like the closest sitting duck.

It has meant that I have gone through boxes and boxes of memories! 

What we had imagined for myself, what I had passion in and where it landed.

We got rid of kids things, and toys we kept in the house for nieces and nephews,

 all of which are too old for them now.

We kept saying " someone else will be really excited by this" 

as we plopped it into a give away box for the thrift store.

At the end of the day, he felt like he could breathe easier and

 I had nights filled with dreams of lost items and crashes into buildings!

We are being kind about how quickly we make choices, sometimes they will just be repacked and put back into storage, to be opened in the future when things feel less raw. Other times It seems like a brave and heroic feat to let go of the item.

It is a strange time...

I am really feeling like I am floating in a vast unknown land.

I am really in this blind, I do not remember anyone talking or telling me what to expect as you transition into menopause...nothing in sex ed, or doctors or anything!

Well, not until last year when the word was used for the first time in my life in reference to me!

Even after asking what that meant, it was still " it can be anything" was the most precise response, which still seemed lacking at best. 

I am not afraid anymore...I am trying to take each day as it comes.

Some have sorrow wrapped into them, some are manic and I am super energetic and ready to take on the world! As I wait out the readjustment of hormones I will play along as best I can...

be kind to myself, and not give too much away.

Cliff Diver

I just came back from a meeting at the GYN's

Yes a meeting, because I had questions!

I have been feeling quite unconnected from my body...

like I was chasing her across a field and calling for her.

She never turns around or answers...

I want her back.

I have been blue, and bloated and lethargic and skipping yoga to sleep.

I understand that some of it might be residual grief...but it felt different.

I have tried several pills and all paths have lead to constant spotting-light to heavy to bleeding.

I have not stopped taking the pill since thanksgiving (US) and aside from maybe two weeks...

I have been bleeding to some degree.

So I wondered if the pill was working anymore for me.....

and because all the women in my family have all had hysterectomies I had questions

that could not be answered by them.

No one had gone through peri-menopause before or carried several fibroids around.

Long story short....

I am stopping the pill tonight!

I am kind of excited and a little nervous...

but I know now that I have a medical someone on my side who understands that 

uterine ablation and D&C are on the bottom of my list.

I am hoping that my little 12week sized uterus will be happy with this choice

 and relax into retirement on her own.

I have options if the bleeding lasts longer than 10-14 days 

and I have options if there is pelvic pain.

Her theory is that I might not be having regular periods anymore and taking 

BCP is simply adding estrogen and making my uterus act all dramatic.

The Barren thinks this will be really good for me and proudly stated that 

he has no worries about it.

I will take that vote of confidence and hope.

So here I go....

I am about to jump from the cliff into the vast unknown

Competition with myself

I have signed up for this challenge.

I am sorry if my next few posts have a heavy yoga theme, 

it is pretty much the only real socializing I get...cuz I am a dork like that.

I don't normally do this sort of thing because I have discovered that I find competition quite repulsive. It does not motivate me, it makes me retreat.

I don't even like when people shout words of encouragement to push you through....

like when running for the finish line, or to keep up with the pace of others.

I had signed up for this kind of thing at the last yoga studio I use to go to, 

but it was a punch card and it turned out to be way competitive! 

So I did two or three classes got my little card punched and then found reasons to not finish them 

and self sabotaged the efforts of the punch card.

There were people who went to classes three or four times a day so I felt Why?!

This one felt different, one...no one is forcing it down my throat or talking it up like you all get cars if you finish. This one is hey, we've been open a year and we made this chart with sharpies and have stickers that you can put in a box next to your name after each class you take...and you have 35 days to do 30 days of yoga because, you know life and shit happens sometimes.

Also you can only get one sticker per day, so if you come once that is the same as coming three times a day...for those crazy overachievers....and for those that have day jobs and relationships.

Quite frankly, I was highly excited about my first sticker, it was a gold unicorn!

I am still 7 years old and get excited about stickers and unicorns

this is my 6th day in a row but only the 3rd in the challenge...

so now I have one unicorn and two stars.

I am also playing hooky from work this week as we are getting some rain and evacuation orders have been issued and revoked due to threats of debris from last years fires.

I have spent my time in yoga, practicing mudras , eating, watching crappy tv and reading.

I have also done some catch up on art things and planning for the coming year.

I am trying to be happier and less fearful.

that is what I am working on the most this year...

less fear

so I am taking yoga every day

and even when the next cycle comes along I will be there...

reminding myself that I am powerful and have overcome all threats to my reproductive system.

There is a woman that practices next to me often in class and she is a psychotherapist who specializes in helping people free the BODY from trauma. She says we trap trauma in our bodies and our bodies replay that over and over again even when we are currently safe and there is no threat. 

Like soldiers that have survived bombs and people who have lived through shootings or car crashes.

This resonated with me and my white coat and I started meditating on my uterus being safe from trauma, and trying to calm her down from her past experiences.

I am taking time every day to practice this meditation....it seems to feel natural and soothing me.

I am not sure how many days I will end up practicing for this challenge but I am willing to try and that is HUGE...and if they keep providing gold unicorn stickers there is no telling how long this could go on!

The Monster

I have an appointment to see a gyno on Wednesday.

I have not stopped bleeding and throwing large clots since Tuesday. 

(it is Saturday night)

When I asked my doctors office for advice, they said:

  you are already on the pill, there is nothing more we can do.

After feeling set afloat and abandoned...

I started calling gyno offices to see who took my insurance...and booked an appointment to see someone new.

When I called on Tuesday in shock at what appeared to be another miscarriage, I was immediately dismissed and told it was impossible on the pill.

Feeling run over and emotionally hurt as well as terrified by what was happening to my body...

I requested a change in BC pill as I had been spotting since August.

It was requested and after some hunting down, I got it ordered and filled.

I am bleeding

a lot

I fear and expect that this is The Monster that has been laying in wait for all these years.

The same monster that I have managed since my surgery in 2012. 

The Monster that has been quiet until now....allowing me to be me and feel like I had some control.

I don't know what shifted back in July to start the spotting

and then the the bleeding in August

that didn't stop until the end of the month

and then the spotting to begin again in October and

here I am now entering my third week of bleeding.

I have no pain...so that makes it all the more creepy.

This Monster lulls me into thinking all is fine but, has me in the bathroom every three or so hours.

I have had to stop yoga, as I tried to practice this week and got so dizzy and nauseous that I had to stop multiple times.

The Monster makes me think am covered and then leaks out of the body and into my clothes at work.

The Monster makes me think I can do normal tasks, but then when I attempt to begin, I am unplugged and need to sleep.

I am taking iron to try and build amour to protect myself...

drinking green juices to get even more iron

but every few hours I am drained of my efforts.

I do hope this doctor can be an ally

help me save my uterus from The Monster...

until then I take my BC pills and iron supplements and hope that my shield is strong enough to protect me from collapsing.

Spent on the sidelines

***Trigger warning***

Miscarriage

So I went to the doctor

I must say the level of kindness at the doctors office far exceeded my past experiences 

so there is a "good on you" sticker for them.

I was asked repeatedly if I was alright, and that they were really sorry.

I did express how even after all these years, I was able to find and access that deep sadness and numbness without any effort.

That is a shock still.

I peed in a cup

Had my temp and blood pressure taken (both elevated)

I had a pelvic exam

I was asked to recount what I had experienced over the last two weeks.

I like to give deep details in fear that something would be left out that was needed.

The nurse practitioner said she had ideas about what might be happening

I had all the signs of a miscarriage, but also unstable uterine wall

also peri-menopausal response

My fibroids or cysts or endo acting up

also she didn't know...

but felt that the longer I was on BCP the swing in hormones 

would eventually taper the bleeding.

So I went to get a blood test to check my 

HcG levels

My FSH

and my iron, because I kept saying that I was really tired.

I also had an order for a pelvic ultrasound.

I was the last appointment for the blood lab before lunch break.

The lady that drew my blood was saying how hungry she was over and over again....

and then as she was taking my blood said:

" I have a really good feeling about this potential pregnancy"

I said, " well, that's good"

and told her to enjoy her lunch.

I left and drove home to fall into a puddle.

Dr's office called the following day to say I am not starting menopause

(at least via hormone levels)

I am anemic and to take a multi vitamin and eat iron rich foods

and the lab didn't run the HCG blood test for some reason...

Did I ask them not to?!

And did I still want to do that.

An additional four days had passed and I told her no, 

I didn't think anything would be left to see.

I am now about to go and have my ultrasound

I am anxious and nervous about my cysts and fibroids having changed.

I am still spotting, and I know this ultrasound tech.

She is compassionate and listens and gives me a heads up 

if I need to be concerned about something she sees.

I am off to drink my water and get probed.

Then, then I can feel unpoked for a couple weeks before my annual checkup

In the meantime I will work on feeling more connected with my body again, as I currently feel quite removed from it....like I am watching from the sidelines.

Summertime Rolls

I am in this photo, right there with my butt up in the air

This is the Saturday morning class I love to take...

the teacher places a COLD washcloth's on each persons face afterwards and it is a slice of heaven!

it is sometimes a struggle to get there because it ends half an hour after farmers market starts and if you are a regular farmers market goer, you know the best stuff is right when they open...so it is a practice of letting shit go and enjoying being at class, then enjoying the pace of the market when I arrive afterwards. I am also not one of those ladies that 

loves to wear her yoga clothes to do errands and stuff...

so the looks from the farmers while I try and hide a camel toe or my body odor is something too.
I pretend to be blissfully unaware of the stares...

The summer is passing and it seems that the activity I am most often partaking in is sweating...

sweat overnight, wake up and go to yoga and sweat, come home shower and try to not sweat (unsuccessful at that still) then sweat while cooking dinner and cleaning up, evening shower
 and repeat

it probably doesn't help that most of my state is on fire and there has been heat wave after heat wave....so I am not sure if this is a peri-menopausal thing or simply summer.

I am gonna say it is summer because the other option sux!

We have watched friends go on vacations, kids go to summer camp,
and we have even been host to a couple visitors.

Alas, we have not escaped.

I was told that my work was taking a few days off to spend time with family and I got very excited at the idea of not having to commute for a while week...but they shortened the vaca and it fell on the days I am normally not there so no real vacation for me.

I am doing my best to make it productive none the less

but...I got my period and now I am either sweat sleeping or trying to not eat everything in the house.

Happy summer vacation!

 I am still trying....I canceled yoga for myself this week...

it is good to rest every now and then...and I think I need it, plus if I am sweating all day and my uterus is a battleground why not sit back and watch the show.
I don't need to prove to myself that I can still do my thing...
my newly built muscles are not going to disappear overnight.
It will all be alright.

It is summertime, eat some watermelon...
sleep a little later when you can, go for a drive somewhere
collect a few interesting things to remember this time, take some photos.
I mean isn't that what Summer Vacation use to be?!