
I am learning more about the human brain and grief than I had ever imagined.
My most recent adventures have taken me down roads of cognitive medical reading, personal wondering and expansively painful learning.
My father had decided he was going to have the surgery after our visit to the neurologist. The doctor pretty much said, aside from fear of the surgery (which is normal) why NOT have it. At that " suggestion" my father said, fuck it schedule the surgery.
I was there asking for alternatives and finding out that his long term headaches were probably the start of this who event. After ping pong visits between the neurologist and the neurosurgeon it was shown on MRI scans that my father actually has a lot of atrophy of his brain and so the surgery was not the safest option or the preferred route from the surgeon. So back to where we started and watching his cognitive decline and body function loss up close.
(below text written in stream of consciousness)
I have just finished two of the most challenging weeks with them. My father had a yearly check up and the doctor seemed fine with all he was doing; which seemed like a cursory look at things but I was exhausted and my father had been coughing all day. Doctor listened to his chest and said it was clear. It ended up keeping my mother up all night and she was already running on almost no sleep. He then states when we return that he "isn't feeling well" I say if things are not better soon we are going to a walk in clinic. The weekend that followed was all coughing and my brother took him on Monday, because as an immune compromised person he wanted to make sure I was safer until we knew more and it was bronchitis possibly the start of pneumonia. By Wednesday my mother on a call with me coughed and I returned to town to take her to a clinic that confirmed she had pneumonia, and Friday I returned because she was worse and then we went to the ER because her symptoms pointed to C-diff and she hadn't eaten since Wednesday after the first appointment and my father had decided to stop eating and then the ER, who said she had a viral pneumonia and then we were there again Saturday to watch them eat, because now neither of them was and then Monday and Tuesday my brother and wife took food to them and I spent all day calling non-profits and doctors and learning about Medi-Cal and being overwhelmed with tasks and calls and then Wednesday took my mother to a psychiatrist to see if she could start her SSRI's again because she stopped ALL her meds cold turkey a couple months ago including her zoloft, which might add to why every interaction with her was her crying. Sitting in the office for her meeting was strange, but even stranger was her new dementia like memory looping of phrases and memories was heartbreaking. The doctor said with her level of depression it was common and should start clearing when her new medicines start working. Then Thursday meeting with the exterminator for their home who said we need to replace the dilapidated garage door because they can't help if there is a literal open door for rodents. (it was not a surprise or a shock) So my brother is taking charge of that. A physical therapist who only came for 10min that day and sent me into a mental rage and then finding that a very important document for my father had expired and that stops the process of the other big project. So yesterday was all day of online renewal forms and finally signing documents for in home help that we can pay for out of pocket and ideally that help, will start Tuesday. More meetings Monday and doctors appointments Tuesday and managing schedules and paperwork and answering phone calls and texts from family who want to know all the details....and then ask if I tried x, y, or Z. In the end my mother told me I was really good at the "handholding" I was doing for them and I should make it my job. I said " I'd really just like to be an artist" and she said " you can be creative with it, the caregiving....That was the javelin into my heart...and I kept a poker face and waited to get into the car and drive away before crying. The diapers, the food fussing, the medications, the water reminders, the doctors offices, the questions and suggestions and assumptions....remind me of my infertility days. The casual suggestions about adoptions and sex positions and the 'if you just" or "have you tried" and the banger "have you considered"
I only made yoga once last week, I am currently sitting in my workspace trying to catch up on normal things, like laundry and bills, but I have gotten 4 calls from the parents already and I am still trying to imagine my work.
Trying to see it in my minds eye...imagine making it, breathing deeply and feeling content in the process. Telling myself that life isn't passing me by and my work still matters and I still need to make it because although all this time has been stolen from me and my partnership....it really does matter and things will change soon and I can use all this energy to make my own art.
