Mothers Day

 

I made it thru mothers day...there was some drama, some backlash, some response to our absence.

I was able to turn the channel when a commercial came on, or when a movie played. I turned off the radio when an ad was touting the all you should do for your mother.

I mostly did damage control. Control potential damage. 

Mothers day also fell on my fathers birthday...I wanted to celebrate my dad's birthday but not Mothers day.

We did his birthday, a day early....it felt like we had moved his birthday, like I had asked them to change their lives because of our sensitives...this is still sitting heavy with me.

My father was a little upset that we don't celebrate mothers day...I am not sure he can really wrap his head around the depth of hubby and my loss; the daily reminders and images.

I managed to give gifts to four women, this year...it was the best I could do and was happy that I managed that. It was hard to walk past those of mother themed cards and images, but I did and came out with something for them. It hurt, but was manageable and I was able to pack it away into a box that I can address in smaller pieces as time passes.

We mostly stayed home, my hubby made us homemade waffles and we ate them causally and together.

We stayed inside and watched movies and in the afternoon attended an art event I was showing in.

The venue was filled with costumed children who shuttled about here and there squealing and laughing.

We heard a lot of people wishing each other a happy mothers day and I was silent...I tried to keep conversations on work and subject.

I felt mostly numb, mostly, sometimes it felt more like floating.
Like in a dream when you look in on yourself.

 

When I did feel, it was the deep deep sorrow that surrounds you like a bath.

Round and round

I began to shake, deep shaking and then the cramping....in fact I am still shaking...

I rushed to see...what I had feared.

 Blood lots of blood and tissue lots and lots of tissue.

I can not share this with anyone...I didn't get a postive pee test...I was late and thought nothing of it.

In many ways I am glad I didn't see the lines, only to find myself days later, here.

I am spun

saddened and spun

Infertility Awareness Week

What IF? A Portrait of Infertility from Keiko Zoll on Vimeo.

Visitor

I went in for my annual, I was kind of afraid, I was afraid of what might be found and what might get said.

I searched for a while when we had a choice of doctors, I wanted a real feeling of having a doctor that remembered me and cared about my health.

I think that time has past.

My blood pressure was elevated, to a point of concern.

(it reminded me of one doctor saying to me: "I am surprised you even go to a doctor anymore after all you have gone through")

My current doc did my pelvic exam and felt my lymph nodes, but was ready to leave after that.

It was then that I pulled out my list of questions and requested follow-up exams.

I need to schedule this and that and I would like...this is my yearly physical after all.

I was far more prepared then her.

She asked if I had any pregnancies and I told her about my miscarrages. She said they were not real pregnancies, that real ones have a postive pee test. I sank...I am a fake.

She told me at this point of the game, I could have a referral to a fertility specialist or have a hysterectomy.

I told her that those were not options for me.

We chose many years ago to not have assistance to get pregnant.

She followed up this with, "...then now would also be a good time to start the adoption process"

I told her that was not an option either.

I got my blood taken, peed in a cup and have slips for future ultrasounds and mammograms.

I have found the end of the road.

there is just barreness ahead of me.......no sign "thank you for visiting" or a pretty patch of wildflowers.

Just the end of the known road.

Really, you're not pregnant

My period arrived, a week and a half late.
One moment I was icky feeling and the next the back pain started and I was bleeding.
That quick, no gradual arrival...just a slam dunk.

I was afraid to look every time I went to the bathroom, I was afraid that there would be more evidence of another loss...another momentary motherhood.

Instead, I simply had a, "really you are not pregnant" kind of period.

Waiting at an empty station

My period has yet to arrive.
I was due to get it last week, Wednesday night is when it normally arrives...but it didn't.
Nor, did it appear, Thursday or Friday.
By Friday night I peed on a "You're not pregnant stick".
Then Saturday and Sunday passed with still no sign or even spotting.

I peed on another stick Sunday night..."You're still not pregnant"

I have only missed my period one other time, I was high, high up in the mountains of Nepal, and had been hiking for 10+ hours a day. I missed my period then and that was over 10 years ago. It was memorable then as it is now.

Except now, I am dealing with the mind-fuck that is infertility and the wake of two miscarriages.
Should I still pee on sticks to look for a faint, almost non-existent line, or continue to check the pee sticks I have already thrown into the trash because "maybe now that some real time has passed, it was really a positive and I just couldn't see it."

When should I stop wondering about this month, and have a glass of wine or stop wondering if that aspirin I just took was a good idea. When will I understand that the train is late, and might not stop at this station this month after all.

I wish I could have known you

It appears I lost another early pregnancy.

I am in total shock and wonder what I did to have this repeatedly happen to us.

I sat in the bath this time and watched the blood dissipate in the water...pieces of tissue floated and danced in the liquid. I thought of what might have been and how this was my only time with it before it all flowed away, down the drain.

I held the tissue in my hands and sang to it.

Over time, the pieces fell apart and became smaller and smaller until I was in a tub filled with slightly tinted water and tiny pieces of tissue.

I opened the plug and said goodbye, sitting and watching it all be pulled away and down into the darkness.

Goodbye sweet little something, I will never forget you.

Saturating

"I couldn't tell what was rain and what were tears"

I told my parents about our miscarriage today, I told them before I realized what words were falling out of my mouth. It surprised me and I could see the wind being knocked out of them.

My mother in her "way" told me that she thought I was pregnant and that she and my father were waiting for me to tell them.
She cried when I told her that it was gone, confirmed and gone. My father was silent and could not look at me for a long while. I don't think he knew what to say...or how to say what he wanted to say.

I told them I am racing the clock on the growing fibroids and that this was checkered flag...the last loss I could endure.

Ironically, my husband told someone today too, the first person he has shared it with and when I asked how he felt about sharing it he said "it made me really really sad, but I just told him..."
this is a really big thing for him...In someways I am very proud of him in others I am familiar with what he means and is possibly feeling.

Now I just have to fight feelings of imagining what it would have been and what it would have looked like and what we would have named it.

same news...different year

Well my desire to outwit and out hope my body have begun to be foiled yet again.
The results are back and were delivered by such a warm and kind person this time that the pain of its reality was almost unfelt.
I am growing again...and this time the ping pong game is back on about the shape of my uterus.
It appears that I might have calcified the older fibroids and grown a couple of new ones.
Only one appeared at the begining of the year and two plus some calciumed ones are there now. Plus my ovaries are making cysts and I have one folicle in one of my ovaries.
That one folicle will most likely become a cyst too....

It appears that my desire to grow is all about growing the wrong things or the right things for short periods of time.
Like an oyster, I have taken that speck of sand and coated it with hope apon hope untill I create a perfect orb that people will want to take from me.
Except my orb is not pretty and shiny, but intead hell-bent on taking me with it.

I planted seeds in my garden, at least I can watch that grown into something beautiful and right.

The results will be in shortly

I went to the ultrasound people yesterday....this after a very hard session with my therapist who insisted that I tell someone that I lost a pregnancy. So I am telling you....I lost a pregnancy and I am really not ok with it.
There.

In the real world, I told a long time friend, who repsonded in a surprising manner, thank goodness and was the perfect ear to tell it to. I also told my brother, who was quite shocked that I had lost a pregnancy.

So back to the probes...I went to the clinic and had the 417th ultrasound done, far less in real life...and was greeted with a tech who was all about me "keep trying" and how she lost one and that now she has a baby and that her sister had IVF because she wanted a boy and they spun the sperm to get one....argh
enough, oh and the URBAN myth of a woman here in my town who has two prgnancies in her bicornate uterus and they are two months apart...etc wtc WTF

She thinks I have a bicornate uterus, this can mean one of two things, I really do...or my fibroids are begining to rearrange things again.
then she saw two fibroids...only one was noted at the begining of the year. Then there was question if I had a calcuim fibroid...an oldie but a goodie.
But none were in my my uterus so I am fine to have a kid...go for it. Well, try and fail at it and then try not to slit your wrists from the pain of failure.
Oh and you have like a million follicles too....your ovaries are crazy.

I should hear all this and more next week when my results will be officially in.

So I left there, with a patch of missed ultrasound jelly in my crotch and a new sense of broken.
" Hello yes, I am the Barreness I will be your server for this meal of humble pie"

Sorrow

Something has shifted...I am starting to experiece sensations that I have in the past.
Aching in my bladder, a plucking cramp that flows along my lower abdomen...signs that things are shifting.
I have been off of birth control for about 9months now...ironic I know....that was not lost on me.
I have a dear friend that is expecting next month, we started trying at the same time....she got lucky, I got a whole lot of "hahah you're not pregnant" pregnancy tests.

I went to the doctor yesterday and had some things confirmed....no infections (damn I wanted a quick fix)
My uterus is enlarged and now tilted...that is a new one.
and yes, it sounds like I had another miscarrage.

Saying those words aloud hurt...I almost whispered it to the doctor. It seemed that saying it to someone other then myself or my husband made it really really real.
It seems pathectic that, at this junction, when things are shifting, I was pregnant for a small small time... and things have begun to go haywire again....meaning that I might be going back onto the pill to reset my uterus again, but this time until menapause. sigh

This was the last road, this was the last try...this was it.
I pulled the short straw, I lost.

Gone

My love had been planning a getaway for us for our anniversary....it was a wonderful break from his normal way of doing things. He kept it a secret and until the day before, I was not aware where we were going.
My period was late again but I thought nothing of it until it arrived. When it did, things were not the same ol' same 'ol.....in fact they were strangely familar to actions of the past.
I began to bleed very heavily and felt quite woozy, then came the signs that something was lost.
I think I lost another very early pregnancy.

This was something that I had seen before...and it didn't really hit me until months later...this time, it hit me like a sponge and I was left wet. I carried the quiet knowledge with me this time and let it slowly dry in small bits. I had gained another year of marriage but possibly lost being a mother again.

We drove many many miles and saw many beautiful things and were reminded why we love each other.
I was strangely calm all weekend...I think I was simply just quiet.
We both were.

Hot cocoa

I am propably the last person to see Angels in Ameria...it was great, well the parts I saw as I came in on the last third I think.
I was able to see the final scene with Harper and her final journey into Antartica...telling Mr Lies about her life with the eskimo...it made me cry. Knowing that she was not pregnant but had this lovely and quirky fantasy about the baby and her:
something like : Maybe it will be born with white fur covering its whole body, and it will never be cold and my breasts will be filled with hot cocoa to feed it with and we will live here and be happy....

The sweet sweet idea of what life could be like with the baby she will never have, or wishes she had.
I was in tears...taken quite off guard by it, but so comforted by it.

There is a similar scene in Casa De Los Babies, when Susan Lynch was telling her dream to the woman making her bed, about the snowy morning that she goes and wakes up the warm little wrapped lump in the bed and has a play day with them. Another beautiful dream of a child.

It is these dreams that I am soaking in...at times it feels as though I am drowning overflowing with imagined children, trips, conversations and hopes.

I am fighting, almost daily, from being broken by them.
I feel weaker at times and fear I will simply crumble...other times I have a lot of duct tape.

Autumn

It has been a while

I haven't written in a while, as I was trying to distract myself with living.

I have had a lot of other events to play with and so this constant undercurrent has been mutable.

In the last week it has been churning, maybe because I have begun to loose focus, the battle to remain in check has been just that, a battle.

I have felt so overwhelmingly lonely as of late that it makes me feel even smaller.

I tried to clean, thinking that what I needed was to simply find order again and then all those trains can run on all their own tracks and I could jump from train to train depending on my mood.

My trains keep finding junctions, forks, meeting points.

I keep having this feeling like I am forgetting something and simply whittling away my days. Thinking tomorrow I will do more, tomorrow I will be more, tomorrow will be better.

When will today be that tomorrow?

I often find myself looking in circles, staring at walls or going to my pacifier the TV to make me forget that all is not running smoothly. I am unfocused and afraid that I have really blown it.

I really want to start living, but I don't know how...

I am in fear of slipping back into a deep depression, falling behind on my hopes for my art...the trains all colliding and exploding, leaving nothing recoverable behind for me to find.

How will I find my way out of this dark, moody place I am in...

A call for empathy

my response to a beautiful call for empathy:

"So wonderfully written, I am overwhelmed with its bare honesty, and beauty.
I am still working on finding my path of peace, where the deep deep pain can be a lessened. I still try to not to cry when nieces and nephews have birthdays, and many times fall on days when I get my period. All those times I had hoped for...all those days they can not share with a cousin.
Friends still offer suggestions for fertility, and although I know it is coming from a place of love...it feels insulting. Don't you think I have tried all I could think of?
Empathy is not a word I think many consider with us, but instead sympathy. "

It's that time again....

This struck me as funny, and seeing that the moon is full and my womb is not...I thought it was only fair to post something that made me laugh for a change:
Pregnant Women Are Smug by Garfunkel and Oats

Big kisses to these ladies!!

End of the line...

With this most recent cycle, I have had mini panic attacks.
I am fine one moment then in an instant I am not...I start to have a hard time breathing, I am spinning and then sobbing.

I am the end of the line....this train is going to sit in the station.
No packages to deliver, no news to send forth...no passengers to carry.

It was a photo of my great great grandparents that triggered it for me.
My great great grandmother had 11children, all lived. My maternal great grandmother, died a week after giving birth to my grandmother....I thought for years that that would be my fate too.
I would have a close call or die after giving birth to my own child.
Little did I realize, it would have been by my own doing, instead of the entrance of a child it was the loss of what can not be.

I have started photographing my family pictures, the old ones, the ones over 50years old and making CD's of the images to be passed onto others as years pass and generations become that. I am trying in some way I guess, to make a legacy of my own. I am trying to make some sort of mark in the face of all this.
For when I am gone, it will be only my photos that live on...maybe.

For now I am doing this for my niece and nephew...to let them know I was here and I cared enough about them and all who came before us.

Nothingness

I don't feel like doing anything, nothing.
I have tried, in fact most of this week, has involved me trying. Pushing forward and moving...slowly but moving none the less.

I think the level of loneliness has started to pile up on me.
I feel very alone.

A friend mentioned that they were going to gather pine cones for me. Apparently they are a symbol of fertility. I told her I couldn't do this any longer, I wanted off the roller coaster, I wanted to gain back the life lost in waiting and hoping. I told her this months ago, I think she is still hoping for me. She and I had started to try at the same time, and now she is 13 weeks pregnant and I am waiting for my late period to begin.
I know it is late, as I took another pregnancy test this morning and was greeted with another "not pregnant" on the stick.

It is only a matter of time, before she begins to realize that I am not a fertile womb. Heck it is only now that I am really coming to terms with the idea that I am not going to be a mother.

So I continue to bob in the vast ocean of this reality. My arms and legs numb, my back sore...my desire to eat ice cream on a stick- strong.

Summer is here and I am flooded with images of idyllic childhoods, and times gone by....and I feel nothing when I am not crying.

Numb all over

As I wonder into the new unknown, I find myself numb.
Numb from tip to toe...and the efforts to make myself happy are becoming harder and harder to muster.
It is an effort...I find times in the day when I am berating myself for not doing more or simply sitting and zoning out.
I have been told I have insomnia, but I have found myself sleeping better the last few nights since the news. Yesterday I could barely move my neck and today it is fine.
I am given days when all seems to fall apart and others when it is all reset again.

As the first period after my "safety time" is approaching I am not sure what lies ahead, I have a new doctor on the horizon and we have no history or knowledge of one another. Where would I go if things go wrong?

I am lost, so very lost.