After Party

Niece is healed

I am thankful that she can do things like lay on her stomach and exercise again.

yeah science!

My birthday came and went

birthday outfit

I started the day with yoga...

turns out, the one person I chat with in morning classes is a birthday twin!

Never in my life have I known someone else who shares my birthday!

( I will call it mine even though it is hers too)

CRAZY

I had breakfast chessecake bars with my parents, 

along with an awkward but nice visit.

The Barren sent flowers to me, 

he hasn't done that in years!

and then I was alone...

I wondered what to do.

I bought myself some lunch out

I went to a thrift store

and then came home again still not sure what to do with myself.

I ended the night with some couch time with the cat and then off to bed.

I think I need to plan my birthday activities far better for next year.

I am left with a feeling of disappointment in myself.

The Barren returned and will be leaving again Sunday for another week away....

I am excited about what he will be able to do while away...but I miss him terribly.

I have yet to get my period too...

seems I am already all over the board with my cycles.

I took a pregnancy test yesterday...

just to cross that off my worry list.

Now it is a worry...before it would not have been,

TRANSITIONAL THINKING anyone??

The Barren asked if it felt weird peeing on a stick again...

I said it wasn't too weird except I could hear my heart beating in my ears.

The not bleeding thing is wild, and quite a convenient feature in my day.

I am apocalypse level loaded up on tampons and pads... and if things continue like this, 

I will make them into small grab bags for homeless women I encounter.

I was chatting with a yoga teacher before class the other day and she asked how I was feeling post birthday...she is a true star gazer and always keeps me in the loop about astro changes and how they are linked with mood and life...and I explained aside from the normal existential thoughts around your birthday it feels like something in percolating.

I eagerly await this wonderful new event!

I am done with negative shit

A whole new womb

***below is some babble-and bad punctuation***

I am entering a whole new stage of womanhood 

and closing the door on the reproductive years.

it is so very bittersweet

Even with a decade plus of absolute heartbreak and 

another myriad of years of confusion 

with a sense of being untethered to any one point or direction in my life...

I am here now

I am not on any birth control and I have finally stopped bleeding!

I am kind of in shock about that still...

After bleeding daily for 6 months it is strange to suddenly not!

I even have a bit of my sex drive returning, which lets face it, is a BIG DEAL!

I was actually kind of mad that I would miss my sexual prime 

under a haze of birth control pills...

Seems I might get some fun outta this yet!

We (The Barren and I ) seem to run in tangents and this whole new road has intersected with a need to "organize" our lives a bit more. Which has manifested in cleaning out old boxes and flushing the dead space. I think with the recent loss of our beloved cat, we needed to shift the energy and this seemed like the closest sitting duck.

It has meant that I have gone through boxes and boxes of memories! 

What we had imagined for myself, what I had passion in and where it landed.

We got rid of kids things, and toys we kept in the house for nieces and nephews,

 all of which are too old for them now.

We kept saying " someone else will be really excited by this" 

as we plopped it into a give away box for the thrift store.

At the end of the day, he felt like he could breathe easier and

 I had nights filled with dreams of lost items and crashes into buildings!

We are being kind about how quickly we make choices, sometimes they will just be repacked and put back into storage, to be opened in the future when things feel less raw. Other times It seems like a brave and heroic feat to let go of the item.

It is a strange time...

I am really feeling like I am floating in a vast unknown land.

I am really in this blind, I do not remember anyone talking or telling me what to expect as you transition into menopause...nothing in sex ed, or doctors or anything!

Well, not until last year when the word was used for the first time in my life in reference to me!

Even after asking what that meant, it was still " it can be anything" was the most precise response, which still seemed lacking at best. 

I am not afraid anymore...I am trying to take each day as it comes.

Some have sorrow wrapped into them, some are manic and I am super energetic and ready to take on the world! As I wait out the readjustment of hormones I will play along as best I can...

be kind to myself, and not give too much away.

Cliff Diver

I just came back from a meeting at the GYN's

Yes a meeting, because I had questions!

I have been feeling quite unconnected from my body...

like I was chasing her across a field and calling for her.

She never turns around or answers...

I want her back.

I have been blue, and bloated and lethargic and skipping yoga to sleep.

I understand that some of it might be residual grief...but it felt different.

I have tried several pills and all paths have lead to constant spotting-light to heavy to bleeding.

I have not stopped taking the pill since thanksgiving (US) and aside from maybe two weeks...

I have been bleeding to some degree.

So I wondered if the pill was working anymore for me.....

and because all the women in my family have all had hysterectomies I had questions

that could not be answered by them.

No one had gone through peri-menopause before or carried several fibroids around.

Long story short....

I am stopping the pill tonight!

I am kind of excited and a little nervous...

but I know now that I have a medical someone on my side who understands that 

uterine ablation and D&C are on the bottom of my list.

I am hoping that my little 12week sized uterus will be happy with this choice

 and relax into retirement on her own.

I have options if the bleeding lasts longer than 10-14 days 

and I have options if there is pelvic pain.

Her theory is that I might not be having regular periods anymore and taking 

BCP is simply adding estrogen and making my uterus act all dramatic.

The Barren thinks this will be really good for me and proudly stated that 

he has no worries about it.

I will take that vote of confidence and hope.

So here I go....

I am about to jump from the cliff into the vast unknown

Heavily Meditated

Vadge of Honor 

My bestie got me this pin after my last miscarriage and 

I have worn it to ultrasounds and today's endometrial biopsy.

I spent the last two and a half weeks waiting for my appointment meditating.

I have read about the process, focused on the temporary amount of time it was 

and tried to compare/prepare for it with the pain gauge in my head.

twinge to pass out from pain

Today came and I took two pills last night meant to soften my cervix and then another this morning.

They made me quite loopy and apparently worked well enough to allow for the procedure today

and to get a sample.

I would say the process was uncomfortable with a moment or two of pointed sharp pressure deep inside me, near my diaphragm.

It was a short amount of time and when I was ready to call uncle, it was over.

Clearly pain and discomfort levels are different for everyone and I had a lot of downward pressure from my cervix softening so that added to the strange feelings.

The polka dots on the ceiling tiles were amazingly interesting when focusing on breathing

When she was done I needed to lay still for a little bit as I was a little woozy.

Nothing that didn't settle almost immediately and I was out of there.

Results expected by next week.

I am beyond thankful that today procedure was able to net a sample.

I met with my bestie yesterday to shore up my courage, and she gave me a lemon sweatshirt that is super soft and cozy. She wanted to give it to me ahead of the procedure so that: 

"I felt happy and loved"

cozy lemon slice sweatshirt, homemade vegan mac and cheeze and my emotional support kitty <3 td="">

Bestie lives over 6 hours away and has come into town to take care of her mother who had double eye surgery today....so her plate is quite full!

Yesterdays meet up was exactly what we both needed.

Tomorrow is a new day.

I am hopeful that the spotting from the procedure will fade away 

and I will get some mojo time back and celebrate my:

 "BIG HEALTHY UTERUS POWER"

source

You are a wreck

So I went to the endo doctor....

I had The Barren come with me, well, because it was a male doctor and as sexist as that sounds often times when I have visited a male doctor they talk down to me unless The Barren is present.

It sucks and is sad, but true.

So I brought back-up

Also, I had MASSIVE white coat and I wanted a second set of ears to hear what my brain dropped with its high screeching sound.

I was sweating and anxious and although my clots had stopped on Monday, I was still spotting.

The doctor came into the exam room like a cowboy on a bulldozer.

Sat down in front of me with my folder and said:

"You are peri-menopausal.

that is why you are bleeding like this."

"We've met before, but you were asleep" (creepy)

He assisted on my ovarian cystectomy and stage four endo confirmation.

" yep, you are total mess, everything is just all mucked up in there."

He was trying to make light of things I think...but it came across a little like a used car salesman

He told me that when I got tired of bleeding I should consider a D&C or Uterine Ablation or both.

But first, 

" We need to do an endometrial biopsy, to confirm that you don't have uterine cancer. I don't think you do, but it is important to confirm that.

I have my nurse practitioners do them because I don't like to hurt people and they hurt. Because I have never had any children, my cervical opening is small or totally closed and they might not be able to do the biopsy, so if that is the case then they would do it with a D&C""

I saw The Barren go pale when the doctor described the process 

and I think I left my body at that moment.

He suggested that I double up on my BC pill to up the hormone and if it works then we can switch to another pill and just take them back to back.

Oh, and you can only take the pill until you are 50 so you only have a little bit of time left on that.

then you are considered Menopausal and you shouldn't be on the pill anymore.

I told him I was most afraid of having to have a hysterectomy and he told me that he had ZERO desire to do one, that he doesn't even have it on the list of options....unless needed.like uterine cancer.

That was a relief among the land mines.

He also said that caffeine or alcohol are not triggers for endo and that I should be drinking champagne whenever I want and enjoying my cup of tea in the morning.

I left the office with a biopsy appointment, with a nurse practitioner that was versed in the procedure of difficult subjects, and the lady at the front desk said she would ask if a should take some kind of medicine ahead of the procedure to help make it easier for us both...but it wasn't an anti-anxiety drug.

I left the appointment feeling like I had been run over by a mack truck!

I was dizzy and shaking and confused and so very sad.

I spoke to a pharmacist yesterday that confirmed that doubling up on the BC pill was a good option and if the spotting stopped then get a new prescription with that dose and take three 28 day packs back to back. 28 day packs have a wider range of dosages of hormone than the 91day generics I take.

I started last night and aside from some nausea this morning, I feel pretty alright and the spotting seems to be stopping too! 

I did yoga yesterday and today...that helped A LOT.

I am scared of the biopsy, but keep trying to focus on it being a 10-15 minute 

procedure and that the pain will be temporary.

The Barren is taking me to and from the appointment that day.

I am so done with this bullshit

I am done with doctors

I am done with the sadness

I am done with painful procedures

I am done with feeling so overwhelmed

but something somewhere in me won't let me totally give up and give in

I still have some dim flame of hope that this will be it, the last of it for a long spell 

The Monster

I have an appointment to see a gyno on Wednesday.

I have not stopped bleeding and throwing large clots since Tuesday. 

(it is Saturday night)

When I asked my doctors office for advice, they said:

  you are already on the pill, there is nothing more we can do.

After feeling set afloat and abandoned...

I started calling gyno offices to see who took my insurance...and booked an appointment to see someone new.

When I called on Tuesday in shock at what appeared to be another miscarriage, I was immediately dismissed and told it was impossible on the pill.

Feeling run over and emotionally hurt as well as terrified by what was happening to my body...

I requested a change in BC pill as I had been spotting since August.

It was requested and after some hunting down, I got it ordered and filled.

I am bleeding

a lot

I fear and expect that this is The Monster that has been laying in wait for all these years.

The same monster that I have managed since my surgery in 2012. 

The Monster that has been quiet until now....allowing me to be me and feel like I had some control.

I don't know what shifted back in July to start the spotting

and then the the bleeding in August

that didn't stop until the end of the month

and then the spotting to begin again in October and

here I am now entering my third week of bleeding.

I have no pain...so that makes it all the more creepy.

This Monster lulls me into thinking all is fine but, has me in the bathroom every three or so hours.

I have had to stop yoga, as I tried to practice this week and got so dizzy and nauseous that I had to stop multiple times.

The Monster makes me think am covered and then leaks out of the body and into my clothes at work.

The Monster makes me think I can do normal tasks, but then when I attempt to begin, I am unplugged and need to sleep.

I am taking iron to try and build amour to protect myself...

drinking green juices to get even more iron

but every few hours I am drained of my efforts.

I do hope this doctor can be an ally

help me save my uterus from The Monster...

until then I take my BC pills and iron supplements and hope that my shield is strong enough to protect me from collapsing.

Echos and debris

****Trigger Warning****
Miscarriage

photo credit


"internal echos and debris in the uterus"

The ultrasound tech told me that she thought it looked like I had a molar pregnancy.

I didn't know what this was and had to look it up.
There was nothing there now...

I still had blood and tissue in my endometrial lining and 

I should expect to keep spotting until my body either absorbs or expels the rest.

She use to be a midwife overseas, and specialized in high risk pregnancy

When the call came from the doctors office came 

 I was emotionally stable to listen to what they had to say.

which was: 

We don't see anything

one of your fibroids grew a millimeter

If something changes call us

The techs theory made sense to me and I am sticking with that one.

Since then, trying to resume a normal brainwave has been a struggle.

I got results from the doctor on the 23rd of last week and as the week rounded out my urethra

started to hurt/burn. So my Saturday morning I was in the walk in clinic.

I waited a good hour for the pee test, and then another half an our to be "seen"

The nurse that took me in took my vitals and asked questions.

No expression on her face.

She had me sit on the exam table behind a big curtain that she drew around me.

I sat there for another 15 minutes staring at the curtain and shaking, 

only hearing the nurse and doctor type on keyboards.

Then at one point I heard the doctor say my name, and the nurse whisper

She recently had a miscarriage...

At that point from behind the curtain I hear the doctor start to ask the question 

"how far along were you"

and appear from behind the curtain.

I told him early, I didn't even know I was, until I wasn't.

I am I still spotting.

He then said why are you here?

I told him my urethra hurt, not my bladder and I was concerned I might have the beginning of a UTI 

I had taken that urinary pain reliever stuff and aside from some minor relief it didn't do much.

He told me that my pee showed blood,  which makes sense if I am still spotting
but that there were no white blood cells...

blood is an irritant and if I hadn't been sexually active recently, that is the most likely culprit.

Did I have any back pain? I said yes

Then he took a single finger, and barely touched me

to point out to me the kidney area of my back.

Saying kidney issues are on one side only....bilateral pain it muscle.

He then swooped behind the curtain and told me he is calling in a prescription for an antibiotic to cover our bases and will culture my urine in case something didn't show on the dipstick test...

and then that was it.

No hello, so medical questions

just some pee and a finger touch

I left feeling totally numb

The Barren was with me this time and we ate something and picked up the drugs
and I went home and crawled into bed and slept for two hours.

Ideally this is the last of the complications

I can not emotionally take anything else thrown at me.

Spent on the sidelines

***Trigger warning***

Miscarriage

So I went to the doctor

I must say the level of kindness at the doctors office far exceeded my past experiences 

so there is a "good on you" sticker for them.

I was asked repeatedly if I was alright, and that they were really sorry.

I did express how even after all these years, I was able to find and access that deep sadness and numbness without any effort.

That is a shock still.

I peed in a cup

Had my temp and blood pressure taken (both elevated)

I had a pelvic exam

I was asked to recount what I had experienced over the last two weeks.

I like to give deep details in fear that something would be left out that was needed.

The nurse practitioner said she had ideas about what might be happening

I had all the signs of a miscarriage, but also unstable uterine wall

also peri-menopausal response

My fibroids or cysts or endo acting up

also she didn't know...

but felt that the longer I was on BCP the swing in hormones 

would eventually taper the bleeding.

So I went to get a blood test to check my 

HcG levels

My FSH

and my iron, because I kept saying that I was really tired.

I also had an order for a pelvic ultrasound.

I was the last appointment for the blood lab before lunch break.

The lady that drew my blood was saying how hungry she was over and over again....

and then as she was taking my blood said:

" I have a really good feeling about this potential pregnancy"

I said, " well, that's good"

and told her to enjoy her lunch.

I left and drove home to fall into a puddle.

Dr's office called the following day to say I am not starting menopause

(at least via hormone levels)

I am anemic and to take a multi vitamin and eat iron rich foods

and the lab didn't run the HCG blood test for some reason...

Did I ask them not to?!

And did I still want to do that.

An additional four days had passed and I told her no, 

I didn't think anything would be left to see.

I am now about to go and have my ultrasound

I am anxious and nervous about my cysts and fibroids having changed.

I am still spotting, and I know this ultrasound tech.

She is compassionate and listens and gives me a heads up 

if I need to be concerned about something she sees.

I am off to drink my water and get probed.

Then, then I can feel unpoked for a couple weeks before my annual checkup

In the meantime I will work on feeling more connected with my body again, as I currently feel quite removed from it....like I am watching from the sidelines.

Dazed

**Trigger warning**
miscarriage

photo by Mary Ellen Mark

It has been a strange cycle...

and it seems to have revealed why.

I have miscarried again.

I am quite confused and shocked

I have been bleeding since last week.

and then last night it changed and this morning it was all tissue

...lots and lots of tissue.

I have some cramping, and I feel numb.

In fact it has been so long I looked up the signs, just to see if I was imagining them. 

I have all them...textbook perfect early miscarriage.

The Barren is traveling for work, and although I want to tell him,

today is a busy one for him and he doesn't need to be worried about me.

My bestie is at work too...so I don't need to tell her yet.

So I am here, telling you.

I didn't think I'd have another 

experience this again, and the weird numbness that goes with it

I have been on my pill for three days, but the bleeding hasn't stopped.

I hope it will taper off  now.

I will skip yoga tonight, and wait for the bleeding to ease up.

I am just going to be quiet and kind to myself.

I have studio work to do, that is not hard or vigorous.

I am okay

just stunned 

and maybe a little sad too

I think I am trying to hold it together until I can cry into a shoulder.

Celebrity Reading

In Her Own Words: Lena Dunham on Her Decision to Have a Hysterectomy at 31

I read this yesterday and it was strangely familiar to me

down to the nitty gritty details- in a strange and comforting way

I was able to keep my uterus 

and still advocate for it every year

but there was a time I had this on the table and it was a valid and real choice 

Happy Birthday Lefty!

5 years ago I took a test that saved my ovary!

I celebrate that day as a new birthday for my ovary ever since.

Today is my left ovaries birthday.

I have had several new cycles with her and she has not decided to grow anything new!

I am thankful for that 

Here is to lefty

formally Quasimodo

I am looking to celebrate many more healthy birthdays with you ⭐

Beer and Cowgirl boots

It is that time of year again.

Check in on my uterus and ovaries, 

make sure they don't have any new hitchhikers.

I travel to a nearby town to check into the local hospital to 

have my pelvic ultrasounds.

I have found a great tech, that tells me what she sees before I get my results.

I take her observations as a no need to panic foreshadowing.

I spent too many years worrying after the exam whilst waiting for results.

So I found a person who will tell me if she see changes or give me a heads up.

She is awesome that way and has a similar fibroid and cyst situation.

We are in a sisterhood like that.

She offers respect and compassion that I seek on this crazy reproductive journey.

Today she told me a story of a client that came in last week for a pelvic ultrasound:

A woman came in kind of drunk she said....

she was wearing a skirt and cowgirl boots.

She told the tech that she was a little drunk that she choose to drink some beers 

for her 30oz of clear fluid to prep for the pelvic ultrasound.

(I giggled and wondered why I never had thought of that, that makes for a personal party out of a sucky medical exam.)

After the external ultrasound, she emptied her bladder and hoped back onto the exam table in a hospital gown and her boots.

The tech thought, OK I guess this is how she rolls.

As she was performing the internal portion of the exam she proclaims to the tech:

"you know my husband always wants me to keep my boots on, and I always say no....

 But for you I kept them on! "

Ahhhh the clarity of alcohol

and a vaginal probe

Ch Ch Changes

So remember way back in June I mentioned I got my blood tested and it triggered concern from my doctor about my cholesterol levels?
 I was all pissed and mad and ended up starting this yoga-addiction I am currently in?
I also:

stopped eating cheese
 stopped eating bread

stopped eating whole eggs
(eating only whites sometimes)

stopped eating ice cream

  stopped having the occasional drink

I started taking a vitamin daily and extra Vitamin D

I started to exercise 3-4times a week

I started eating only vegan 5-6 days a week (I am human for goodness sake)

I restricted everything that went into my mouth/body

 

joke: How can you tell someone is vegan?

a: don't worry they'll tell you 

my answer was : they are grumpy and want an ice cream

 

Well, I went back to the doc this month, as an advocate for myself and to see if I could eat goat cheese again and if any of these extreme changes was doing any good.
I mean, if this evil self experiment was really making no difference
what the fuck is the point of being miserable?
(with the food restrictions, not the yoga)
It turns out I am making changes, but the levels could drop some more.
My doctor told me "with all these measures for three months, I might be fighting "the inevitable"
A family history of high levels."
*sigh*
"If I want to stay off medicine for correcting it, keep doing what I am doing and add an Omega-3 supplement."
 *sigh*
and "BTW you have lost some real weight too...."
(well yeah, I can't eat anything fun anymore)
Can you tell I am a little bitter about this.

So here is where I turn lemons into lemonade:
I learned how to make "cheese" from nuts...well, cashew cheese.
I can now have a comfort "quesadilla"
I am learning to be that person who gets to live with a restricted diet,
I am choosing to accept it at this point.
I don't want to take medicine for cholesterol
Instead I get to take four big supplement pills with breakfast and my meals look like this:

Pistachio Mint Smoothie and a handful of almonds:
Local Pistachios, Fresh Mint Leaves, Banana, Agave
Nectar and Homemade Raw Sprouted Almond Mylk



My lunch box:
romaine, corn, lentil salad and homemade cashew cheese balls

dairy free/soy free yogurt, fresh berries and a vegan toaster waffle

my lemonade:

I got myself a
"congratulations on the three months strait of yoga girl,
those 4:30am wake-ups are a bitch "
dress from modcloth.
It is grey with little pink elephants in wine glasses all over it,
plus I am going to wear it to a wedding and
I had been drooling over for a long time, and even though
I didn't have the money for it,
I said FUCK I have had enough bullshit in my life to let that stop me.

SO The Barreness has taken control of my uterus, my family history has taken control of my food loves and now I am taking what I can back.
I am now a relectant vegan....ugh

Still processing

 

I am still filtering through the anger and hurt that my family bombarded me with.

The lingering residue that I have made bad decisions is what I am trying to scrub off.

 

Some choice sentences that I am working on letting go of are:

 

We are so greatly disappointed.

 

You can use my uterus

(a loving gesture, but when offered after almost 10years and from behind a glass of wine.

 It is hard to not see it as really a selfish plea)

• " You should be sympathetic to your friend, she must feel so guilty for being able to get pregnant so easily. Especially when you couldn't, I mean that must have really hurt her"

• "you can have my kid"

My response: there is a joke saying, if you keep offering me your kid I will show up at your door with a lawyer and adoption papers.

" I am serious, I would consider it"

(ARE YOU FUCKING KIDDING ME!)

• "Even though you are not a "fill in religious preference" like me, I know you are still a good person"
 
• "If you can get past a baby not looking like you, the adoption process is really fast and easy. You shouldn't close that door so quickly."
 
• "More grandchilden is always better"
 
• "Why don't you just have some more surgery and remove your problems and then use IVF and try again. The Barren probably wants that and is just afraid to tell you."
 
********

I remember saying at least four times,

"After 8 years and 3 miscarriages, we decided to stop the heartbreak. Adoption never fit our dream of parenthood or our belief system. Becoming parents was never about just "getting a child"

this was met by blank stares and "easy fixes"

I realize that a lot of what they were saying was really them grieving, their losses in this scenario.

I also realize that they made me feel horrible and like it was all my fault, which it is not.

 

I am very glad it will be a long time before I need to sit in the room with these ladies again.

They have a lot of issues to work out.

 

 

 

 

 



Currently Processing....

I was sitting alone on the porch of a rented home, listening to the rain, focusing on the person we were gathered to celebrate.

She died last October of rare form of lung cancer, never smoked a day in her life...

and would have been 47 years old this day.

My step Mother in law comes up and sits down in the chair next to mine. My SIL follows her and leans against a handrail on the porch facing me.

 

" The Barrens' father and I have kept quiet about how so disappointed we are that you and the Barren didn't adopt. You know we think you would be AMAZING parents....it is just too bad. You know you still can. I have a friend that runs an agency in San Francisco"

 

I turn to my SIL (The Barrens sister) who has now consumed over a bottle of cheap wine, her lips and teeth are stained purple. She begins to sob: " Have you two ever thought of having someone else carry your baby? It was so easy for me, I feel so badly that it was so easy for me and so hard for you"

 

I took a xanax after we got back to the hotel, it felt like I had been punched over and over again.

That damn Barreness snuck into the party and used others as her puppets

 

Doing things different...

 

I am having a REALLY hard time focusing on much of anything right now.

I tried to work in the studio all weekend, but ended up looking like a crazy lady starting something here and walking away to stare at the sky and then come back and focus for another ten minutes and then decide to do laundry or wash dishes.

I know my brain is overwhelmed.

 

BUT

 I know that all those years of therapy have done something, as I realized that the first time I fucked stuff up and that it is not how I want to do it things time.

 

I am doing things different then when we got our Infertility diagnosis.

Then we told no one for a long time. We suffered together and pushed many friends away not knowing how to ask for help or support.

 

This new struggle we are facing things differently.

The Barren and I seem to be tag teaming out emotional breaks, so that we can be there for the other. He has shared his recent news with friends and parents.

I have shared my news with just a couple close friends, but I am so glad that I have

...I am too unprepared to share it yet with my parents.

and scared

 

It feels different to have told these selected few, better I guess.

I know that I can text a grumpy face to a friend and they will totally get it.

 

I am still having panic attacks, mostly at night when things are quiet and

I am alone with my thoughts.

The Barren and I are a good team, we have walked through hell before,

and still have legs.

I know we can walk through hell again and still have each others hand to hold.

 

It doesn't feel good to have this sitting over our heads

I don't have to like any of this or be OK with it

I am afraid for my love

I am afraid for myself

I am still very afraid.

It is not what you think....

"You didn't drink enough water...your bladder is not totally full"

(pointing to dark circle on screen)

"I drank two 16oz glasses and a mug of tea...."

"it is OK, this will be fine."

 

*****

 

The Barreness: " if I bring a DVD can you make a movie of this like you do for the others?"

Frank the dildo cam man:" well we normally only do it for pregnancies"

The Barreness: "Well, this is all I have"

Frank the dildo cam man: Silence, then ..." I don't see why not, sure bring one next time. Would you like a photo from today?"

The Barreness: " Yes please that would be wonderful, thank you"

 

You can clearly see the barnacle on my left ovary
that is needing all my attention

I am going to bring a DVD to my next appointment in 6weeks. He went thru the process like an automated man, it was clear that he has been an ultrasound tech for 30 years. He works in a fertility clinic, where he does a myrid of jobs with his ultrasound equiment and

 little ol' me was the hiccup in his day.

 

 I made sure not to drop it or scratch the surface while I visited the bathroom again before leaving for my drive to work. Although it appeared that I didn't have a full bladder at the beginning of the exam, I had to stop three times along my 40mile trip to work. I looked at the precious image every time I got into the car and each time I had a little vision of what it must be like to see a baby on that paper instead of my I-need-to-be-a-little-bitch-to-you ovaries. I sent the image to The Barren and although we both agreed it was super cool to have the image, it was also kind of sad.

 

I knew that in the long run I would regret not getting the image.

In the meantime I can forget it in a book or just kind of misplace it for a while...maybe.

At the present, I seem to be totally transfixed on the side by side images, wondering how something so small can rule so much of me. He wasn't able to get a good pic of the big girl (uterus) as she has a split personality and it harder to get to smile for the camera.

 

Today in the news....

* another soapboxy sort of post*

 

 

ok so all sorts of crazy stuff swirls around us daily and personally I try to navigate around the fake news stuff....like movie star dinners out, sports team negotiations, and telephone releases (sorry) ...but I do follow medical news as I am really bad at taking vitamins and I am always curious about how to make up for being a dork about simple things.

 

Anyhoo, I saw this today:

 

Mother-to-daughter womb transplant

'success' in Sweden

Doctors say the operations will only be considered a complete success if they result in children

Here is the whole article for those who want to read more

 

um, no pressure or anything...and WOW

this is clearly highlighting the lengths and heights women will go to in an effort to get pregnant.

I admire the trial, but I am also heartbroken by it.

When will it be enough? How will you ever know when you have "tried everything",

or crossed off everything on your list ? Is it when you are left as a mere shadow of yourself

feeling totally defeated?

I am often thankful that The Barren and myself made these clear defining lines before trying to become parents...so when the emotions were so thick, and the sadness was so dark we were able to make choices.

I admire women, I care about women and I am often concerned about women who fall down the rabbit hole, and get lost and overtaken on the path.

Directed by empty promises

.

I know many of these women get pregnant, and many have chosen to take these paths.

It was not a path we chose, but I am not your enemy, nor am I judging you.

 

I am just concerned about how doctors seem to take advantage of couples.

It is those that I am referring to...I am most concerned about. 

 the all cards on the table, all the chickens

The all to familiar story of: 

"Well first you have to try these four things that will most likely not result in a pregnancy first, break your heart into a million pieces, finance yourself into a hole and then dangle a carrot just out of reach so that you are always feeling like you have never done enough"

I can only image what these women are about to go through next, their mothers gave them their uterus and now the doctors are pacing to see if they can get pregnant.

One has already had her path face cancer, another wasn't even born with a uterus...the emotional expenses so far are huge!

I am sending out love and strength to these ladies, I am sure your road was not easy up to now, and I fear it will continue to be a bumpy ride.

 

BIG love your way

 

Information Gathering

Today I went to an appointment that I have been working on not thinking about for weeks.

I did pretty well until Friday when the paperwork arrived in the mail.

 

I had a consult with a specialist about my cyst (Quasimodo) the one that has been camped out for years and refuses to change or go away. My doc, as a precautionary measure wanted me to get a second opinion that my " hell no you can not go for a scenic drive around my pelvis and pluck whatever you damn well please" watch and wait method was still safe. I understood and quite frankly with all the health issues with family and friends as of late, I needed to step up to the plate.

It was a 6 week wait to see this doctor, and after my visit I see why.

 

I awoke early and as I sat in bed trying to figure out what time it was The Barren said so what are you going to say? I said I was going to ask if I was in mortal danger with my current modus operandi. He said " she is going to tell you, you need surgery...what will you say then? " Sweet man, playing devils advocate so I could prepare my speech. I told him that I would say " that is not an option for me, what is plan B, C,D, E or F?" He kissed me and said " good luck"

 

I arrived with my folder of past test results from 2004 to current and sat and waited. The office filled with mid-pregnant women and the door between the reception desk and back exam rooms was constantly swinging open as that same group of women were in a parade circle to the bathroom.

 

Free samples for the pregnant gals, sadly no drinks were offered to the rest of us.
Is there a suggestion card around....

 

I was called in and I could feel my heart beating so fast, and hard, I was terrified that I would not have the conviction in my voice to speak up in the face of this newest doctor. I was told on the phone that it didn't matter where I was in cycle that as it was only a consult, I was not going to be examined. Well she was wrong, large paper napkin in place, I did the modesty wiggle to unfold that paper as far as possible and then wrap the ends around my hips so my arse was not blowing in the wind...cross my legs up under me and resume some sense of dignity while I sat and waited some more.

 

I heard my chart removed from the outside of the door and she sat with it for a fair bit of time, in fact I was taken aback how long she read it....then she entered the room.

We said hellos and then I told her why I was there...careful around the word " get another set of eyes on it" as I was not opening the sightseeing tour just yet. She asked how my quality of life was, daily. Asked what my periods were like, then she asked another question:

 

Doctor Lady: " so you have stopped trying"

 

I sat there thinking about Nicole's post, feeling like my heart suddenly got a lot heavier

and in my next breath I said:

 

The Barreness: " it just didn't happen for us the way we wanted." 

 

Doctor Lady: " so you have come to terms with that "

 

I took a deep breath, and said

 

" as much as I can, it is something I work with everyday"

 

Doctor Lady: " What I mean is, you are not here to ask me to help you try and get pregnant"

 

The Barreness: " No, it can not happen the way we had hoped. I am here to make sure that my quality of life is maintained and that I am not putting myself at jeopardy"

 

Doctor Lady: "That is very brave of you, that is something very hard....do you have someone to talk with about it?  like a therapist or friends...you should not try to handle it alone"

 

The Barreness: " that is the most compassionate thing any doctor has said to me about my infertility, thank you. That was very kind of you"

 

Lady Doctor: " I am really sorry to hear that, really, that is sad"

 

She mentioned what she thinks I have is an Endometrioma and that it can be removed, if I ever want it to be...but if I am comfortable and only in hell a few days a month, and I am OK with that we can forget it. She then mentioned my lovely heart shaped uterus and mentioned that that is the most likely culprit for my losses. She mentioned that that could be removed too.
I told her I understood but now that I am over 40, I have changed paths...realizing that those were options (that were never mentioned to me by the way) for me at 34 when I started trying to stay pregnant. Reality is my eggs are older, and most likely pissed off at me and so I didn't need to invite Pandora into my life. I have had enough heartbreak and pain and loss.

She said she understood.

Scary shit you can be tested for...

 

In an effort to remove yet another scary option off my checklist, I gave a vial of blood for CA125,

she said that endometriosis can show it as an elevated number but she felt confident that she could tell the difference between endo and a cancer. So I did that too...not thinking about that either.

 

She gave me a feel, furrowed her brow while I tried to relax and told her I would add her to my list of people who have felt my uterus.

She ordered I get new ultrasounds, one as soon as my next period is over and then a followup 6 weeks later. it was important to start the plotting of the cyst and make sure it was not changing at all. My every four months was not close enough together...ugh

So I have those transvag days to look forward too into the holiday season....HOHOHO

 

Today is also the anniversary of my Nana's death. She left 6 years ago.

I mention this because what I did next is directly related.

When I was in the middle of finding all this sadness out, and being a medical guinea pig

I had to tell my Nana that I could not have kids.

She was not an emotional woman, in the sense that she didn't cry or hug.

Not a babushka kinda grandmother.

My Nana, liked men, drinks and sex.

But...

When I told her, she looked heartbroken and so concerned...

it made it almost unbearable.

She reached out and simply hugged me.

It was the best gift from her, knowing she loved me so completely.

About a week later, she sent me a card, in it was some cash.

The card said:

" Go get yourself something pretty, it will help you"

Classic 50's gal, pretty yourself up on the outside and it will start helping the inside

So today, after the appointment, I bought myself a couple new blouses.

I even got one for a friend that I know needs a little pick me up too.

thanks Nana

Lottery Ticket

My hubby is sort of coming into himself these days....

he is rethinking what makes him happy, what brings him joy,

what he wants to do and how he can follow that;

regardless where he spends his days.

Since the appearance for the work for my show

and

his inclusion of his lullaby,

he has really started to take in the harsh reality of being a family of two.

His reality checks come at strange times for him, and they are never welcomed.

His job has him working in a traditional open room, filled with cubicles; each space personally decorated with a combination of office possessions, plants and family photos.

His company is progressive and has family days, bring your kids to work day, family activities and maternity and paternity leaves.

We will not be using any of those days or do we attend any of those events.

On a recent bring your kids to work day, the company had a play room set up and encouraged workers to take shifts watching the kids play and visit with other coworkers and children...

I got a text saying:  "OMG I forgot it was BYKtWD"

My sweet man was cornered by a co-worker asking why he was not offering to watch the kids?

he simply replied "um, I am just not into that"

the co-worker then said "you don't like kids?!"

hubby said: "actually we tried for a long time to have them and it didn't happen, so I am not really ok around kids"

to that the co-worker said: " oh "

and walked away...

leaving hubby gutted and wanting to disappear.

He is asked repeatedly if he has kids; he has the classic co-worker who has just returned to work from having a baby, she works on the other side of his cubicle; cooing and evangelizing how much better her life is now that she is a mom. Her audience is her boss who is a new dad, so they talk on and off all day long about how wonderful their lives are now.

Yesterday I got another " help" text

Yesterday a young coworker came flying up the aisle of the office waving a piece of paper proclaiming that she has great news. Hubby works with her, and so he peeked out of his cube to see her and the paper picture of her uterus with new dark dot.

He said on the ride home last night that is was really strange for him, that he wanted to be excited but all he could think of was how, "she won the lottery...

A lottery that most people win."

It is at times like this that I often fall back into my own thoughts of shame and guilt.

Ones where I wonder if he should find someone else and start a life with her, make beautiful babies and live the life he was suppose to.

Not one with my faulty uterus and ovaries.

Sometimes I ask him, if he feels cheated or wants to find a new life...

not quite sure if I am really prepared for the answers.

But every time, he looks me in the eye, and tells me he

would rather walk this road with me than any road with anyone else.

For that I am thankful...

even if I never fully get over feeling guilty about it.

I have no words of comfort for him, I know they don't work in situations like this.