Tuesday, January 28, 2025

Super Callus Fragile Mystic Existential Doses

 I am thankful to say we have faired well through this latest round of fires...

I had completely lost my shit multiple times in absolute fear, triggered by my past evacuation experience. There have been multiple fires since the Palisades and Eaton fires that created a complete hell-scape for so so so many people. Erasing their homes, security and sense of identity.

I have never been a real organized person; I thrive in chaotic environments it seems. I like to have a lot to look at, be surrounded by and feel enrobed in. This makes for a cozy environment, a creative looking home and wild artmaking. Many times needing to protect the finished works from myself because I have created a huge mess making it. Storing it out of the way while I clear the clutter that created it.

I have been the final stop for the families photographs, a century of them! I hold the responsibility of caring for them and that responsibility has recently created a heavy burden. With each evacuation, I have grabbed them and have often forgotten my own wedding photo, or some other precious item. To help me work through the constant onslaught of sadness, fear and grief  from the fires and the election I started scanning all the images. I can share them with my cousins and niblings. That way I would not be the only one to hold them and there will be other locations to view them/save them. 

These photographs are some of my most precious memories with my grandmother and great Aunt, as they were the ones who made most the albums. Using the photos, or snaps as they called them, as a sort of trophy of times spent. They would have gotten on the social media bandwagon had it been around when they were younger. My grandmother printed everything, wrote the name of the people in them and until the prints were dated by the photo developers, she dated many of them and glued them into albums. Spending days scanning them is like spending times with my grandmother again, It turned into an emotional, sacred and bittersweet experience, as I was scanning the 100's of photos I started wondering if I was the only one who these images really mattered to. Does anyone else really care about them? Will these memories die with me?

Last week I went to a dinner with fellow women artists, hosted in a home of a ceramic artist. One of the attending artists lives in Los Angeles and spoke about her experience during the first days of the fires...recounting how on the second morning she went outside to assess the smoke and the sky turned dark and it began to rain pages from books! She said they were recipes, songs, hand written pages falling from the sky...these pages had traveled 10+ miles and were falling in her front yard. 

I had read an article that more artworks had been lost in these two fires than ever before. The loss of artwork is monumental and has left many artists without homes, studios and their life's works both in process and finished gone forever.

 I can only imagine it from what I had experienced but I can not imagine the profound sadness, fear and emptiness that the fleeing created in each unique experience. The loss of generational wealth, memories, personal space, HOME...I can empathize, but I am reminded it will last for generations.

Animal support

Help a Seed Library

Artist Aid

We sat with each other, talking about our fears, concerns, shock and how to move forward from this point. All of us shared ways we disassociate when things get to be too much. At one point, I suggested we take a group photo with my instant camera. All agreed and after balancing the camera on many different surfaces and makeshift tripods, I was able to get a group photo. I mentioned the silliness was like being in a slumber party and that made all the ladies giggle with memories of time gone by. A photo was captured of me, bending in half to try and see through the viewfinder for one of the photos.

It was called the "human tripod"

Between the fires, staying off social media for a week to regain some sense of calm to focus, I came up for air just in time for the ICE raids today in my town! I know the next 100 days will just be shock after shock in an effort to make us all apathetic and so burnt out we don't respond anymore...but it is not going to happen. I know others that feel the same and it is in those people who I set my light to.

Although I am super callused and done with a lot of things

I am still fragile but also believe in magic

even amongst all the back to back existential crises


Wednesday, January 08, 2025

Shifting mindscape

 The new year has arrived and with it all the stress and terror about what these next few years will unfold and release. So many unknowns and fears and realities. 

It is like one thing after another, so surreal and so hard to really wrap my brain around...

I read somewhere during quarantine that the human brain wasn't designed/built to handle this many stressful events. I try and say that to myself when I am faced with a 4foot thick wall of stress and anxiousness and fear. 

"I am not going to be able to manage all this into a neat orderly situation that I can fix"

I have found my time out in public is feeling more feral. I don't reach out to talk to people unprompted anymore. I purposely don't make eye contact with people, especially men; and when engaged I stare strait into their eyes with a "don't fuck with me, I don't trust you" energy.

I am feeling so many feelings and not quite sure how to process them anymore.

I fear I am not preparing "right" for all these new unknowable's, and unimaginable scenarios. I have stocked up on a few women's healthcare supplies, just in case. Our little bit of savings are being managed by professionals, I have asked my doctor about my medicines and if the medical system changed...he assured me that the medicine I am taking or would change to is currently manufactured and readily available. (not totally convinced but I can't manage everything) I think my glasses are next on the list to upgrade before too late here. I am trying to secure me, as being a woman in the US now has some potential real changes. It is hard to imagine this...like beyond unreal.

And right on cue, Mother Nature shows us all that nothing is okay and has started some of the largest and most horrible fires that my state has seen in a while. Soooo sooo much loss.

My fire app is sending notices every hour it seems, new fires are everywhere.

I sit here and wonder, stare and dissociate.

*****

In an effort to flip my mind in a new way and not cement those neuropathways...

I made an impulsive decision last week to buy tickets to a small circus that was visiting our town. I drove by the tent for a couple weeks on my way to predawn yoga, the lights of the tent glowed in such a magical way. I had The Barren make a detour one night so I could try and take a couple pinhole photos. Then Friday last week while I sat in the car at 5:45 in the morning, I bought tickets to see the show. I splurged and got the VIP tickets so we could sit as close as possible. Thankfully DH knew I was trying to self soothe and went along with me with zero hesitation. As I stepped out of the car it was like I let go of all my sadness, and forced myself to just embrace my childhood glee. I cheered loudly at the preshow performances and just about burst into tears with joy as I walked past the ring leader standing on a box playing the song from Amelie on the accordion, at the entrance into the tent.

It was an old style Italian circus; there were dropped juggling pins, kids freaking out, a horse that stood its ground and a single clown who ended up sitting on my lap! Simply put, it was charming and well worth the time.

My face hurt from smiling and my muscles behind my ears clenched from so must laughing. The jokes were corny and predictable but I didn't care. I had taken off my airs when I left the car and thought, this is what a moment of joy feels like, embrace it.
It was magic and I was thankful I had that little voice tell me to do it.

My world has shifted for sure, it has radically changed me and the way I see the once amazing world that surrounded me. I am grateful that I wake up each day, and I continue to choose to fight the urge to go with the flow. I work everyday with maintaining my calm and processing unaccounted for things and situations. It is sometimes a real struggle.
I am thankful I have a home, a loving partner and a couple friends.
I am thankful that my body continues to show up for me and my family both chosen and blood related is relatively healthy.
I don't know how I could have raised a kind little person through these times...I fear I might not have been able to show up for them in the best way.

I guess I need to just start small again, and just keep showing up for myself
I hope that all of you can keep doing that too.

Monday, December 09, 2024

Winter

The month is rolling by quickly...and I am thankful that I have survived the thanksgiving holiday event.

The Barren and I went on a road-trip for a week to visit family. We started what we knew was going to be a challenging week with an over night at my besties. They fortified us with laughter and smiles to carry in our pocket before heading into the eye of the storm. That was a highlight for me. 

The motivation for me was to focus and make sure The Barren got time with his father, even though the reason we were gathering was for my BIL who has stage four cancer and is currently on drug trials and under medical care.

The setting was not ideal, you see, he, his wife and their teenagers (nephews) are also some of the many people who voted for the orange IDIOT and is proud about it. He had stated in the past that he was never offended by the confederate flag, or the nazi symbols. Feels women are here to serve men, and that his god is the only god.

So as you can image I was quite conflicted about my feelings; wanting to be compassionate as they are living in a cancer world but also red hot rage at what they believe and live in. I was fearful and upset about being asked to sit at a table with him and his wife and teenage son. I used to have actual nightmares as a teen about nazis breaking down my door and the idea of sitting at a table with them was A LOT to try and digest. So in my typical lemons to lemonade thinking...I turned love towards my hubby as I knew he wanted to see his father and Aunt, as he fears that this might be one of the last times to visit with them. We made a point to try and spend as much time as possible with them. Hubby was able to play music with him and simply take in all that his father is. 
It was punctuated with some bittersweet reminders, as our MIL is quite a handful of needs and is almost completely overtaken with Autism, ADHD and mental health struggles. She is chronically late and was towing two dogs with her. One of which could barely use its back legs and was often left for hours and hours alone. Making for accidents in the rental house...and heartbreak to witness. It took her three hours to pick a wine from Trader Joes while the rest of us sat waiting for her to arrive to a pre-thanksgiving evening. Finally canceling dinner together.

When we all gathered for the meal, my MIL was already multiple hours late, I was so anxious, I found myself masking like a champ! My current food situations made this food centric "holiday" even more challenging for me. Everyone was asking questions and I wanted to evaporate. At one point I walked up to my SIL and whispered in her ear to "please stop asking about what I can or can't eat, the constant questions make me very anxious about food" She stopped and I was left alone by her for the most part.

I manifested a bit of Shosanna from Inglourious Basterds and hid behind my camera and took photos and did not make eye contact with my BIL. When asked questions directly, I avoided eye contact. 
I was a swirl of emotions and feelings and by the end of the night, I got in the car with my hubby and shut down completely. We left before dawn the next morning, spending the first few hours in silence. Not completely sure how we felt about anything. When I got home I cried and told The Barren that I wasn't brave enough. I should have stood on the table and condemned their racist, sexist actions. I was a fool to my ancestors and was just really disappointed in myself.

I haven't spoken to my SIL or BIL since thanksgiving night and don't expect to hear anything from them unless they want something. Which is how they normally are. 

I have been out of sorts since, but have been actively working on getting back into my stream.

Do you ever feel a whole body shift? Like you need to purge everything you have been doing to start anew? Maybe that is what I am feeling...
Maybe I am about to wrap myself up and become something else.

I got a space at a community garden, I am spending time there, sticking my fingers into the dirt and feeling the wetness on my skin. I am overwhelmed by the number of shifts that have taken place this year. My parents, my health, The Barrens stress, the responsibilities of home and animal companions, trying to make time for time with other people and myself....
I think I need a nap, maybe I am a bear and need to hibernate and awake in the spring hungry and hopeful again.

Wednesday, November 06, 2024

...deep fear

 I didn't sleep much last night.

When I closed my eyes I had visions of dodging cannon balls and trying to stay afloat in a disney park ride. I tried to self soothe overnight, saying things will look different in the morning...this is all going to be better...my techniques did not work.

I awoke to a literal nightmare...55% of Women and 40% of men nationwide voted for the MOST QUALIFIED candidate historically. My county is far more republican, racist, sexist and stupid than I knew and although everyone I know voted for Kamala, it didn't do anything except break millions of hearts.

I was in tears for hours and then decided to get dressed and leave the house for a few moments and do an adult task in a nearby town. As I was driving home I got an emergency alert on my phone: 

EVACUATION ORDER: YOUR NEIGHBORHOOD IS NOW UNDER AN EVACUATION ORDER DUE TO A FAST MOVING BRUSH FIRE. PLEASE EVACUATE IMMEDIATELY

I was only two miles from home and raced the rest of the way, grabbed a few things, corralled the cats into a bathroom and texted my neighbor asking if she got the same text...she lives 50feet from us and she did not, nor had any other neighbor a few blocks from me, 

I was convinced it was a cruel action on the part of the universe. Hubby came home after hearing my voice rattled and filled with fear, breaking under the constant pressure and stress. He came home and said in a calm voice, take this and lets pack a few things. I took the offered half xanax and have been packing things into my car calmly and the cats are hiding in the same room as me as I write this.

The last evacuation I was awoken from sleep and told to leave now, and we only had the clothes on our backs, our cats and laptops. It was a mess and now the sky has fire colors and thick smoke and the fire bombers are due to arrive in the morning…until then I am getting live updates about its movement as the night passes. I finally ate something only because I knew it was needed for brain activity. I am beyond heartbroken, broken and so so mad. I am not looking forward to the trip to visit family, as the person we are traveling for is a Christian fundamentalist who is celebrating today. And I am struggling to find any empathy/ sympathy or a crumb of kindness towards the family who all feel this was a golden move. The Barren told me to try and think of them as brainwashed…he is not looking forward to it either but I guess in a way to honor Kamala, when they go low we go high, right?!? Well, it isn’t working yet…and I am nowhere near close to okay about anything.

I vote 2024 as the most painful, horrible no good year. 

Tuesday, November 05, 2024

The Quiet

 It is quieter than normal today...

it is election day, the polls are open, the postcards have been sent, the calls have been made, the hopes are running at an all time high.

I, along with EVERYONE I know are waiting. Our stomachs are filled with acid, our nerves are burned, we are all exhausted, there is so much anxiety you can feel it in the air. 
My bestie and I exchanged texts this morning recounting what we are doing to pass time and not look at the news or think or hope. 

I woke up this morning, and before much thought, found myself doing 108 sun salutations trying to honor the energy I wanted to focus towards the day. Saying over and over President Harris.

I feel too many feels, thinking too many thoughts...


we wait

Tuesday, October 29, 2024

Stagnation

 


This is how I spend my hours in the infusion chair. I take selfies and snooze.

I am currently trying to make some art....my end of year submission is due at the end of the month and I am finding myself struggling to focus, be inspired and motivated into making something interesting.
I have given myself grace, space and time...and yet I am feeling like I am trying to pull from an empty vessel. I am exercising, watching what I eat, trying to get solid sleep, reading things that are interesting and yet I am still coping with what seems like artistic blocks.
I am struggling with negative self talk, I have set firm boundaries for time to sit and try and work...and here I am, writing and not making some kind of artwork. 

I have recently come to terms with:
 the reality of being someone with multiple hidden chronic diseases
My relationship with my parents has broken in a new way, and despite my kindest, most tender efforts my father mentioned this in therapy yesterday: "he and his wife have been "parented" by their grown children since his head injury and... they are in the middle of a falling out with their daughter"

I remember in my grief therapy many years ago, one of the things I tried to resolve was not being heard. Some of my earliest memories were feelings of always being dismissed and told I was being overly emotional or silly. I must need a nap or need to sit and think about what it is I wanted...I was often angry and crying from frustration. I learned that what it actually it was because no one heard me or listened to me. So I would scream and slam doors, and then get in trouble.
This feels a lot like that.

I told The Barren the other day, that I realize this is my role with my parents now. I don't have to like it, but I also know that my parents don't want to be accountable for themselves or choices. So if something needs to be done, and I mention that it might be a good idea to think about it, their response is: 
"well, I guess I'll do it because if I don't I'll be in "trouble" with her, so fine I'll make that appointment or not climb that ladder to sweep the roof"
My brother does not get this response.
It hurts and I mostly want to cry, but it won't change anything. My father will not remember the conversation a couple days later and my mother clearly won't either. So now, I just use a flat voice with conversations on the phone and simply deliver information about doctors appointments for my father, or make Mmm Hmm sounds, stating no words of agreement or disagreement when my mother decides or remembers to call me. At the end of each random call, I ask if there is anything I can assist with and am always told no. So I leave it there.

I am getting my infusions every 8 weeks now, and they are taking 3 hours. I have to stay afterwards because my blood pressure drops and makes the infusion nurse anxious. So I sit and wiggle my feet for a few moments afterwards and my blood pressure goes up enough to be dismissed. While sitting there, I snooze, take selfies, look at social media and text The Barren updates on how thigs are going. It is horribly boring but early bloodwork results show that it might be working.
I have been doing my yoga practice four days a week and meditation one day a week. All of my classes are heated, and half of them are weighted. I have upped my protein levels in my diet as I read that it is recommended for Crohns and Colitis disease. It has become quite a full time job and I am doing all I can to not slip into disordered eating patterns.

***************************
update

I finally made some artwork and submitted it Friday. I will know in the next couple weeks if something caught the curators eye enough to invite me to exhibit again this year. I was able to turn work in ahead of the deadline and have spent the last couple of days relaxing my brain and revisiting the idea of a more organic method of artmaking....instead of chasing a deadline.
I am proud of myself for giving everything I had to give to the project and turn in four brand new works for consideration.
Many anniversaries are in this week...
The 30th is the anniversary of my dear animal companion: 2020
One of my miscarriage's is the 30th as well
and then our Wedding Anniversary, 22years married, 32 years together

We are both so rattled, I have a feeling it will end up being a meal and a sunset drive. 
The Barren mentioned last night that he is really grabbing at straws for ideas...and I know what that feels like. We have been massively distracted with everything else life is throwing into our faces. We have had to make plans to travel for a family trip at the end of next month, to visit dying family. It will be like family gatherings of the past where we drive for the entire day just to get half way to where we need to be.....and those arrangements have taken all our mental energy. We are both quite anxious about it and the election is weighing so heavy in out minds and hearts...we are having a hard time focusing on anything other than just functioning. So our wedding anniversary has taken the back seat again...honestly, just spending time away from his office is gift enough for me.

I am feeling a lot
thinking a lot
and trying to stay upbeat for his sake
really we are just treading water.
Smiles and kisses above the water and absolute chaos below the surface.




                                     

Sunday, August 25, 2024

Still

 It took the Barren 16 days to clear the virus....16 days of sleeping on a couch for me, 16 days of fretting and worrying, but we got through it and he even had a consult with a doctor about removing his gall bladder and in the end decided to keep it for now.

Meanwhile my parents have refused any and all assistance my brother or I offer to them directly. I say this because I still book and confirm all my fathers appointments "behind the scenes", so he is prepared for each appointment. He has started seeing a psychologist,  and my mother has pinned floppy hopes that it will "help him". I have become far more jaded and based on what he has refused to do ANY homework/self-work for all his occupational, speech and physical therapies...I would be VERY surprised if he creates the opportunity for himself to grow...but I would love to be surprised.

My relationship with my parents has been altered in a significant way. In fact I described it to The Barren the other day like this: it is like I have lost both my parents, but they are still here and I am left watching it all disappear each day in a new way. Like an extended period of grief and mourning. It breaks my heart in new and different ways every time I call them. 

Yesterday I acted impulsively and decided to drive the 40 minutes to their place and offer a CPAP pillow I had sourced for my father thinking that it might make it more comfortable for him and then he would wear his CPAP longer than just a couple hours a night. I hadn't seen my parents in well over a month and when I arrived and knocked on the door; it swung open with great force and my father was standing there, without a cane or walker hunched over and glaring at me. Then said hello, looked at the pillow in my hand and said what brings you here? I said I had gotten this for you to try...I was..., before I could even finish my short sentence he responded...NO, DON'T NEED IT. (he said these words in a short, loud and stern way) I started to show him the features of the pillow and again he said "no, I will not use it. Thanks though" and that was that. Like we didn't say much else after that.

My mother, peeped around the corner, said it looked like a comfortable pillow and that she was sorry he turned it down. I was interrupting their dinner that my father was microwaving. I had not even entered the house yet... I was standing on the front porch still...

I left them to their dinner and got back into my car....I felt so much. I felt so...I was glad I had invested so much in my fathers recovery, but it was like a neon sign that I was far more invested in his recovery than anyone else. That is where I am trying to heal from right now.

When The Barren asked how the visit went I said "Abruptly" 

I am struggling to get past all the trauma of the past three months. It has left me numb and uninspired and fumbling to find myself again. I have developed a new side effect, I am not sure if it is from the new infusion medication or stress but I am now learning about Burning Mouth Syndrome

I feel like I am falling apart; all my seams have come undone and I do my best daily to wake up and focus on anything other than everything else. My therapist use to refer to it as the " chop wood carry water" of life. Picking yourself up and doing tasks in an effort to keep moving and giving yourself time to do everything else that needs to be done so you have space to work on yourself and your thoughts.

The Barren is at his annual music week away for the summer and is having an amazing time. I am so excited he has this time. He is with his bestie and they are learning all sorts of new techniques and music theory from the best of the best. I literally could not be happier or more proud of him for taking this time for himself.

I am home solo trying to pretend I am at an artist residency....and make something. 

I have put film into several cameras and have shot some images...I have made some green developers and I hope to see if the pinhole photos I took today created any images. I have been feeding myself clean food, I have participated in a community garage sale, but only for an hour and a half, as the people who started coming freaked me out...hahah I have been writing down ideas and contemplating new materials. I am catching up on admin work for my website, etsy shop and wrote a newsletter announcing what the latest was.

I guess the whole reason for this post is that I am still here. 

I still have not gotten the virus, I still mask in most public spaces, even with glares. I am still waking up with a smile each day, even when my whole world is tilted and new things seem to gather around the edges. I still have a sense of hope that one day I will be able to travel again and feel lighter in mind and mood.

I do hope that if you got to the end of this post that you are doing alright, holding on to the edge of your day...finding something sparkling in it....because that little bright thing is meant for your to notice and hold.