Carried Away

warning: heavy post

 I am learning more about the human brain and grief than I had ever imagined.

My most recent adventures have taken me down roads of cognitive medical reading, personal wondering and expansively painful learning.

My father had decided he was going to have the surgery after our visit to the neurologist. The doctor pretty much said, aside from fear of the surgery (which is normal) why NOT have it. At that " suggestion" my father said, fuck it schedule the surgery. 

I was there asking for alternatives and finding out that his long term headaches were probably the start of this who event. After ping pong visits between the neurologist and the neurosurgeon it was shown on MRI scans that my father actually has a lot of atrophy of his brain and so the surgery was not the safest option or the preferred route from the surgeon. So back to where we started and watching his cognitive decline and body function loss up close.

(below text written in stream of consciousness)

I have just finished two of the most challenging weeks with them. My father had a yearly check up and the doctor seemed fine with all he was doing; which seemed like a cursory look at things but I was exhausted and my father had been coughing all day. Doctor listened to his chest and said it was clear. It ended up keeping my mother up all night and she was already running on almost no sleep. He then states when we return that he "isn't feeling well" I say if things are not better soon we are going to a walk in clinic. The weekend that followed was all coughing and my brother took him on Monday, because as an immune compromised person he wanted to make sure I was safer until we knew more and it was bronchitis possibly the start of pneumonia. By Wednesday my mother on a call with me coughed and I returned to town to take her to a clinic that confirmed she had pneumonia, and Friday I returned because she was worse and then we went to the ER because her symptoms pointed to C-diff and she hadn't eaten since Wednesday after the first appointment and my father had decided to stop eating and then the ER, who said she had a viral pneumonia and then we were there again Saturday to watch them eat, because now neither of them was and then Monday and Tuesday my brother and wife took food to them and I spent all day calling non-profits and doctors and learning about Medi-Cal and being overwhelmed with tasks and calls and then Wednesday took my mother to a psychiatrist to see if she could start her SSRI's again because she stopped ALL her meds cold turkey a couple months ago including her zoloft, which might add to why every interaction with her was her crying. Sitting in the office for her meeting was strange, but even stranger was her new dementia like memory looping of phrases and memories was heartbreaking. The doctor said with her level of depression it was common and should start clearing when her new medicines start working. Then Thursday meeting with the exterminator for their home who said we need to replace the dilapidated garage door because they can't help if there is a literal open door for rodents. (it was not a surprise or a shock) So my brother is taking charge of that. A physical therapist who only came for 10min that day and sent me into a mental rage and then finding that a very important document for my father had expired and that stops the process of the other big project. So yesterday was all day of online renewal forms and finally signing documents for in home help that we can pay for out of pocket and ideally that help, will start Tuesday. More meetings Monday and doctors appointments Tuesday and managing schedules and paperwork and answering phone calls and texts from family who want to know all the details....and then ask if I tried x, y, or Z. In the end my mother told me I was really good at the "handholding" I was doing for them and I should make it my job. I said " I'd really just like to be an artist"  and she said " you can be creative with it, the caregiving....That was the javelin into my heart...and I kept a poker face and waited to get into the car and drive away before crying. The diapers, the food fussing, the medications, the water reminders, the doctors offices, the questions and suggestions and assumptions....remind me of my infertility days. The casual suggestions about adoptions and sex positions and the  'if you just" or "have you tried" and the banger "have you considered"

I only made yoga once last week, I am currently sitting in my workspace trying to catch up on normal things, like laundry and bills, but I have gotten 4 calls from the parents already and I am still trying to imagine my work. 

Trying to see it in my minds eye...imagine making it, breathing deeply and feeling content in the process. Telling myself that life isn't passing me by and my work still matters and I still need to make it because although all this time has been stolen from me and my partnership....it really does matter and things will change soon and I can use all this energy to make my own art.

Grief

 I have found that my recent doctors visits are causing a wake. I am spun for a couple days after the visit or test. It seems to be more obvious to me now. Maybe it was always like that, but I wasn't as tuned into myself before...but it is like a neon sign to me now.

I can mask fairly well during the visit, but afterwards, it is like a crash. I want to cry and hide and be taken care of. None of which are realistic anymore.

Having to receive monthly infusions now has challenged my sense of self and belief in my strength.

Am I really a strong woman or have I just made myself into a character in my mind? A woman that can handle anything thrown at her. A woman that can balance all the dishes and dance steps. A woman that can smile no matter what is being said about her. A woman that can walk into any room with confidence and poise and carry on a conversation with anyone there regardless of the topic.

Now I feel like a shell, I feel broken and covered in duct tape to hold it together and no one seems to notice because I have enchanted them for so long, they can't see me any other way.

When I saw my doctor last I broke down on the exam table telling her I was overwhelmed and she told me to be thankful of all I have. It felt like a slap in the face.

When I started getting my infusions over a year ago, and all the tests prior to that, I had drawn a line in the sand, that I don't want needles in my hands. I had a horrible experience many years ago from an ER hospital visit where I got a series of small hard lumps in my left arm that took months to resolve. I was in so much pain from them that I told The Barren that I NEVER want an IV in my hand ever again. My line was upheld with one exception, my endo surgery back in 2012.

Yesterday I had to cross it again at my infusion with a new nurse.*

Tuesday (the day before) I went for an MR enterography. For mine, you have to drink two and half bottles of thick fluid that lights up your gut, and then they give you medicine to slow your gut down, and then inject you with contrast, and take a bunch of photos face down in a MRI machine. The nurse tried multiple times to get a line started in my arm, before declaring it done, all the while my left arm, was left sore, swollen, bruised and an unviable option for my infusion the next day. 

*Hence the need to seek new veins.

When the infusion nurse said she'd be gentle and not leave a mark, I had to fold...I had to get my long fought for medicine. My self advocacy tank was empty, what choice did I have?

I quickly set into play a weighing of the options in my mind and thought, 

Ideally this decision will not land me in the ER again. 

A phrase I use far more often these days.

After she placed the IV she stepped away to attend to other matters and I shed a couple tears...I told myself to hold it together until we were somewhere else. Somewhere softer than an artificially lit room, with artificial plants devoid of images, and filled with the scent of rubbing alcohol. I think I was able to wipe the teardrops without being seen. The Barren sent me a text message shortly after that promised I could cry it all away that night when he got home. That idea gave me some extra bravery and I sat a little taller.

Two hours later I was back in my car, and driving to the hardware store to pick up some plants to put into the soil on my patio before the wave of fatigue hit. I went home, ate some rice and tofu and sat in silence. Then around 5pm, The Barren called and said he could not make any more choices for the day and so I called in an order to the local Vietnamese restaurant and The Barren picked it up on the way home. He then told me about how horrible his day was and I listened and told him I was sorry he had a rough day, ideally things will be less stressful now that he was home. My arm was itching and aching from the day before and I think I hid that from him too.

I ended up falling asleep on the couch while he watched something on YouTube and then crawled into bed, asking him before falling back to sleep if he thought I was strong.

He said: you are a warrior, you have had to fight for so much.

This made me sadder than I thought it would. 

Infertility has taught me a lot about grief, and sadness appearing in new and unexpected places. It has taught me how to speak up in medical spaces and ask questions, but also fortify myself for the answers as they are often ones you don't want. It has marked me in ways seen and unseen.

The new infusion nurse told me that I had such a calm serene energy about me. I thanked her and realized that my outward self was on display and that my inner dialog of tears, duct tape and sadness was hidden from sight, thankfully.

Published

 

Many years ago I had some work in an art of infertility exhibition, it was far from me so I sent my work and got to see photos of it on display with other artists work about the same theme.

A couple of years ago I was approached by a research group about my art project and my experience with infertility. I answered some research questions and thought that was that. 

Then last year I was approached by that same group and asked if I could share some art and a statement from my show. 

I did that as well, seems that their research, PHD paper was going to be published and created into a book and would I like to be part of that.

Thinking about my mark in the world I was cautious but open to the idea and wanted to hear more. Then about 8 months ago, I got paperwork from a university publisher, it had some bad wording in it, and I told the project I needed to decline on the opportunity. Turns out standing up for my self and my work had a positive effect, as other people in the project objected too and so the contract was rewritten and there was a green light.

Well, here I am sharing with you that the book has come to reality and has been made and is releasing later this month! All the artists/contributors involved retained their copyright and were "paid" in a single copy of the publication. 

The book is a beautiful collection of stories of infertility from a myriad of perspectives and it is heartbreaking and beautiful, and my artwork and words are collected in it.

It is quite surreal, and a deep wonderful thing from so much loss.

There will be publicity events all across the US, and I have agreed to be available if there is something that sits okay with me.

You can read more about the book: HERE

Book name: Infertilities: a curation

Forked

 

I'm exhausted

I have made it to the other side of the constant testing, I think.

The harrowing MRI turned out fine, nothing bad found, no new information.

So for the record, these MRI's are crappy ways to spend $100 at a time.

anyways, that part seems to be done.

I had my annual check in with my GP physician yesterday, I was assigned a new one.

When she entered the room she had a long list of notes on me as she had reviewed my record...kind of.

I spent most of the appointment watching her chart my current situation.

She asked a couple questions, I didn't have to have a pelvic because another department does those now and when she started telling me about my dense breasts, I told her I pay outta pocket for those ultrasounds too. I was overwhelmed...

I do know that at one point I said that "this was easier than my decade of infertility"

 Between you and me, I was still quite overwhelmed and feeling traumatized.

She stopped everything, looked at me, dead in the eyes and said:

Are you feeling underwater, do you feel like medication would help?

I was sort of taken aback, I think mostly by how close she was to my face, and the unblinking eye contact....but I said I don't think I am there yet.

She said things like: manage chronic illness and you are a menopausal woman 

If those weren't enough lovely gems from the visit she went on to tell me that she believes I have a secondary disease with my UC/Crohn's 

Hyperthyroidism.

She scheduled me for a bone density exam, I got a breast exam and then it was done.

I got dressed, got three shots and went to my car to cry, again!

I am spun...I am in a land I know, but all my markers are not familiar to me.

I go to all my appointments alone...I am not sure if a parent, lover or friend would have made this any better...but I know I am not okay.

In fact:

Stick a fork in me, I'm done.

So here I am a leftover, emotional mess.

Not knowing which direction to turn first.

I did have a good start to the week. 

I am not going to leave this post without sharing good things too.

I met with a curator for the yearly exhibition I am thankful for being invited to for the last 13 years. 

I was juried into it once again, and over the moon about that.

If that wasn't enough, the best part was that I got to show some work in person to the gallery and I will be in another exhibition in March! 

I am scrambling to make a lot more work between now and then.

That was a good thing.

So in between battling some serious self doubt, creative blocks and just straight up sadness I made something of interest. Something unique.

Now, if I can only stop making new diseases for my body!

Overgrown

 I've spent the last couple of weeks in online summits.

Art Summits mostly, ones I would have never been able to travel to pre-pandemic, so these online options allowed me to attend demo after discussion by many different artists and see studios all over the world and watch new processes and then rush, triple masked to the one art supply store 40+miles away and purchase new supplies with my squirreled away funds.

I have always loved school and these online events are perfect for the extreme introvert I have become.

I can sit and watch in silence or type questions from behind my on screen name or turn on my mic and ask questions. One of the best parts is that we are a whole community of introverts and socially awkward people all wanting to be together unseen and unbothered.

my people

I also popped into the Chasing Creation's Childless Collective Summit this week.

This was a summit over four days that was crazy organized, beautifully put together and filled with resources for the childless.

It was something I had wished for when I was at the start of my journey into finding who I am now.

I watched some of the recorded presentations and could not help but feel like, well it felt like I felt when I finally read Catcher in the Rye when I was 29...

I am too old of this...I have outgrown this part of me.

I was listening to lectures on navigating pain, 

dealing with conflict

making decisions about ending fertility treatments

Discovering who you are

finding ways to heal

finding a new path.

ALL FANTASTIC and interesting and I encourage you to check it out too...

but I kept saying to The Barren

" I feel like I am past all this now. I am entering menopause, I had to close that door years ago.

I guess I figured out this stuff on my own....I had to"

Time marches on regardless...we all gotta figure out if we want to keep walking or stand still.

In other "Deal with this news..."

Another couple quarantine babies are cooking in two yoga instructors. One appeared while I was in my weekly park yoga class, and seeing her so full with baby; made me want to pack up my mat and run/leave. I guess that part of me will never change. 

I feel like, I have walked into the wrong room and saw something that was forbidden...

It is a visceral reaction, and although I don't even know her, if I could hiss like a character from a bad vampire movie I would, 

before trotting off mumbling under my breath about how she was luminous and so lucky.

The Barren has gotten his first vaccine shot, as he qualifies under "underlying health conditions", I am still waiting my turn, and quite frankly...I am ok doing that. There are a lot of people who should get the shot before me and I recognize that. I also know people who have jumped the line and gotten one ahead of others. 
My parents get their second shot this Thursday and I am happy for them to get it and maybe resume a small social circle of chatting at farmers market with friends, or seeing movies in the theatre again.

My brother has so far decided to not get it, and that makes no sense to me, but I know a lot of people feel this way...so it really comes as no surprise.

2021 has been more like a 2020 version 2.0 for me, nothing surprises me anymore.

I seem to feel like noting can stick to me right now, 

stress washes over me way too easily and I spend evenings sleepless

I awake with panic attacks

I just deal with them...what else is there to do?

I am making things, eating greens, drinking water, meditating, bathing myself....

I am in a holding pattern for sure.

But somewhere, someplace inside, I feel like I'll be able to flee 

run away, and find new things to look at...

The Letter

"Yoga Goddess, 

I have debated reaching out...but felt it was important for you to know that you have a secret ally in your corner.

I am sorry life is sucking so very badly...

This is not the way you imagined....anything.

I can not imagine what you are going through, but I can empathize as we spent nearly a decade trying to build a family.

When we were trying there was not a lot of resources and still a lot of stigma.

I found this site very helpful for resources and knowledge:

she has organized everything (left side) under topics and it might help in some way.

https://www.stirrup-queens.com

Please forgive me if I have overstepped or made you feel like you haven't thought of this yourself.

I am happy to answer any questions you might have or 

help in anyway you might find you are in need of.

I continue to be a dedicated yogi, and friendly face in the crowd.

Smiles and hopes,

The Barreness "

I was haunted with words of advice for the owner of the studio I practice at when:

 she made the start of her IVF journey public knowledge. 

Then came the public spreadsheet of drug costs 

and 

then came the crowd funding page set up by a friend. 

I was going to tell her that pain does not equate your desire to be a mother.

That simply putting the desire out was enough 

but then I realized that she is most likely getting an earful...so I sent the email above.

She responded soon there after, kindly:

"Thank you so much Barreness this means a lot to me!

I’m proud of you for reaching out, and so happy you did. 

I will definitely check out the site you sent over. 

Love you tons!

Xoxo

Yoga Goddess"

At the end of the day I saw it as a call to action.

It was more important to reach out to a fellow woman in need than

sit and watch how this all unfolded...

The Debriefing

Having a miscarriage at 48 is very different than one at 36

My body reacted differently

My mind was in a different place

My heart was in a different place and settled in a new and different way.

I was numb for a long time

almost like my whole being went into a fight or flight reaction

from information long ago learned.

I postponed my yearly physical by a week, 

The Barren will be traveling during the original time 

and I didn't want to be alone when I got back home from another doctor visit.

I am done with doctors

but I understand I still need to advocate for myself,
so I still get all the required check-ins 

so I am not as rebellious as I imagine myself to be.

In the week, when the bleeding finally stopped, I went back to yoga with a gusto

and I found myself saying to myself....

" be kind to yourself, you just had a miscarriage"

I was trying to be kind, to excuse when I felt weak

I waited for the bleeding to stop to tell my parents, 

I felt a heavy weight to share it with my mother in particular.

When I did tell her, I heard myself explaining in great detail that there might not have been an embryo in this miscarriage, reassuring her I was alright and that I was responsible and had many doctors tell me that I was in no danger.

She said she was sorry that I had to experience this again...

I told her I get to experience and process loss

that is what I get to do in this lifetime.

She shared with my father what happened and he when he heard my voice on the phone,
he said:

" I am so sorry, I don't know what else to say about it"

I told him that was perfect and thank you

then he told me I was a strong woman, 

this made me almost totally collapse into a puddle.

I haven't seen them since sharing the news, that is unusual.

I called and checked in a couple of time afterwards, to make sure all were alright

I think this has highlighted a couple things for me:

I am older

I can handle loss, repeatedly 

I am stronger now because of what I have experienced in the past

I can 

I am also able to let myself grieve 

I feel in many ways it might have been a sign from my body that I have crossed the last line of fertility. Even when I thought it was past, this was the final proof of that.

I had a dream before this all began, and I had seen myself dead in photographs

Like and out of body experience of seeing myself in a dream

when I looked up the meaning on several dream dictionary sites, they all said the same thing:

"In your dream you see yourself dead, at first you may think this is about you being dead. However it’s not, this dream is about you moving forward into being a new person.

You are growing and maturing as a human being and you’re ready to move to the next phase of your life and you’re ready to leave the old you behind.

This type dream is important because it shows that you are growing and developing your spiritual side and gives you the message that you’re headed in the right direction."

I am taking some comfort in this knowledge from the greater sources

Spent on the sidelines

***Trigger warning***

Miscarriage

So I went to the doctor

I must say the level of kindness at the doctors office far exceeded my past experiences 

so there is a "good on you" sticker for them.

I was asked repeatedly if I was alright, and that they were really sorry.

I did express how even after all these years, I was able to find and access that deep sadness and numbness without any effort.

That is a shock still.

I peed in a cup

Had my temp and blood pressure taken (both elevated)

I had a pelvic exam

I was asked to recount what I had experienced over the last two weeks.

I like to give deep details in fear that something would be left out that was needed.

The nurse practitioner said she had ideas about what might be happening

I had all the signs of a miscarriage, but also unstable uterine wall

also peri-menopausal response

My fibroids or cysts or endo acting up

also she didn't know...

but felt that the longer I was on BCP the swing in hormones 

would eventually taper the bleeding.

So I went to get a blood test to check my 

HcG levels

My FSH

and my iron, because I kept saying that I was really tired.

I also had an order for a pelvic ultrasound.

I was the last appointment for the blood lab before lunch break.

The lady that drew my blood was saying how hungry she was over and over again....

and then as she was taking my blood said:

" I have a really good feeling about this potential pregnancy"

I said, " well, that's good"

and told her to enjoy her lunch.

I left and drove home to fall into a puddle.

Dr's office called the following day to say I am not starting menopause

(at least via hormone levels)

I am anemic and to take a multi vitamin and eat iron rich foods

and the lab didn't run the HCG blood test for some reason...

Did I ask them not to?!

And did I still want to do that.

An additional four days had passed and I told her no, 

I didn't think anything would be left to see.

I am now about to go and have my ultrasound

I am anxious and nervous about my cysts and fibroids having changed.

I am still spotting, and I know this ultrasound tech.

She is compassionate and listens and gives me a heads up 

if I need to be concerned about something she sees.

I am off to drink my water and get probed.

Then, then I can feel unpoked for a couple weeks before my annual checkup

In the meantime I will work on feeling more connected with my body again, as I currently feel quite removed from it....like I am watching from the sidelines.

Dazed

**Trigger warning**
miscarriage

photo by Mary Ellen Mark

It has been a strange cycle...

and it seems to have revealed why.

I have miscarried again.

I am quite confused and shocked

I have been bleeding since last week.

and then last night it changed and this morning it was all tissue

...lots and lots of tissue.

I have some cramping, and I feel numb.

In fact it has been so long I looked up the signs, just to see if I was imagining them. 

I have all them...textbook perfect early miscarriage.

The Barren is traveling for work, and although I want to tell him,

today is a busy one for him and he doesn't need to be worried about me.

My bestie is at work too...so I don't need to tell her yet.

So I am here, telling you.

I didn't think I'd have another 

experience this again, and the weird numbness that goes with it

I have been on my pill for three days, but the bleeding hasn't stopped.

I hope it will taper off  now.

I will skip yoga tonight, and wait for the bleeding to ease up.

I am just going to be quiet and kind to myself.

I have studio work to do, that is not hard or vigorous.

I am okay

just stunned 

and maybe a little sad too

I think I am trying to hold it together until I can cry into a shoulder.

Invitation

You are not invited, but only because I know you wouldn't come anyways...

I tried to keep it classy and a little sassy.

Thinking Disco Dancing Thoughts to keep bullshit like this at bay

Sitting and thinking

I have been doing a lot of thinking recently.

Some days it manifests as napping, or seated meditation or wall staring. 

Regardless of its form, I have been doing a lot of reflecting.

I think my rant (previous post) got under my skin...

and seeing it there made me realize I was upset over things that I really don't have space for.

Nor, do I want to have space for...

As I have been aging away from baby-making years, 

I find that the first few years (10 or so) were beyond comprehension painful.

I found depths of sadness I never knew existed.

I almost slipped forever into those places, never to return.

I will never forget those times, although they are years away, they are very close still.

I am thankful for that minuscule/tiny spark in me that said to keep fighting...

keep being a badass, a noisemaker, a warrior.

As I am much farther down that path, 

I am thankful for my bodies ability to heal and recover 

and find new ways to make me fall in love with it again.

I can be okay with turning away from the baby oogling and cooing.

I am okay smiling at toddlers as they give me deer in headlight stares from shopping carts.

I am okay not being Okay with something one day and totally fine with it another.

I am giving myself permission to listen if I want and 

walk away if it don't feel connected with talk of children. 

This last month was endometriosis awareness month

and there was a big campaign on Instagram about it...

people declaring they were or someone they cared about was 1 in 10

people dealing with Endo.

One of the questions asked of the community was:

What gift has your Endo diagnosis given you?

I engaged and said:

 That after my stage 4 diagnosis, I was freed of guilt.

I realized that my infertility reflected nothing I had done wrong. 

I had done nothing wrong

I am practicing in a new yoga studio these days and have pumped up my practice to daily. 

This new studio is closer to home and has a lot of different kinds of classes.

One I take twice a week has been teaching me real meditation skills and I have already found them to be reflecting in my daily routines.*

This last weekend I spent two days cooking for Passover.

I made everything from scratch and we hosted my parents, a new tradition for us.

*The Barren mentioned that I was quite calm, and not frantic like I normally am.

We started this tradition because my mother would be working her tail off of days and when the family came for dinner she never sat and enjoyed the meal herself...for like 45+ years! 

so I make her meal and she and my father sit and enjoy the meal without chaos and distractions and have conversations with us.

This year, I did all the cooking and served a super homemade meal...

My father was not impressed

He didn't like most of what I made and told me so.

*I listened and heard him and sat in those critiques

After they left, I quietly washed dishes and sat down.

I overslept the alarm for class the next morning....

When I was finally awake, The Barren asked if I was alright...

I had been standing for the last two days, and it made sense that I was tired.

I told him I felt hurt that my efforts to impress my father made no difference to my father....

but I understood that I was seeking validation for something I wanted to do.

He not liking the food was his thing.

*Me feeling hurt that he didn't like the food was mine;

I needed to focus on the fact that I enjoyed making the food, 

and thinking of family that had made it before me.

I had no space or desire for the negative places I went

I was more aware of myself now  

I am becoming more aware of who I am now...

and for that I am thankful

The other side

The freeway is open again after it being closed for 2 weeks.

21 of the 23 missing are accounted for and deceased.

The final two are children, a 2 year old and a 16 year old

The search dogs are still seeking and are still hoping to find them.

It has been a surreal experience to say the least. 

Even as someone on the outer edges of the actual event.

Our towns are small and friendly and everyone knows someone.

I mean EVERYONE knows someone.

I was away from my yoga community for two weeks and it felt like an eternity.

I got a couple emails checking on me and seeing how I was on the other side of the mud

I took the train into work once, as it was allowed through the slide area, but not automobiles.

It was a 12 hour process from start to finish for a 40 mile commute and 6.5 hour workday

I spent most of my time think and hoping that search and rescue would continue to find people.

I also finished some artwork that is opening in a museum show next weekend.

That time was a gift, as I was able to work on it almost uninterrupted and without concern.

A local yoga studio opened last week, and I had purchased around Xmas a pre-opening special pass for a month of unlimited classes. So I was thankful to get into a studio to practice and work my kinks out. My whole body ached, my mind went to dark places way to quickly and I was not sleeping much at all. I was glad to get into the first class this last Friday and then again on Sunday.

I was able to drive to work on Monday and did yoga at my normal studio and it was strange 

(I can not find the right word to describe the new reality).

A lot of the people in class are still evacuated from their homes, and I heard more stories of loss and lives gone and last moments.

It was like having a javelin thrown into my chest over and over again.

My job was to simply listen and hug and listen some more.

I was glad to be among my community, and even though I could feel the pain and sadness it was still nice to be able to be there for people and with people.

A comfort of sorts for my bruised heart.

It has been quite a whirlwind of stress these last couple of months!

Fire and rains and mudslides.

I do feel like as the little sprouts of green start to appear on the hillsides across the street, that things are beginning again, regardless if we are all ready. 

I am thankful for that reminder from Mother Nature, as bittersweet as it is.

I remember when my bruises and puncture wounds began to heal on my body; I was sad that there were no longer external signs of the suffering from infertility. 

Instead it was reminding me to be thankful that my body is still powerful and capable of healing.

 In the same way, our hillsides are starting that same process, of healing themselves again. 

That is to be applauded and admired.

Beer and Cowgirl boots

It is that time of year again.

Check in on my uterus and ovaries, 

make sure they don't have any new hitchhikers.

I travel to a nearby town to check into the local hospital to 

have my pelvic ultrasounds.

I have found a great tech, that tells me what she sees before I get my results.

I take her observations as a no need to panic foreshadowing.

I spent too many years worrying after the exam whilst waiting for results.

So I found a person who will tell me if she see changes or give me a heads up.

She is awesome that way and has a similar fibroid and cyst situation.

We are in a sisterhood like that.

She offers respect and compassion that I seek on this crazy reproductive journey.

Today she told me a story of a client that came in last week for a pelvic ultrasound:

A woman came in kind of drunk she said....

she was wearing a skirt and cowgirl boots.

She told the tech that she was a little drunk that she choose to drink some beers 

for her 30oz of clear fluid to prep for the pelvic ultrasound.

(I giggled and wondered why I never had thought of that, that makes for a personal party out of a sucky medical exam.)

After the external ultrasound, she emptied her bladder and hoped back onto the exam table in a hospital gown and her boots.

The tech thought, OK I guess this is how she rolls.

As she was performing the internal portion of the exam she proclaims to the tech:

"you know my husband always wants me to keep my boots on, and I always say no....

 But for you I kept them on! "

Ahhhh the clarity of alcohol

and a vaginal probe

Pride in the journey

So The Barren is growing in his grief...he is learning to identify his triggers.

That is HUGE

He was at work learning some new stuff for his current role and a new parent was talking about how thankful they were to have some time off work and it was supported by the employer.

I got a text message saying:

" HR was talking about paid family leave and out of nowhere I find myself about to break down...doing OK now, but it was touch and go for a moment"

After work he met with him mom and they were chatting and she started to ask about all our friends with kids and how we must hang out with them and play with their kids...

He spoke up and said, you know we often need to protect ourselves from our triggers and make sure we are alright with going to an event or party. We often skip them so that we can relax and enjoy our afternoon too. He told her about the event earlier in the day.

She was flustered, and out of no where asked if we were thinking about adoption.

to which The Barren said NO

He thinks she was not sure how to deal with suddenly witnessing his grief 

...I think she just needed to get a question off her chest.

Regardless, I am beyond proud of him and his new ability to speak up about things that trigger his sorrow and memories. He is making progress and that is to be applauded.

Yoga anniversary

Ok, So I try REALLY HARD to not evangelize yoga....
I never want to sound like this....but it is funny as all hell

This last week I celebrated my 4th yogaiversary
I have been going to yoga three to four times a week for four years now!
It is the longest I have ever participated in an activity and still want to go.
This is amazing to me.

what!? are those muscles!!!
extended side angle with a double bind

I started yoga because a couple ladies I know wanted to try it
...I am the only one practicing.

When I began I was just out of my stage 4 endo diagnosis and wanted to find a way to start and reclaim my body back. I was in incredible pain from my cycles
and my back was weak and I felt broken
...just totally broken.

I started to see a difference in the first three months, I was able to mange cycle pain better.
I learned how to breathe more effectively and move my body.
I can manage stress (physical and emotional) better.

I am stronger and feel like I am in control of my body again
I can't do everything I want YET in class,
as I am still figuring out what my endo has seized up and what I can work through
...and what I can mentally believe I can do;
because it really is an exercise of the ego.

I can look at myself in the mirror while practicing,
but I will never be a front row person and I am ok with that.
I can practice next to a visually pregnant woman and not cry or focus on my loss.
I continue to do yoga in strange places at home (like above) and in public places where when I feel stress I do "lions breath" and make The Barren laugh.
I know my tummy will never be flat, no matter how many situps and how much food I restrict,
I carry the visual reminder of my losses in my belly, presenting at 10weeks forever.
I am embracing that too.

I thank my body after every class for being able to heal and move and breathe.
I like feeling strong
I am pretty proud of me right now and I simply wanted to mark this with a post.
I am tooting my own horn
and that is OK too sometimes

Cycles

The proceeds from this t-shirt help provide menstrual hygiene kits to people experiencing homelessness

I only get my period four times a year now.

It is part of the agreed plan to control my endometriosis, fibroids and cysts. 

It has been working well, and retarding growth on the current fibroids and any creation of new ones.

It has also allowed me to keep my uterus instead of having the suggested hysterectomy.

At first I thought it was like being neutered; taking away something so sacred as a monthly cycle.  The monthly pain left me unable to stand upright, or eat or sleep, so the idea became a welcome retreat from pain and in many ways a space to grieve my lost fertility.

I had to walk away from my efforts twice in 8 years of trying to make a family. 

When I first went off the monthly pill to dive into the pool of trying, I was almost immediately faced with a wall of pain and only after half a year was I able to advocate for further testing which first revealed my fibroids and the sudden growth had me at an oncologist. 

Back on the pill to shrink them and try to give me a window to try to get pregnant again.

The second dive into the pool had me in the ER and multiple trips to the doctor to find answers to the miscarriages. Suddenly 8 years passed and it was too much loss and too much pain to live.

I went back onto the pill after my removal of a large chocolate cyst, and an ovarian cancer scare;

that confirmed my stage 4 endo that had head-locked my ovary behind my uterus, a septum in my uterus and calcified fibroids.

The road was shut.

I grieved and celebrated this information at the same time.

I did nothing wrong in my efforts to get pregnant, but my body that I had lovingly cared, for had decided that no child shall survive in me.

Now 5 years later, I am facing a new kind of knowledge.

My periods which only come quarterly,  will eventually stop coming all together.

I am prepared to grieve that as well.

a bitter sweet party

I have my period now, I have always been a full moon bleeder.

I guess I am a druid that way, an earthy girl, a wolf woman.

I can now not have to decide if the pain is bad enough to need to go to the ER, 

instead I can sit on the couch or sleep away the mood and aches.

Still honoring the need to take care of this body.

My period arrived later than normal this cycle, and for the first time in a LONG time, 

my mind did not go to the "maybe I'm pregnant" thought...

in fact it never even entered my mind.

Instead I thought, soon there will be no more.

Self Awareness

stop the hate, both in yourself and for others

it has been too long....

I have been distracted, by everything...struggling to focus on anything.

I have spread myself thin and opaque.

I started to feel overwhelmed by life...

like I was responsible for everyone, and everything.

I was trying to change the world single-handedly.

I felt the responsibility of everyone's white privilege, I needed to take responsibility for every act of racism and sexism and xenophobia I saw, heard or read.

It became too much!

I was becoming paralyzed.

I have started to triage my life again...it is going much slower than I thought it would...

but I think I have landed on the right path, at least for now it feels like it.

I am still quite politically active, far more than I have ever been in my life!

I find writing a postcard and sending it off is QUITE cathartic.

cheap therapy...I recommend it to anyone; write about anything and send it to anyone!

I had forgotten to take my Vitamin D and felt the effects of the deep sadness...

I have remedied that now as well.

I have been kinder to myself when 4am comes around, and I simply don't feel like driving 40+ miles into town early for practice.

 I know I need to go at least three times a week but sometimes that doesn't happen and that is OK. 

I have felt the changes of aging without children.

My best friend (we live far to many miles from each other) was in town for 36hrs for an art installation and asked me to help. Which I gladly did. She needed to race home to be with her kiddo for his 12th birthday....when I asked he about the day he was born, she started to cry and looked me in the eyes and said that she now knows so many people who can't have children besides me and she feels so thankful that after her miscarriage she was able to get pregnant again and that she is so sorry.

I hugged her and told her it was not a burden she needed to bear, she was allowed to complain and be frustrated and thankful all at the same time!

I felt her pain so deeply.

I have been feeling EVERYTHING so so so deeply.

It is another aspect of my overwhelming of life.

My niece turns 13 today, I unconsciously calculate where I was in trying to create our family.

Each of these children in our lives are markers of how far down the path we have walked.

How far away from our hopes of a child we have wandered.

The birth announcements are father apart now, and the birthdays are larger numbers.

I know the second round, generation is on the horizon...I wonder if I will still calculate where I was on the day they were born...how long that marker of memory will last and when it might be replaced with a memory of them...simply them and me.

Putting feet where my heart is

I have become an voice in the fight

I am making choices everyday to speak up, regardless of my fears.

I am actively choosing to attend marches and sign petitions and make calls.

I was quite overwhelmed for a couple weeks, 

slipping into the door of depression for a time and again.

I felt the weight of my white privilege and 

the responsibly to make sure others acknowledged theirs.

I felt angry and heartbroken at family that said they loved me and the world around them,

 but then stood in support of Lord Marmalade and his racist, sexist and xenophobic choices.

I have made the choice to be a voice, 

I am fighting the BIG fight, looking at the BIG picture.

I am thinking about the generations after me, 

I am trying to secure the rights and safety.

I am learning and growing.

I find being infertile in this struggle has given me a unique voice

in this conversation. 

For that I am thankful.

Time marches on

Source

Ducklings in paper dresses....lets start here.

Okay

I have been wanting to write here.

I just got back from a weekend visit with my bestie.

We live several hundred miles apart and so visiting often is quite involved.

This time, we made arrangements a month+ ahead of time 

and I got an AirBnB 

and had The Barren take an extra day off to recover from the travel time.

When we arrived we hit the ground running.

My bestie talked my ear off <3 p="">

She was sooooooooo excited to see me that she just kept talking and talking and talking....

It was great and exhausting.

I ate like a queen, 

and covered The Barren in kisses of appreciation 

for making and supporting the time away.

The Barren was recovering/processing of sorts, 

from a sudden and unexpected death of a coworker.
This time together was needed.

We spent the time away talking and being quiet and just being.

Bestie has a child, who we are close with and who is the most well adjusted 

young person I have ever known.

He is an only child and has been treated as a human from day one 

and it is reflected in his mood and demeanor.

The Barren and I are listed as caregivers should something horrible happen to his parents.

He was able to choose, and we were happy to be those people for him.

So it is all legal and stuff...

He is growing up fast and has landed firmly into tweenhood

Time marches on

I got this photo in my email today:

"do you recognize the blanket"

I made that blanket for her older brother as a baby shower gift.

It was a reminder of how far down this road I have traveled.

How long ago I was making blankets for friends babies, and wishing for my own.

Like a moving meditation, make a blanket, earn more points to me getting a baby of my own.

The above child was conceived while I was having miscarriages and I threw her mother a shower, thinking I could still do it all. 

Once this little lady was born, I told her mom (who I've known since we were 14yrs old)

that I could not be what she needed of me...

she has respected that and we send hellos every once in a while.

Time marches on

Then today I also got an email asking if someone could use an image from my Infertility Art Exhibition....this exhibition was 6 years ago and I am still getting requests for image use.

AMAZING

time marches on

Here I am three weeks away from my first miscarriage anniversary and I am getting reminders of how long ago we left the path for parenthood but also how far we have traveled.
Time marches on

Time passes

As time passes I am finding myself identifying less and less as an infertile woman 

and simply a woman without children. 

Maybe those words place less blame, or guilt. 

Maybe that is simply growing.

I have even considered unsubscribing from some websites and blogs that are in the middle of their discovery. Not because I do not want to offer support but simply because it is energy I have spent and can not afford to spend any longer.

I guess this time passing, has distanced me from the central heart of the pain.

The pain is no longer raw

The pain only appears in small short moments.

I am no longer consumed by the monster

The Barreness seems to have stopped poking me

at least that is how it feels right now.

I had a successful exhibition, in fact I sold one of my pieces before the show opened 

and the other on opening night!

I felt like I was floating on a lily-pad, afraid to move to quickly 

and fall into the cold murky pond.

But it was real, I really did it.

A fellow art friend told me I was no longer allowed to feel surprised by my art sales.

I had sold work every year from that show and it was time to get over it.

I smiled

 and then told The Barren, over sake shots after the event, that I liked 

life surprises, and that not feeling a bit of shock and disbelief seemed unnatural for me.

I deserve this success, and I deserve to feel proud

but I also can enjoy the surprise and glee associated with a sale.

We have been running non stop for most of this month already,

social commitments and events.

Now we are done, and just have the holidays to figure out.

We went to our last social commitment last night and it was hosted by a painter friend who has a big show opening in New York on Tuesday. She filled her home with friends and family for an annual get together. Since last years event, she has had a baby and so have many of her friends. In fact at one point, the house was filled with little kids and toddlers screaming, running and slamming doors while two very patient boston terriers watched and avoided them. I sat on the couch with three friends across from The Barren who was chatting with the spouses of the the friends and found myself unconcerned about the chaos.

In fact, totally unfazed.

I didn't need to find my kid, or ask the kids to stop....

not my monkeys, not my circus

As we were gathering up to leave I looked down to put on my coat 

and saw a little green chair, with a pair of little shoes in it.

it was sublime and sweet and 

The Barren and I both just exhaled and moved on to saying our goodbyes

It is moments like that, that I realize that time has passed.

The moments of a magical childhood for our never to be child have begun to age.

We are learning to live life again, be who are suppose to be after all that we have been 

and all that we can still be.