Today I started my first dose of colitis/crohns medication.
I went to meditation this morning and wore a purple bra
(I am a firm believer that purple is a good luck color, well for me it is)
The nurse is nice and will be my nurse from here on out.
We got the baby question out of the way right at the start with,
"do you have any children"
to which I said, "no we don't, we just have each other"
The infusion center is in an allergy clinic, so there was a large group of people there to get allergy meds, crying babies and a lot of commotion.
The Barren came with me, and although he looked away when the needle stuff happened
he was my solid dude 💓
Todays dose is called a loading dose, as they are loading a smaller dose today and then in two weeks I get another dose. I will be monitored for a bit afterwards to make sure I don't have any reactions. The another dose in 6weeks and then 8 weeks...and then I am on the schedule of every 8 weeks.
In between I will be having blood, stool and scans to monitor progress.
The medicine is designed to specifically target my gut, but it still makes me immunocompromised.
I will continue my vegan gluten free lifestyle, for life.
After the infusion we raced home, because The Barren had a work call and then the doorbell rang...
outside my front door was a man holding a huge arrangement of flowers.
My sweet Barren had a bouquet delivered.
The message read:
"this is one crazy ride, but I am glad I am on it with you"
💓💓💓
more tears, but also smiles
